More Than Just “Bendy” 🦴 Ehlers Danlos Syndrome #shorts

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Ehlers Danlos syndrome (EDS) is a group of hereditary connective tissue disorders that can cause skin hyperelasticity, hypermobility of joints, atrophic scarring, and fragile blood vessels. #EhlersDanlos syndrome is often diagnosed clinically and confirmed with genetic testing. Identifying the type of EDS to guide management/counseling is important. #EDS has been classified into (6) main types: classical, vascular, hypermobile, arthrochalasis, kyphoscoliotic, and dermatosparaxis (the causative collagen pathology differentiates each type).
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Asymptomatic, nonsyndromic joint hypermobility, Ehlers-Danlos syndrome, and hypermobility spectrum disorders are the most common phenotypes associated with joint hypermobility. Compilations can include chronic pain, dysautonomia, gastrointestinal dysmotility, mast cell activation, and anxiety and phobic states. Many new variants have been identified with the advancements, which tend to be more complex and clinically overlapping. Clinical recognition of EDS variants is important. For instance, it is important to know that the patient has the vascular type, which is associated with arterial rupture and organ perforation, with potentially life-threatening consequences. #ehlersdanlos #hypermobility
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Opinions expressed are solely my own and do not express the views or opinions of my employer. Information in this video is not intended or implied to be a substitute for professional medical advice, diagnosis and/or treatment. All content [images, digital graphics, text, and other information] contained in this video is for general information purposes only and does not replace or substitute for a consultation with a qualified physician or health professional.
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you picked the most extreme grossest cases to show 😭 most of us just out here existing lookin normal just randomly going “ow” bc our ankle popped out for a sec

ilTHfeaa
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I have EDS and YES, IT IS MORE THAN JUST BEING BENDY OR “ DOUBLE JOINTED”. It is a host of chronic conditions that have horrible effects on my body.

shannongreenwell
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Not everyone with EDS is this hypermobile btw

EhlersDanlosZebra
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Yes, i so enjoy waking up every day with 1 or both shoulders dislocated

qtak
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EDS has caused me heart failure, gastroparesis, intestinal failure, multiple abdominal vascular compressions, tethered cord syndrome, POTS, Chiari malformation, and over 40 nerve compressions. But I’ve never had a full dislocation! EDS will present differently in every patient, it is not just joint issues, collagen is in every part of the body, and if it doesn’t work right, nothing else does

motionless_horizon
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I used to be super flexible, but now my arthritis has killed a lot of it, but im still ovely flexible in a lot of my joints .
Im in my 30s and in so much pain.

sarahbell
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My daughter is 37 and just received her diagnosis. Her children show all the signs of having it. I'm sure my son has it too. So now I'm wondering if I really have fibromyalgia, or if I unknowingly have Ehler Danos and passed it on.?

kimberlysandel
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The interesting thing too is the fact that there are actually (last time I checked) 13 different subtypes! The most common is the depicted hyper mobility, though it does range in severity. However, there’s also the “classic” EDS, vascular, and many other types! Hyper mobility is very common, actually! It’s just usually not as severe as it is depicted here!

DawnSpark-
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I have hypermobility syndrome and I just found out, and I can do the finger thing! 😭😭 I have horrible fatigue and joint pain, it’s awful

Meowmeowfruit
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As someone who has this it is very hard and people are like and sometimes it is painful and I do get a lot of injuries from that

Madelynsilvia
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Try to do strength training with this it's like your ripping your own shoulders out of socket throwing a baseball or football as hard as you can is a very bad idea to

markjohnston
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My classmate in CHIROPRACTIC College has this condition.

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