LIVING WITH LEWY BODY DEMENTIA EP.14 | IT'S GETTING ROUGH AND ONE ON ONE CAREGIVER TALK

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[brendalee]

You are a shining example of a loving Christian wife. Blessings and strength to you and your family.

[darrellspicer]

My wife has dementia. She is between stages four and five. She is the sweetest person you could ever meet. My heart hurts for you guys. Hang in there, God will help us through this. I haven’t really broke down and cried yet but I know it’s coming. We’ve been sweethearts for almost sixty years. I was 13 and she was 12 when we started going “steady”. I’m so blessed to have her in my life. She doesn’t deserve this and nether does your husband. Thanks for sharing your life with us. We need to hear how he’s doing. ❤️

[pengle]

You should never feel you have to apologize for the realness of your situation

[cherylmaune]

I hope among the thousands of supportive comments you’ve received for this video, you see this one and find it helpful.
My husband was diagnosed with early onset Alzheimer’s 3 years ago. Since that time, my mantra has become “adapt and pivot”. Something that worked great for us yesterday, no longer works the next day. I realize that the only behavior I can change is my own in how I adapt to the daily changes in my spouse.
Specifically, the uncontrollable spending behavior. One thing you may consider is opening a secondary account that has limited funds in it for Jason. Replace his debit card with the new one and just tell him that you have new cards. He will still have some spending freedom but your main account will be protected.
May God bless you in this journey. Thank you for sharing your story. (And I love your decorating ideas and tutorials)
Merry Christmas!

[nicolestroh]

It feels odd to ‘like’ this video but I do it because my heart goes out to you and I know it helps support your channel. Let’s call it a prayer…hit the like to give a prayer to this couple and others like it. Hugs and prayers. 🥰🙏😘

[paulah]

I lost my husband to LBD in October 2020. He was 63. It was a 5 year walk through the dementia and while very stressful I still say it was a privilege and honor to be my husband's care partner. He eventually forgot who I was but I always knew him and thus that gave me strength to face each day. My true strength came from the Holy Spirit and my faith in Christ. My prayers are with you both, Leslie and Jason.

[patriciaflood]

One of the worst days of my life was when John looked me and I knew he didn’t recognize me anymore. It broke my heart. He not only was my husband of 50 years but my best friend all those years. My heart, love and prayers are here for you and Jason.

[angeladavis]

My husband had Parkinson's and progressed to dementia. It is really hard to see a brilliant man deteriorate to the point of loosing the concept of cause and effect. He never got mean but several months before he passed he quit calling me by name. I never questioned him about it because I didn't want to acknowledge he had forgotten who I was. Right before he died he started calling me by name again. This is my first Christmas without him. I recently had to sign my first birthday card love grandma instead of love grandma and grandpa

[lynngordon]

I lost my husband in August after an 8 year decline in Lewy Body dementia. My physician started monitoring my health and my eldest son actually became very “parental” towards me. My entire focus was on my husband’s declining health and I neglected my own. There were two people directly dealing with dementia. My dear husband and myself. There are so many highs and lows, happiness and depression in living with dementia. Leslie and Jason you two show so much strength and courage in dealing with this disease and I thank you for sharing your journey with us.

[suzieakers]

A wife taking care of her disabled husband is not “mothering” him. She’s being his wife….that “in sickness & in health “ wife. God bless you and strengthen you as you finish this journey🙏🏻❤️🙏🏻

[debrahayes]

My father in law had Lewy Body Dementia and my heart goes out to you both. The service you’re doing for others is commendable, though, because we had no idea at all what this disease was or how it progresses. Your honesty is admirable. Just know that far more viewers are pulling for you and support you than the few (sometimes more vocal unfortunately) judgmental viewers. Merry Christmas! May Christ’s love fill your home this season! ❤️

[karensuek]

My moms hallucinations from LBD were so sad. Yet seemed so believable. She wld sometimes cry because she told me she was starting to not be able to tell if things were real or a hallucination. Broke my heart.

[rogerokelley]

@A Charming Abode  I also have Lewy Body Dementia and no one knows what goes on in our mind. Jason, my Veteran 🇺🇸Brother stay strong!! Yes, and our "admirable caregivers" need so much prayer🙏🏻

[theaross]

My husband, age 66, died of LBD in March. It is a very difficult disease and my heart goes out to you and others dealing with it. Being part of a support group was so helpful. While it didn’t change what we were dealing with, It did help me to put some things in perspective. Hallucinations, accusations, loss of every day skills, loss of safety awareness, movement issues are just some of the challenges. Loosing our loved one while at the same time having them in our life (ambiguous loss) is super painful. Leslie, I’m thankful that God is giving you grace to walk alongside Jason through this difficult journey. God sustained us and I pray He will continue to do so for you as well.

[lineprestkvrn]

As a Nurse who spent many fulltime workyears with caring for pasients with different forms of dementia, I cannot stress hard enough how important it is that You also care for YOU. I have seen too many times how spouses run themselves to the ground trying to be their significant others' 24/7 caregiver. Take time to care for Yourself so that You get rested and stay healthy. That gets more and more important as his health deteriorates. Lots of love from Norway. ♥ 🇧🇻

[andreamanning]

Leslie and Jason, my heart breaks for you both. I am walking alongside my husband of 40 years in this horrible dementia journey. Leslie, I am also an RN who retired to care for my husband. When you talked about how hard it is when you can no longer be in denial because it’s in front of your face 24/7. It’s so hard to lose your life partner when they are still here…all of the responsibilities fall onto the caregiving spouse and it’s overwhelming. Keep leaning on Jesus…He’s got us! ✝️💜

[melaniebrown]

When my dad was alive with Lewy Body Dementia I got a special debit card for him from Chase bank where I transferred money onto it for him and he was only allowed to spend what was on it and if he went over, the charge would be denied. It was so helpful because we were having the same problem with his spending. My prayers go out to you guys during this time. I know how difficult it is 💕

[cindyc]

Unless you've been a caregiver, you have NO idea how difficult it is. God's blessings to you. My heart hurts for both you and Jason. 💜🙏

[Cecilia-fcsg]

My heart breaks for you both. I'm so glad tho that Jason spoke up and said on camera how he felt. It shows the suddenness of how things can change abruptly. And his wishes absolutely come 1st. Leslie, you both have my prayers.

[sharonperkins]

I heard one wife that dealt with this with her husband call it a living grief and I've never forgot that. ❤🙏