A patient's experience with ulcerative colitis.

[spidy]

I am 22 years old and I just got diagnosed with Ulcerative colitis, this video really helps thank you !

[ziggymorris]

Diagnosed with it on 1988 at the age of 15, I can still remember the last meal I had before I went to the bathroom and felt the first cramps and blood drip into the toilet(hate to be graphic). It was scary and painful, I thought I had cancer which continued the flare up. It was brought to a gastroenterologist who scoped me without anesthesia, yeah, even though it wasn’t deep, it hurt like hell. I was put on sulfur drugs and folic acid, the sulfur drugs ballooned me up and so I stopped taking them with a warning from my doctor “would you like a trip to the ER?” He was right, fall of 1989, my senior year of high school I had a major flare up, for the first time I was admitted to the hospital where I spent a few days. Whew I thought, I got out of that, but I still didn’t want to take the meds for what they were doing to me and I would pay dearly for it the following fall. That fall (1990) I was a freshman in college sitting in English literature class when I had a huge cramp out of nowhere, it felt like someone stabbed me, I ran to the bathroom and barely made it, what I went through in that bathroom stall I won’t ever forget, the intense pain and the amount of blood that came out dwarfed anything I had experienced up to that point. I immediately grabbed by things and drove home, I decided to take a few days off and take my meds in the hopes I wouldn’t miss too much time, but it was too late, the pain and bleeding got worse and I knew something had drastically changed for the worst. It became so bad that at 18 I drove myself to the hospital and checked myself in, I would spend the next 2-3 months in the hospital going through what I can only describe as hell. Back then they did not treat pain like they do now, for pain all I got was Tylenol, Motrin or Maylox, so I tossed and turned as my body deteriorated from the disease, everything from going from 5’7” and 155 to 126lbs, to being jabbed so many times I had no more veins left abs required them to insert a device into my jugular vein to give me meds, to two blood transfusions and finally and thankfully surgery. But even surgery couldn’t go well for me, I was sent home only to have scar tissue block the intestine making it impossible for me to go and distending my stomach like a balloon. So back to the OR I went to fix the issue only to have an infection happen because an arrogant SOB of a resident doctor forced an NG tube down my nose which forced me to gag and pulled on my staples causing the infection from the trauma.

I had 5 surgeries in 10 months, the last one was to reverse the bag I had to wear. Because of this I went on to throw myself into health and fitness competing and eventually running and owning my own personal training business which I operate to this day. I don’t wish this horrible disease on anyone, it’s very painful, debilitating and for an 18 kid embarrassing. The only thing I am thankful for is the fact the technology existed, had it not I’d be dead.

If you know anyone suffering with this disease, reach out to them and thank the powers that be that you are healthy.

God Bless.

[SaraRodriguez-lwth]

I’m only 11 and just started suffering I can’t do anything right now my friends are at school and I’m in bed unable to move . She is truly blessed and I hope! My recovery will surprise me soon

[amaanpatil]

I was 15 when i was diagnosed with ulcerative colitis and now i have turned 18 and the years which passed have different stories good and bad with change in time and even after treatment from a well-known gastroenterologist the result is just that symptoms stop or become less but it is chronic at the end. Just i learnt from my life till now that keep going and see yourself among those luckiest who has something better than nothing and there are more bigger problems than your disease in the society which are to be cured..

So I'm on my way to become general surgeon so that i can study the disease and try to do my best to cure uc completely and other diseases !!



Health is wealth at last 😇♥️

[Angelmama-]

I am now suffering from this. Took the doctors 5 days to find out what's wrong with me. And now I feel like I have my life on hold, trying to look in the positive.

[johnathanhardin]

I was diagnosed quickly when I was 5 years old. Over the years I have been to 5 doctors and 10 colonoscopy’s. I have been on several medications and suffered greatly and missed out on a lot of things in life. When I was 16 I went to a doctor in Lexington and was put on a new medication called Entocort. I took that until I was 19 when my UC progressed into severe UC. I was then put in Remicade and immediately my symptoms stopped and have been in remission for 8 years now with only a few minor flares since. I’m now enjoying living life.

[chloeroses]

I have this disease and a lot of people are effected in a different way but I started to gain weight after they put me on steroids to contain the disease and I some times have really bad pains but I have learned to cope and live with this and to stay positive

[heatherw]

My husband was diagnosed with ulcerative colitis last year at 36. Its definitely changed alot of things for the both of us. He is starting entyvio next month and I pray that it helps him.

[linanapolitano]

My daughter got diagnosed when she was 16 with a severe case of ulcerative colitis...its 2yrs now and she does intravenous treatment every 6 to 8 weeks and the medication is called Renflexis and she's doing awesome. Its sad that it happened at a very young age but she's doing great ❤

[ChesapeakeAreaParanormal]

I almost died my doctor saved my life no meds worked I had my colon removed I was lucky I had it reversed. You're very lucky

[gracekelly]

I lost my Mom to uc. I miss her so much.

[margaritadymitrow]

It’s shocking how many people get diagnosed with this condition I was 2 years old when I was diagnosed I’m now 18

[RaymoreRockStarMom]

Just got out of a week in the hospital with this. Worst pain in the world! I was near death. Waiting on results from biopsy. edg and colonoscopy and I am so worried

[e]

I am so tired of being sick but I dont want to take medication I'm so confused but I feel like I'm dying slow.

[bryanbiluk]

I have it too ! So I know how you feel ! On my third med.Uceris

[mohammadabubakar]

I'm also a UC patient. Im in remession now. Allhamdulillah.. i lost Alot of weight. The only thing is people can't understand UC patients, some make fun of my weight..but its ok...

[heribertocandelaria]

I feel for you all. I have acute colitis since friday, 102 fever, stomach cramps when i eat, crazy diarrea, body pains, ugh horrible. Been on antibiotics since saturday and starting to feel alittle better. What a plague though

[connorjohnston]

I had it at 13 diagnosed at 17 and now coming up on my 10 year anniversary for having the disease

[anuragtripathi]

A person who take last food before sunset and take only water after sunset, will help to relief from UC.

[listeningloversrock]

I’m 11 and I was told at first I had noro virus. I had bloody diarrhea also. I had vomiting and fever. I stayed in the hospital on Christmas and over 😭 they can’t figure out if I had colitis chrones or just a virus?? From hearing what she had and I had the same thing. I’m pretty sure I have colitis. Stomach pains hurt so much 😰