Dr. Alan Hakim - 'Autonomic Dysfunction.'

[VelvetVolcano]

So validating when Dr Hakim is talking about patients knowing the difference between anxiety and when their autonomic system is going wrong, I experience that frequently and have also experienced it with anaphylaxis (due to my MCAS) when doctors thought I was "just" having a panic attack but was actually having my first big allergic reaction.

[lightwavz]

Thank you so much! I am Hypermobile type with terrible Dysautonomic symptoms and this is the best explanation I have seen so far, especially for others who don't quite understand the situations I deal with daily.

[Chris_]

Sounds like this Doctor could educate many many GP’s who medically gaslight their patients. I’ve had a journey from hell for nearly 4 years due to undereducated lazy GP’s. I’m now with an autonomic function team. I used to be like an athlete now I nearly faint after a short walk!

[xSwordLilyx]

I just got diagnosed with POTS! This video was helpful and very empathetic and lovely! Stand up, Dr. Hakim!

[tylerslatoff]

This is great, a lot of doctors don’t understand when I’m explaining my EDS, autonomic dysfunction, and P.O.T.S

[jewellevy]

I described some of these symptoms to my cardiologist and he said "uh huh".

[janbrittingham]

I have NMH…. So frustrating but basically try to “warn” my coworkers (nurse) friends, family what may possibly happen( I have warnings sometimes/ sometimes not). It seems it has touched just about every bodily function others take for granted. I have accepted that this is just how I am. Interestingly enough, with reading and lectures such as this, apparently there’s a correlation of childhood trauma experience/
response and autonomic disorders(amongst other things).
I’ve lived much of my life wondering why I am the way I am. So fortunate to see these disorders being discussed & the enlightenment it has provided to caregivers and general public.
I’m living a full life, self aware, but just deal with it daily as best I can which is all anyone can do.

[squishywatchbee]

I have a version of this that causes my blood pressure to go from deadly Hypertensive crisis during the day to dropping so low at night randomly that I go into shock. It has destroyed my kidneys and brain. I also have RSD, Tachycardia, have had multiple strokes, gastroparesis, etc. One thing that I have had for a long time had this weird sleep disorder thing that I have never felt comfortable telling a doctor because I thought they would think I was crazy. After watching this I finally think I understand. If I get overtired from overdoing it during the day and I try to sleep that night, not only does my bp and heart rate drop so low (like Heart rate 34 and bp of 60/40) but often when I try to fall asleep I will get this sensation of falling but then I get this weird shocking sensation that is painful all over my body that seems like something is literally shocking me back awake. Because of this I don't get proper sleep. During a sleep study, my neurologist said it showed that my own brain was shocking me back awake over and over again so I was never going into proper sleep. Has anyone else experienced this? My current doctors have no clue how to treat me and seem to have given up. I wish there was a legit doctor near me in NY that was knowledgeable like this man.

[angelar.]

I’ve been suffering for over a year to the point of relocating south . Not only is my immune and B12 high but I have a swollen esophagus, high level of inflammation to the point of chest burning along with pain, and symptoms above . I would run to er and hospitalized 5 times last year. Still no diagnosis or treatment plan yet . My bp will rise to 240/120 easy and drop 110/65 etc . There is no in between for me at all . This sounds promising to me .

[gamewrit]

I see SSRI (serotonin reuptake inhibitors) on a list in this vid, but what's helped me with spine and rib pain and mobility is an SNRI prescribed for fibromyalgia symptoms, Duloxetine specifically, increasing my norepinephrine. I need to lay down several times a day, and Kineseo Tape on my ankles helps with pain, as well as blood and lymph flow. Compression socks are too painful, but I may try them one more time in a very light compression.

[BlueBirdsSong]

I have Vascular EDS. I have 2 Brain Aneurysms and they found one behind my Heart. I was told the walls are very thin. I also have Heart Disease. I have Panic Attacks in my sleep and throughout the day. I have 3 Strokes. I pass out, like someone flipped a switch. I hate to say this but I have Everything you put up there. My stomach bloats so bad I look very pregnant. My legs become so deformed from water retention ( if you press on my lower legs with a finger or thumb it leaves a big dent that doesn’t go away for at least an hour) from the Heart Disease and High Blood Pressure p. Physical therapy didn’t help me. They told me sorry. Where do I go I can’t walk anymore, I’m in a wheelchair. I also have Severe Hypermobility and Extreme Fatigue. Skin Tearing, My hair is now falling out in clumps. I’m sorry I wrote so much, funny, there is so so much more. I am so scared. I had Brain Surgery on one of my Aneurysms, the other they don’t want to touch. The one behind my heart, the Cardiologist basically told me I was going to die, there is nothing we can do about that one either. I’m defeated and lonely and feel so hopeless. I have no one, friends were afraid watching what is happening to me and slowly drifted away, especially when they saw all the braces I have to wear. Doctors laugh at me, make fun of me.I’m so sorry. I also have had a Retnal Detachment and am left with double vision and Macular problems

[camillaSweden]

Thank u🙏🏻🙏🏻🙏🏻 I get no help in Sweden about my sickness.
I have so many sickness the doc give me here is crazy.
I have so many bad disk in my neck and back. diaper every night because I do not have a feeling in the groin due to so many injuries in the back (Spondylosis, spondilites, sciatica lumbago, disc herniation L4 and L5 plus modic type 2) I have disc herniation c4-c6 . due to my disk that crashed (c4) I got permanent nerve damage in my whole body, that pain is the worst I have been and live with. get loss of sensation in the face in arms
I have chronic Lyme disease. but receives no treatment in Sweden. I have too high white platelets but the doctors just say we do not know why.
I have around 15 diagnos
I even have bad fick sickness.
My sleep is around 2-4 per night this make me really more sick. When I wake up I have sooo mutch pain🤔

[ellendavies]

I'm doomed then as I have at least 5 diagnosed conditions that each can cause fatigue... It's no wonder that my GP said that she doesn't think that I will ever be free of fatigue. I was asked recently by an assessor why I've not been referred to a CF clinic... My response was I didn't know that they existed but more importantly, given my medical history, they probably wouldn't be able to do all that much as the root of the problem wouldn't be all that clear cut. Depressing.

[weeksago]

I’m always hearing of POTS or orthostatic hypotension. I think I have a dysautonomia that is actually fatal and I think I’m the only person in the world with this type of dysautonomia. I think I have pure autonomic failure or something along those lines because I am getting worse and not recovering.

[timcepin]

It ought to be a felony in the USA for any doctor or practitioner, etcetera, to prescribe a drug that causes autonomic dysfunction!

[bjrnlsriedelriedel]

Had braincancer and elevated blood pressure, thus taking bisoprolol since age 12, and im having poop-syncope since then, blacking out on the toilet. Happened only some 20 times since then, but finally I saw this video and go to the doctor again.

[christopherestrada]

I just got diagnosed with this but been feeling this for years. They would just tell me its anxiety anyone have any idea how to help this?

[ruparkyitin]

why autonomic dysfunction occur in these patients??

[Stardg]

is he saying chronic lyme disease exists? My illness started after tick bite and sparked my eds diagnoses 4 years later

[beatz]

How are people with autonomic dysfunction handling the vaccine. ? I have so many concerns