I HAVE AN EXTREMELY RARE ALLERGY TO WATER - Aquagenic Urticaria - the struggle is real

PLEASE SHARE TO RAISE AWARENESS So ever since I was a kid I have struggled with this. Only about 31 people in the world are diagnosed with it - Aquagenic Urticaria.

I have not been diagnosed myself as I never bothered to as it does not appear there is much they can DO for it, but I felt I should at least raise awareness about it. It is not contagious.

Aquagenic Urticaria is a genetic disease causes by a mutation on your chromosomes that causes your histimine reaction to be super high to impurities. Chlorine and flouride being 2 of the major triggers. In this case, water is what sets off the bodys response.

The body will react with rashes, like it would if you say brushed up against an irritant, got chemicals on you, or touched poison ivy.

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Internally it is also an issue - the throat can close up in extreme cases, or it can just cause internal issues. For me my spit glands go into overdrive, trying to purge the impurities. As a kid I could only drink milk or juice - apparently if you mix regular water with juice it does not have the same effect and I could drink that fine. Anything watered down though, or ice cubes, will cause it.

Also Pop - I can only drink one can - anything more and it will start - and with pop I will also get severe internal gas and hiccups that go with the regular bloating that water gives me. Taking baking soda internally as soon as the symptoms start tends to allow me to negate the effect if I catch it on time.

so far swimming in pools does not seem to affect me - perhaps the ph balance is ok - however I have found that if I am soaked from rain, I will be affected by that - same with my own sweat - and if I rub my eyes and anything gets into them they will burn like hell.

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I have to watch it as it can get worse in the future, to the point I could go into histamine shock potentially. I use what is called adya clarity in my water - it evaporates out the flouride and chlorine and reduces all heavy metals in the water to sulfate based which the body can then flush out - this allows me to be able to drink water, proving it is the impurities IN the water, not the water itself that is the issue.

Basically I am more sensitive to bad things than everyone else is - good in that it shows me what to avoid, bad in that its very hard to avoid. It also causes me to produce low platelets, which means if I bleed it takes a really long time for my blood to clot. Fortunately, for now, it is more annoying than life threatening.. but we shall see..

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[dylancorridge]

Wow, watching those hives dissolve every day until they disappear is definitely appeasing, I went with what I commented about and after 20 or so days the urticaria’s history, I simply go'ogled the latest by Shane Zormander and now my skin is as smooth and healthy as it has ever been!

[Jay_Thanki]

Thanks for this, I only started developing this recently and have changed all my hair and soap products, not used a towel to dry. So today I decided to have a shower with just luke warm water and dried myself using a hairdryer and natural evaporation and still same problem so had to look to see what this might be!

[emilykerley]

I get rashes after I take a shower or go in the pool on my chest, arms, and back and I’m not sure if it’s aquatic urticaria..

[MikeKolba]

My wife is actually diagnosed with it also. :( I know the struggle.

[BrUSomania]

Happens to me as well. It is not Aquagenic Urticaria.

[wildcoyote]

damn that sucks, , I thought my allergy to Paprika was bad , coupled with my severe allergy to cannabis