What is palliative care? Is it better than hospice?

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#hospice #hospicenurse #hospicecare

[hospicenursejulie]

What are other questions you have about Palliative vs Hospice?

[NancySlider]

I wish I’d known more about palliative care as my hubby would have benefited the last year or two of his life. He had many chronic debilitating illnesses that made life unbearable. But then I remember how fearful, uncooperative & resistant he was… and in denial. His many doctors never brought it up, offered it nor did his home healthcare nurses. Perhaps in my area it’s still not very available. As his full time caregiver I did my best to advocate for him, but his demands & expectations were unrealistic. Since his passing last winter I have received such support & education fr Nurse Julie… and I simply won’t let guilt overwhelm the grieving process. After 43 yrs together, there’s enough to handle as it is. Instead of regretting what I didn’t know then, I pray her experiences will better inform me & my kids when it’s my time. Thanks Julie for being such a huge part of my support these past 10 mths❤

[carenburmeister]

Thank you for clarifying! And for all you do to educate us about the dying process.

[tallchick]

This is what we are starting with our 87 year old father. He’s in denial about his situation (constantly says, “I just don’t know what’s happened to me”) and we hope this will help us and him in managing expectations and symptoms. So grateful for what you do.

[pamelacolefloyd]

Dad is a few months shy of 96. Has been treated for Paget’s for several years. Discomfort primarily in his pelvis and lower back. Recently has experienced more widespread pain in his back and chest. He has decided he doesn’t care to visit another doctor or have scans or do anything other than treat the pain and live comfortably at home. We are all completely supportive of his decision. Palliative care is pretty awesome. Not much has changed in the day to day except the introduction of the pain meds, keeping his bowels moving and the occasional nausea. I will say managing new symptoms sometimes feels like a game of “whack-a-mole”. Addressing one thing creating an issue somewhere else🎉😊
God love you professionals!

[sandrareames]

You're right palliative care needs to be in forced with doctors because I feel like they treat one inch square inch of your body and then the next doctor treats the other square inch and so on and so forth. And there's a lot of those little square inches left out in the cold not being cared for. Thank you for your explanation I didn't even know it existed

[nicolejames]

I'd like to thank you so much, I'm 30 but was diagnosed with stage 4 breast cancer when I was 27. My mum also has stage 4 cancer. I absolutely love my pallative team, I used to work in the field. But even so, your videos are very informative. I'm always learning something, so thank you! I appreciate you so much! xx

[charliemoondor]

When my mum was very unwell with acute myloid luekemia she had nurses from the hospice come and see her-which freaked me out because nobody explained that in the UK, those nurses come to see patients to check they are on the right pain meds and to offer care and support that isn't necessarily offered in a hospital.But you mention "hospice nurse" (which is how they were introduced)and you automatically think of someone who is dying!So i thought my mum was going to die!Anyway, those nurses know their stuff and were so helpful and kind.They tweaked her meds and gave advice about financial matters and generally had a good long chat with her.. so Im glad we met them..BTW my mum is now 15 years in remission-she didn't die😊

[skuli]

My partner is on palative care. How I was told was that the diagnosis is terminal but chronic not acute. It's for pain management and symptom relief however they don't take care of the patient other than symptom management for the disease. It is a step in the door the next will be hospice unless there is a miracle. Was also told no further treatment is sought nor asked for. I absolutely love palative care...they are amazing and really have made my partners death tolerable.

[decemberelement]

My husband has just recently gotten on Hospice.. I'm so grateful for angels like you...
I learn something from you everyday...

[CallumEdminston]

Thnx Julie.There's a real need for these shorts...

[dawnnicholas]

Since I have been put on Pallitive care, I am receiving more one on one care and doing better. I have Congestive Heart failure and survived 2 M.I.S., C.O.P.D., ETC. I HAVE AN AMAZING DR. WHO IMMEDIATELY SEES ME WHEN I GO DOWN HILL, SHE SET ME UP WITH A CASE WORKER WHO IS A NURSE. IT HAS BEEN SUCH A BLESSING ❤ THANK YOU FOR ALL YOU DO.

[leeannesargent]

Thank you for your information. I've lost 4 jobs and 2 houses to chronic illness and now wish I knew this. Thank you.

[erinhybart]

Thank you for the videos. We are getting ready to be assessed for Hospice care for my husband. It’s all new to me.

[tacrewgirl]

Thanks for this explanation. I didn't realize they were different.

[Dana-rgtn]

I absolutely beyond words appreciate you. I pray I have someone just like you by my side! ❤

[ChaptersHealth]

Yes! It's focused on symptom management which a lot of people don't know 💙

[singorexpire]

I've been blessed by the services of Palliative Care for 3 years. The support of Palliative Care reaches into my life and makes it better, especially in regards to their holistic approach. I feel such warmth and fondness for Palliative Care .

[csc]

Treating the body as a whole...what a concept. This should be from day one.

[mariaco]

My mother-in-law is 86 with dance dementia she broke her hip. She went into surgery to repair her hip but her dementia got much worse. She’s been there a rehab center for month and a half. She’s coming home this week as hospice because according to the rehab center she’s she’s dying she’s eating very little drinking very little she’s not pooping enough she’s not drinking enough so they think the hospice is the best thing for her until the day she passes but sometimes I feel like she has longer life they they think, so I hope they do the right thing. I’ll bring her home as hospice. Don’t try to improve her like quality life. Just trying to keep her comfortable no more physical therapy. No more exercise just move around a little bit.