Chronic and Progressive | Idiopathic Pulmonary Fibrosis | MedscapeTV

Pulmonary fibrosis can have a number of etiologies. When tests reveal that there is no direct cause and the disease is progressive, physicians only then assign a diagnosis of idiopathic pulmonary fibrosis (IPF). A chronic disease, IPF has proven difficult to treat effectively, and has traditionally led to poor outcomes.

And it's not rare. Approximately 100,000 patients in the United States are living with IPF, and more than 42,000 are newly diagnosed annually. Mortality rates approximate those of breast cancer. Three quarters of those who develop IPF are men and age is a determining risk factor.

But pulmonologists at Cedars-Sinai and Cleveland Clinic are now better able to diagnose this swiftly progressive and often fatal disease with high- resolution CT scanning. Improved treatment options are also showing promise in improving quality of life and prognosis.

[davidsloane]

Just diagnosed....took a while. I'm 62. Always been responsible. Zero debt. Nice retirement nest-egg always sacrificing, scrimping, and saving planning for the future...that I now don't have. Never been one to live now...pay later. Now I have the opportunity to live now and NOT pay later! With an 800+ credit score and PLENTY for minimum down payments on hundred year notes at I don't care interests rates! I'm about to get me a beach house with a slip and one helluva off-shore fishing boat. My sister can call the banks and tell them where to come get their stuff when I'm done with it. I'm just glad I got a heads-up instead of like that poor schmuck taken out in a car wreck. Gone fishin!

[shammaaldhaheri]

I’m a patient who suffer from ILD and it’s progressing so fast together with myositis i loved this video it really gives hope and positivity rather than giving an exact number of how many days are left in a patient with such disease

[vetteluvnh]

My mother has just succumb to this disease after contracting pneumonia this week. She was 70 yrs old. I had no idea what it was or that it could be this fatal. Thank you Medscape for producing such a wonderfully informative video. To all those whom this disease has affected directly or indirectly, my heart goes out to you!

[raymontoya]

My dad passed away July 24th 2019 with this he didn't know he had it until he fell and broke his hip and was bed bound in the hospital. I pray they find a cure to this and soon.

[gauravparab]

My dad passed due to IPF.. I really pray for early diagnosis, vaccines and drugs for IPF.

[cskiles]

IM
Glad the comments were left so ppl can converse. When I find good info comments are deleted or shut off.

[brandymcclain]

My "not mother in law" (bf's mom. I've been dating him for over 5 yrs). His mom was diagnosed and has had it for 15 yrs. She is an outlier! Interesting thing is that she has been on MaryJane this whole time and thinks that it has help add over a decade of life to her. But now she is hospice at home. Declining fast. This is a terrible disease!! Just brutal. I hope they make a break through soon so others can live longer.

[moneytricks]

I pray these doctors and their families bless with so many happiness.
When I see these doctors I felt like I have seen a God.

[toddlebean]

My grans had it for 5 years. She's almost bed bound. Hope they find a cure but inside I know they won't and it's just a terminal thing

[ThePrinceblaze]

To anyone reading this, my brother was diagnosed by this pulmonary fibrosis due to auto immune condition.. Please anyone who has been diagnosed with the disease just try to stay away from outdoors as much as possible otherwise the infection might take part of the breathing capacity and ultimately you will land up in ICU Ventilation.. and the chances of getting pneumonia from this is too high so its very much fatal... Take Note please..

[safariqueen]

My husbsnd passed away 2.5 yrs ago. He became ill on the 16th July 2016, he was admitted into hospital on 21st July 2016 and he died on 8th August 2016. The only symptom he had shown was a small cough.

[timmytool]

Thanks so much for the video, I have been diagnosed with PF early results, I have to have a CAT scan and another test. My Dr. a pulmonologist from my town has stated he feels mycase involves long term GERD. I have had it for 47 year to the point of Barrettes disease. He wants me to go to my GI and ask if I should have the operation to tighten up the sphincter muscle. If so it would help prevent the acid from coming up. I am on 60MG of omeprazole and have been for many years. Still I have several reflux. My diet has not been good thinking the drugs were working but in fact we overwhelmed in my opinion. I don't smoke quit in 1980, but my diet was not good until two weeks ago with red wine, lots of acid types of food. I have now started to take care of my diet, lose weight etc. My brother died of complications of the lungs at 77. He had worked for a company spraying paint inside fuel tanks, if those days there were no regulations for that work. Thanks again for all your hard work, I am hoping to live at least another 5 years. But if not I have had a good run.

[cskiles]

Sad we don’t know how long it’s been there. Sad 😢 my husband just diagnosed. Can’t start meds yet. Kidney and liver function numbers were off now have to wait for for scans ultra sound blood work another month to see dr 😢

[JamieBrook-rv]

🔷 Rediscover Comfort: Malva-H eases the discomfort of breathlessness, giving you the freedom to enjoy life again.

[wajahathussain]

It's 2025 still no new drugs for ipf other than these two drugs.I lost my uncle last month with this disease

[SpongeAddict-gwmo]

My mom has it due to covid since Dec 2022. She’s hanging in there but slowly getting worse

[loltroll]

If people are healthy and it is stable how long will they live?

[charleneodonnell]

At :33 seconds he says something about cackling or crackling, whats that mean?

[sunilkumarnaik]

My nineteen year brother is suffering from this diseases, admitted in seven Hills hospital vishakhapattanam. Doctors have tried their best but his condition is not showing any improvement, every information help is needed, pls help.

[Katt-w]

I have question does pulmonary fibrosis affect and damage both lungs yes or no