Post-Exertional Malaise: History, Characteristics, Evidence

Dr. Lily Chu presents on “Post-Exertional Malaise: History, Characteristics, Evidence.” Dr. Chu is Co-Vice President of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and a Stanford University & Solve M.E. Community Advisory Board Member

Webinar

[Wildflowerincali]

Thank you. You just cleared up a lot of previously unanswered questions...23 years of this for me.

[jetmoo]

To think that I used to work 12 hour shifts in a care home, finish work and go get changed and go to my friends house have a bottle of lambrini and jump around on the Xbox kinect ...it's a different world now. To think how I used to run to get a bus. Have a night out. I don't even try a drink cos it's supposed to make you Ill. It would be so nice to be normal again. Thanks for doing what your doing. I didn't watch all but watch about 10 mins. I would love to have my normal life back and have children one day... It's a lot to take in watching the video

[RosieDee]

I've been completely flattened with ME for past 3yrs & the study about exercise/activity was amazing for my self-confidence cos I keep attempting cardio exercises -swimming, tai chi, stretch exercises as I was very fit/active prior to illness. The pain, cognitive etc simply got worse for days & days and I goet very depressed cos I think it must've me but it was ME/CFS!

[KonaSitkaRose]

Thank you for sharing the summaries of outcomes from those who suffer from chronic ME/CFS/PEM/SEID compared to the control groups. If only our physicians would listen and learn, instead of insisting anyone ill must need a psych. If only they would validate our self reporting and measurable abnormal signs/symptoms. {heavy sigh}.

[erikjohnson]

Dr. David S. Bell of the Lyndonville outbreak wrote an entire book explaining PEM, and giving it a better name.

Cellular Hypoxia, and Neuro-immune fatigue.  2007.
"Chronic fatigue syndrome and fibromyalgia have severe and sometimes disabling symptoms, yet the affected patient looks well. In this book a mechanism is presented arguing that these illnesses are defined by decreased cellular energy production."

[KidCity]

Why don't my drs know any of this, its 4 yrs old. They keep telling me to exercise.

[MP-uoqd]

Dear Stanford University. Please look into how to measure thyroxine uptake in the cells. Thanks

[mirroravis]

I wish I could figure out what was wrong with me. It seems like CFS, but I don't know. I've been tired forever, but it got worse in high school and ever since. I was diagnosed with ADD in my early 20's and taking adderall helped with energy, motivation, and soreness. When I was a fast food manager though I would sleep until I had to go to work, work a long shift, walk home (always took me forever), and when I got home I couldn't do anything. I spent my time at home just laying in bed or on the couch. I'm 27 now and I have 2 kids. I can't drive for more than an hour without getting extremely sleepy. Even a 5 minute drive can make me tired. Just getting pants just feels hard. My body is just so uncomfortable.

[marvinthemartian]

+Chronic Pain Heroes See comments from Kip the Doorstop Dog on CaSO4. Modern industrial levels of sulfate (soap, shampoo, toothpaste, processed paper products, agricultural products grown with gypsum (Calcium sulfate). Calcium sulfate is the primary source of calcium in the human body during the modern age (not the parathyroid gland, digestive system, and vitamin D). A continuous spike in free calcium affects all nerve cells including muscle tissues.

[ChrisGroggyCreaser]

- I got CFS/ME/Fibromyalgia back in 1987 & have Suffered ABSOLUTE HELL with it ever since in the UK!! - Due to my ex wife kicking me out of our shared home & splitting me up with our daughter & her stealing ALL my money & 95% of my possessions!!.... :( *I lost my job, etc All in One day!! - IBS/Brain Fog & Absolute DESIRE TO REST/SLEEP, etc is Almost Overpowering!! - U Can't think properley/talk properley/carry out a decent conversation properly/Find genuine love/romance, etc, etc, etc in the UK!!... :(

[ksize]

Maybe Judy Mikovits will shed more light on this in the near future. I have dealt with this for 39 years. Exacerbations are getting harder to pull out of every time now. I can no longer just push through. I get clumsy and get hurt, or end up having to be mostly horizontal for days on end. The postural change intolerance recently led to a bad fall and I can't seem to gain any headway past one year. Last 2 times I was able to go to grocery store, even though I used a mobility cart and close parking spot, it took me 9 days and 7 days respectively to recover enough to stay out of bed for more than a half hour at a time. I have never been quite as disheartened as this extended exacerbation. It is a tough row to hoe. Especially without support, as most can't understand this know that I wouldn't understand it if I didn't have to live with it.