LIVING WITH DEMENTIA EP 14 | IT'S GETTING ROUGH AND ONE ON ONE CAREGIVER TALK

LIVING WITH DEMENTIA EP 14 | IT'S GETTING ROUGH AND ONE ON ONE CAREGIVER TALK 12/11/22

[candiwelsh]

I would just like to say if there is anyone out there who wants to judge and complain just please GO AWAY! This is a care group of like minded people and Leslie is doing her very best to trust GOD and put one foot in front of another as she loves and cares for the love of her life. GOD bless you dear sweet Leslie. We are in this together. You and Jason are loved very much by this community and everything you post is so very appreciated. Thank you so much. ❤️❤️❤️🙏🙏🙏

[LindaOkeson]

Oh Leslie, I am so sad you have to go through this. My husband died in 2021, with "muscle weakness" and dementia. I insisted on keeping him home as long as possible (I'm now 81) and it nearly brought me to my knees. Thankfully my doctor intervened and moved him to health care (nursing home) where he spent the last 6 months. All of this during Covid. I would urge you to get someone to relieve you as much as possible. He no longer knew who I was and possibly was not clear who he was. I truly did not understand the toll it was taking on me until after he died. Do not consider it to be selfish to ask someone to help you. It's such a difficult journey for both of you. God bless.

[janlabbate]

Your love for Jason shines through each time you do one of these videos! I’m thankful that you also have a support group and your faith to lean on. Never feel funny or weird about unloading on us. We are here to support you and send love/prayers to you both.

[chriswells]

My heart goes out to you. I lost my husband just 3 weeks ago to dementia. We were on this journey for a decade. I retired 5 years ago to be home and care for him and the last 3 required full time care with constant monitoring. It’s the cruelest of diseases. I’m so glad you have a support group and please know that you will need either family or a paid caregiver in the late stages. No one person can care for a dementia patient 24/7. Prayers 🙏

[kathiebranton]

No one should say anything negative about how you are coping with this situation. I know it is heartbreaking and sometimes hurtful when all you are trying to do is keep Jason safe and happy. Your happiness you have to take bits at a time because you are constantly looking after him and sometimes sorrow comes along with that. I applaud you for loving him and doing all you know to do to protect him and support him in anyway you can. Prayers for the both of you that God will continue to give you strength and trust in Him as you go through this battle together.

[raelanae]

I am crying as I’m watching this because I had to totally get me and my husband are in it right now and it changes all the time he has vascular dementia and Alzheimer’s and it does it changes the whole relationship / marriage dynamic. He was like my best friend now I’m the person he likes the least and it does hurt if I didn’t have God in my life I don’t see how I could get through it. What has been especially hard is finding support groups in my area. . I appreciate your videos very much.

[Fiona-sgwh]

No one should ever judge you. You are doing an amazing job. I am a hospice nurse now but a former ICU nurse for 25 years. Most of my patients have dementia and they are all so different but similar in many ways. It has to be one of the hardest things to watch. I feel for you and Jason. It affects everyone and no one more than you and your kids. The stress it puts on the spouses is tremendous. You sharing your story with others is so helpful to all caregivers dealing with this. I have the pleasure of knowing many spouses of patients who I have known for a year and they are amazing people. The stress I see on some of them is tremendous. They do become children again. sending you all love

[valeriereinhard]

My dad had Lewy Body, and my mom was his primary caregiver for the duration. You’re doing an amazing job. It’s a hard road, and unless you can see behind the scenes, it’s almost impossible to understand. Although my mom is gone now, I know she would be a huge cheerleader for you and Jason! You both are doing a huge service to other people dealing with a dementia diagnosis. My mom would have so appreciated such a resource when she went through it. Thank you!

[terrytt]

It's so difficult for me to imagine anyone questioning your caregiving choices and techniques with Jason. I'm sure off camera things get tougher, but on camera they can still be pretty tough. I admire you so much for the love you exude for Jason and the patience and kindness. to me, you are a saint! 💝

[beckyjohnson]

Oh my goodness-
I’m alone in my journey with my husband and you are speaking my heart right now.
Thank you for sharing ❤

[terrybouck]

We’re with you Leslie, my heart aches for you. Keep on trucking you’re doing a wonderful job.

[cheryloja]

My heart is broken 💔 for you both. We had to form new bank accounts, cancel credit cards, take out house phone, it's exhausting. You are a mother to him now, start planning for 24 hour nursing needs as it will shift to next stage quickly. Please plan for your self, living arrangements, keep your true friends close, counseling on acceptance the relationship is coming to an end as you knew it so your heart is more ready. They seem to go to a place we can't share, basically your just an observer to keep them safe for now. In those moments of clarity, simply show the love ❤️. Take care and pray diligently, Heavanly father hears you and will send you help. God bless sweetheart.

[Nausome_nana]

I felt so bad for Jason, it is one thing to be confused and another to know you should be able to do a task but can’t. Jason is so blessed to have you as his wife. It is terrible journey for a couple to be on. Sending you hugs. ❤️❤️❤️❤️❤️❤️

[beckyshell]

No one knows the struggles of other people. If you have never been a caretaker of a person with dementia please don't be critical. Even if you have been a caretaker every circumstance is different. My dad had dementia and what I missed most was being able to have an intelligent, meaningful conversation. He died of a heart attack before the dementia was end stage. In a way I am glad it was the heart attack because even though he most likely lost time he didn't linger and suffer.

[JustMellie.]

Prayers for you Leslie. I always said that God sent me to EMT school when I was 44, got me a job working in an ER for 20 years helping RN's Docs, PAs, so when my husband (of 40 years) had cancer, I could take care of him at home. We only got 7 months with chemo and radiation, but no one in his family realized how tired I was from doing it all alone. I admire you so much, and I know you don't sleep well because they get up at night and fall, or I had to put a lock on the basement door...God Bless you! Jason is very lucky to have you as his wife and caretaker.

[TheKlh]

Oh Leslie, you are going through it with grace and dignity. I know we don’t see behind closed doors but you are an inspiration for sure. I’ve been watching you and Jason off and on for the past several years. Please know we don’t expect you to be strong, cool, calm and collected all the time. It’s got to be so very hard to lose your best friend to this difficult disease who also happens to be your dear husband.
Prayers for you and Jason❤

[SueEllenMacfarlane]

I just lost mine a month ago. This journey is a hard one. It is not for the weak. Hang in there. You are awesome.

[yarntaxi]

Doing the same with a close relative ....it is very much like one person disappeared and I am learning to adjust to someone who is a stranger. Thank you for your videos.

[annelyceimgrund]

I can’t even imagine the massive adjustments you’re both having to make on this terrible journey. All diseases are awful, but to me there’s something particularly insidious and evil about dementia. I’m so sorry it came to you two, yet so grateful for your openness and transparency. A few years back, this was my sweet mother’s journey. Tomorrow, it could be mine. Or my husband’s. It could *and will* happen to many of us in our turn.

Everything I can think of to say seems so inadequate, but I was thankful to hear that you are both Believers. Our Abba Father walks every journey beside us, and promises that what we endure on this side is NOT the end of the story. 💜

[Rustytoolgardener]

I’m speechless right now and scared to death. I need to move my DW with dementia and think it will promote more decline. I feel helpless but we need to move to get expenses down so I can stop work soon and look after her. It’s a horrible disease. Thanks for your contribution to this channel. It helps me to not feel so alone