CFS Symptoms: List will shock & surprise you

People usually think of fatigue as the main symptom of CFS or Chronic Fatigue Syndrome and Myalgic Encephalomyelitis (ME/CFS). However, there are many more symptoms.

We detail the list of core CFS symptoms (also known as SEID symptoms) in this video as well as the comorbid conditions of the illness that many people experience.

Even a more detailed list of CFS symptoms is scrolled, much too numerous to discuss in detail, but to give you a great understanding of just how long the list can be.

One of the key concerns with so many symptoms that people experiencing ME/CFS experience is that it leads to some really unhelpful myths which we discuss briefly. It can also be quite dangerous because constantly getting more and more symptoms can lead to behaviours that can be downright dangerous.

If you have other questions about CFS symptoms, please leave a comment below!

#CFSSymptoms #GetYourHealthBack #MECFSRecovery #MECFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome

**MEDICAL DISCLAIMER**: Dan Neuffer, CFS Unravelled or ANS REWIRE do not provide medical advice, and the information available in this video does not offer a diagnosis or medical advice of any kind. The content is opinions and information presented for EDUCATIONAL PURPOSES ONLY, and MUST NOT be used as an alternative to a healthcare professional's diagnosis and treatment. Only a physician or other licensed health-care professional are able to determine the requirement for medical assistance. Please seek the advice of your physician or other licensed healthcare providers if you have any questions regarding a medical condition.

[CFSUnravelled]

What is your most frustrating CFS symptom besides fatigue?

[julianjulian]

22 years for me, it’s a life killer. I’m nearing the end of what I’m willing to tolerate and fight for. There is no end of the suffering that I can see anymore.

[iahelcathartesaura]

Have been through this pretty much all of my life probably from age 12 and now I'm 61. It's like you often almost get punished by confusing, debilitating or randomly changing, scary, repetitive symptoms anytime you try to think or do something.

I just pray people begin to understand it and not punish their loved ones. it's hard enough to survive at all with this, to afford survival, to live in poverty & destroyed potential - moreso to hold the high dream of somehow miraculously managing to afford help to grasp at some relative wellness. To live with this when people don't understand is crushing.

Not trying to break anyone's heart here. We who suffer are already broken, but working to stay positive, alive. I just want anyone close to a person with this to know, understand & to be able to get it.

[Comrade_mommy]

It’s amazing to be validated! I think the best way to describe the fatigue to ppl who don’t have it is to imagine working a grueling 10 hr day of hard labor. You go to bed and knock out and then have to get up and go pee in the middle of the night. But imagine instead you’ve slept 14 hrs and you still feel that way. You just want to go back to bed but you have life to do. Every free moment is spent sleeping. You’re kid goes on vacation with your sisters family for three days and you imagine what you can do with 3 days of freedoms from a 3 yr old. But instead you decide to take a nap. Then you wake up 3 days later when she’s brought home, just as tired. You haven’t eaten. You’ve done nothing but sleep, drink some water and go to the bathroom. It feels like you slept 20mins. That was me at my worst. A new single mom still breastfeeding and you wake up one day but don’t really wake up. And it never goes away. I’m better then I was from changing my diet but it’s still not good enough bc all the joy gets sucked out your life bc your always exhausted. I try and stay positive bc at least I don’t fall asleep on my feet anymore. But I still feel worn down by this illness and the lack of knowledge of the drs I go to. I actually got better the most on my own after giving up on Drs when they kept asking if I thought about seeing a therapist. Also the closest I ever came to punching a dr.

[heatherhartman]

Doctors say everything is depression or anxiety! Mine did but now we are unearthing more positive test results and labs. I thought being COMPLETELY honest to people about my struggles would help. Nope. STILL after a while having to prove yourself gets too irritating. People look at you like your either crazy or your faking it!😢

[totes]

One day 25 years ago it was like i had an on/off switch and someone turned me off and the symptoms hit me like a steam train, i have lived my life as long in illness as i have in health and doctors have been useless.

[roseykaur]

Great video, 4 years ago I got CFS. Changed my world. Yet the people around me still don’t want to understand. Make me feel worse about my self every day. Praying I get better soon. I feel like a zombie.

[traceyhateley]

does anyone get hot and cold chills from one min to another? without a fever. ? its unbearable ...gentle hugs yall x

[leeevans]

I am 66, I have been experiencing most of these symptoms after contracting Mono or a form of Hep after working one summer in 2 different restuarants when I was 19 years old. Had a few Dr.s blow me off, tell me to exercise more, or take a vitiman supplement. Contracted Covid twice during 2020 and ever since that time, I feel as though I 've aged 20 years. My world has turned upside down due to this illness CFS/ME and personal stress. As you stated in this video, people get tired or hearing about what you're feeling and write you off as a hypochondriac. It gets worse everyday, and I have reclused myself bascially from the world. Seeing a new Dr in a few weeks, and will have to go through the entire process of explaining my symptoms again, and really feel like, " what's the point ", they won't believe me anyway. I was diagnosed with Hypothyroidism since the age of 35. Was doing well for several years until divorce stress, raising a child without financial or emotional support from his father, and of course Covid in 2020. This is the most detailed video I've seen, and reinforces to me that I am not lossing my mind or crazy. Thank you for your work.

[katalinhorvath]

I am no doctor, but have ME/CFS. Since I take Low Dose Naltrexone (LDN) I have deep, refresshing sleep. This is the first time I sleep well sine diagnosis 3 years ago.

[sharonclarke]

I started 43 years ago with symptoms that were finally diagnosed as Fibromyalgia. I had these symptoms for 4 years off and on again but were not bad enough to stop me. I then decided to return to university a 4 hour drive away when I had to board with different people in Brandon, MB and leave my 2 kids with my husband during the week. Finally, long story short, I ended up in a wheelchair, lost my ability to sit up and teach so I had to go on LTD. That was 39 years ago. This summer, I finally got diagnosed with ME/fibro or ME/CFS and I still fight it, at almost 75 years of age. Not being believed by family and friends, losing my marriage and my career have been extremely difficult to deal with. I never know from one minute to the next how I am going to feel or be able to function and it still drives me crazy. One of my GPs actually said he had good reason to be a lousy doctor to me because, 'there is so much wrong with you.' I wish I could tell him now about this diagnosis just to get a bit of respect from him.

[nitac.]

What I've noticed is that the doctors automatically say your depressed well heck yes I am and it's because I'm so exhausted. Situational depression. Depression medicine is not going to help at all. Why? Because it's situational depression unless my situation changes depression medicine is not going to help! Wish that doctors would understand that!

[treefarm]

I’ve been on this CFS roller coaster since summer of 1990. Came down with “the flu from hell”. Severest symptoms aren’t as bad, but I’m no where near living what most would consider a normal life.
Symptom treatment is all the medical treatment one can hope for from the medical community. It helps but there’s no “magic pill”.
It can wear you down. Support groups can help. Back in 1990, I felt like I must’ve been the first person to ever have contracted it. But suddenly, I found I wasn’t alone when watching a town hall meeting on local television. People like me were there. Telling “our story”. The relief of hearing others stories made me feel so much less alone in this.
Thank God the stigma has lifted a lot since then, but there’s a long way to go, too.

[World_of_Art]

Since 2018, and I finally got the diagnoses of CFS/ME and Fibromyalgia. They’ve been testing and testing for years. Finally met a rheumatologist and neurologist that listened. Trying more to be better. I would love to even get back 50% to what I used to be.

[quaqua]

😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 This is my life. My soul is so sad. God have mercy on me and anyone who is affected by these horrible symptoms. 14 years of this and getting worse. Thank you sir for this video.

[pugglepooch]

Doctors and other medical professionals need to be educated on this condition as they simply don't understand it. Many dismiss it which is damaging. I've had comments like.. who on earth told you that and then rubbish medical professionals diagnosis of thus debilitating condition. Others tell you to just exercise, take vitamins and eat this that or the other, sharing their thoughts on what you need to do as if we haven't already tried all these things. People are clueless but there is NO awareness and very little understanding yet we are seeing more and more people suffering from this.

[katalinhorvath]

Hello all sufferers of ME/CFS. I wish you all the best!

[golfball]

I feel like I'm suffering from this because of covid 19. I get chills, sore throat, mild fever everyday. It's been several months. I hope for the best for anyone who's affected by this

[sloshypath]

Wish I could show this to everyone that keeps saying they think they're fatigued. No, youre just tired, you have NO IDEA unless you actually have it.

[Bubblesandcandyfloss]

My aunt had CFS since the 80s. She passed in 2018. I wished I had found this channel for her. Thank you for these videos.