Gastroenterological Disease in Classical Ehlers-Danlos Syndrome (cEDS) 2022 - Dr. Katja Kovacic

Katja Kovacic, MD, is an Associate Professor of Pediatric Gastroenterology at Medical College of Wisconsin. She is originally from Finland and received her MD degree from Dartmouth-Brown Medical School. She completed her residency at Brown Medical School, Rhode Island, and her fellowship in pediatric gastroenterology at Medical College of Wisconsin. She is the director of the Motility and Cyclic Vomiting Syndrome Programs at Children’s Hospital of Wisconsin where she specializes in functional gastrointestinal and motility disorders.

Dr. Kovacic has published numerous articles relating to pediatric functional gastrointestinal disorders including the association with joint hypermobility. She has a strong interest in neuromodulation and is working on developing novel non-invasive neurostimulation therapies for functional gastrointestinal disorders. Her work demonstrating efficacy and safety of auricular neurostimulation for pain-associated functional gastrointestinal disorders was published in The Lancet Gastroenterology and Hepatology. She is working on evaluating different forms of non-invasive neuromodulation therapies in patients with hypermobile EDS as well as detailed characterization of children with EDS.

[alithiadrew]

Excellent information. Very helpful. Thank you!

[annsandlund]

Very interesting. I don't have a diagnosis (yet) but I have EDS, surely, since puberty, because I look back and can track, especially, my stomach- and eating problems. I have tried a ketogenic diet since 2008, which is very soothing, and especially with fasting up to 14 days. If I eat small meals, with protein and fat, I feel normal. I've had problems with my gut being too fast, not vomiting, but diarrea after only an hour after a meal. This caused nutrition deficiencies. I have also worked on my sleep, my calmness, a lot of "zen", and betablockers at a low dose, since my heart races. Other problems are the low intense humming of pain from every part of my body. It's never ever quite. I also react badly to all drugs, including alcohol. During surgery and dental work I haven't been fully anesthetized, so that's been a couple of traumas. But mostly it's been the mistrust from my family and my doctors. I chose to go zen, anyway. I don't have time to be angry, I'm 67 years old. Thanks, dr Katja, for your work.

[madasantos]

Pena q não entendo nada, aqui não Brasil não encontro quem entende desta síndrome e minha filha sofre