Trouble swallowing? Maybe it’s from EOE

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[chrollosforehead]

When I talked to my doctor and my mom about my throat problems. I mentioned a condition to do with your esophagus and they both laughed in my face and my mom even said the word esophagus in a way she could mock
I went with my gut and after a bit more persisting and a bunch more choking on food.. To "reassure" me that I am ok
My doctor sent me to a pediatricians

Turns out I might have Eosinophilloc Esophagitis
And I'm getting a biopsy and endoscopy done on the 2023 October Friday the 13th....

I get they both probably didnt mean any harm and thought I was being dramatic. But I was full on crying, choking on my food almost every time I ate it. I would get anxiety to eat, and only when the new doctor (pediatrician) a female mind you. She was so sweet and was asking me questions about like how long this was going on, etc, etc. Note that more times than I can count, my mom kept interrupting me and kept spewing nonsense that made both me and the doctor kind of confused. It just frustrates me when I don't get to speak about my own body and when I'm concerned they brush it off....
Funnily enough my same family doctor the original one (male) he and my mom were in a bit of denial that I had ADHD. The results were there, but more so my mom. Thankfully she came around and so did he but it still sucked because they kept saying "there's nothing wrong with you, you're just a bit distracted". I'm 14 keep in mind. It really hurts to not be heard or to get told ur fine when in fact i am not and it took me so much courage in the first place to ask for help... 

(Sorry if this isn't written very well as I am tired and need to get some sleep)

TL:DR My mom and family doctor didn't believe me when I said I was always choking on food. Turns out I might have EOE.

Edit: Oh goodness I forgot i left this comment here. Ok so turns out a do have EOE and i have been medicated for almost 3 ish months now.
I take Mylan-Pantoprazole and oh my lord has it helped me, i can finally eat again!

Moral of the story, please trust your kids when they tell you something is going on 🫶🏼

[JustMe-]

I love these short forms (also as a med students I knew all of them so far but to have them quickly revised is great)

[Luubelaar]

These little videos are awesome. It's like an "explain it like I'm 5" or a "TL:DR" for medical issues.

[iwanttoridemybike]

DX'd with EOE in 2019 after yet another trip to ER for emergency clearing of an impaction. 1996-2019, had 16 endoscopic procedures to dilate (three of those were emergent to clear impaction). Faithful on a total elimination diet x six months. By far, my biggest offender is the ubiquitous soy! I've also not had peanut butter in my house x 4 years, and this Florida girl hasn't had fish or seafood, either (the hardest!). But, no need for endoscopic dilation in over four years!!! I appreciate all your videos, especially this one! Your compassionate humor undergirding your excellent medical knowledge is such a gift! Thank you!

[obadahal-harastani]

Thanks for getting to this so fast, I really appreciate it !
I'm really amazed at how you can unpack such a complicated topic in one minute and still manage to be clear and informative.
I've definitely leaned here more about EOE than I learned at my gastrologist office in the 15 minutes we had !
Keep up the good work !

[HiKingMargo]

I really love that you mentioned some food/diet options. My mom's old GI basically said that diet doesn't matter lol even though I had noticed her having more issued when she consumed tomato products. I told her to switch GI doctors immediately. Especially since she has a vomiting issue they believe to be "cyclic vomiting syndrome", on top of the many other reasons she vomits. Yet that Dr wouldn't give her any anti-nausea meds. It was so bad that she would wake up choking on it, due to her cpap forcing the vomit down her airway and into her lungs. We got away from that Dr asap, got her on appropriate nausea meds and in for surgery for the inspire device in place of the cpap.

[onlyinsomniac]

You're the first GI doctor I've EVER heard mention EOE. Maybe because it's newer? I had a friend in college who had these exact symptoms and kep having to go to the ER due to food getting caught in her esophagus.

Really interesting to see increasing awareness and understanding!

[jackwoodley]

On my GI rotation now and there was a patient coming in query eosinophilic oesophagitis. The doctor doing OGDs had never seen it in practice before and said we may be able to se a feline oesophagus but its rarely seen inn cases.. Long behold it was there. A great first experience for the both of us!

[RMalik-sybz]

Really need more information on EOE treatments that are well studied and relatively safe 🙏

[Supatu]

This was a timely video. I have an esophageal manometry scheduled next week due to dysphagia and long standing and worsening GERD... i will def discuss EOE with my gastro

[noonie]

I was diagnosed with EoE when I was around 6-8. EoE is so rarely talked about, so thank you for making this video. I was in remission from ages 12-15, but am out of remission now. I feel like nobody talks about how debilitating this disease is, as every meal is a struggle.

[rosemadder]

My mom is constantly choking on her food. She has lupus so it would make sense even just that she’s having inflammation from that, it’s really effects her connective tissues 😢. I’ll tell her about this. Thank you!! I’ll keep it in my mind while I’m EMT-ing too lol

[MichiganCrimeTime]

OMG! I’m waiting for my GI to call me back, because I need my esophagus! It’s been a few years since I’ve had it done. That year I needed to have it done 3 times. I have selective IgA deficiency and systemic mastocytosis. It’s so much fun!

[brennanhenrion]

I had esophogitis to the point where I developed a food impaction. Mine was from a different cause, severe undiagnosed gerd. Went on PPI's only to be taken off again a few weeks later, worst week of my life.

[rosanneclouston]

In 2006 I started having trouble swallowing. It was esophageal cancer. I knew what my esophagus was just never heard of anyone having cancer there. Maybe do a piece on that. April is Esophageal cancer month.

[carlyar]

These are awesome! Please keep making more.
One subject that I’m curious about is neurological/ANS conditions that affect the G.I. system. I recently learned that upper cervical instability (UCI) can cause dysphasia, and dysphasia is also a symptom of dysautonomia.

[relic]

Quick & easy explanation. Son diagnosed in 2017. It's been an adventure. Doc great video

[maryandersondearing]

Discuss next: Radiation esophagitis. What options are there to help patients who don’t recover back to baseline swallow comfort on their own after a few months?

[Kate-ozhf]

My 6 year old daughter just had an upper endoscopy done last week. They were mainly checking for Celiac disease, but they also looked for EOE. She didn't have any signs of either condition, luckily, but it was interesting to learn more about EOE, as I hadn't heard of it before last week.

[relic]

Thank you Doctor you made this very easy to understand my son was diagnosed with this in 2016. If my doctor goes out of business or retires early I'm moving to your state for treatment