Medically Unexplained Symptoms (MUS) conference

[snowleopard]

Many of the views shared in this video reflect an echo chamber of people who have not bothered to listen to the views of patients in general.

[fionafrench]

I agree with the other comments. Having suffered from MUS for 40 years, I now know that most of my symptoms were side effects of a commonly prescribed drug. I know this because I now no longer require the drug. I was prescribed antidepressants for 40 years because of these side effects and they were completely ineffective. Unfortunately the process of benzodiazepine withdrawal has left me in an even worse state and my recent and current symptoms are once again said to be unexplained when in fact they are the direct result of withdrawal. I also suffered from IBS type symptoms for 10 years which could not be explained until I visited a chiropractor and within six weeks I was cured and symptoms never returned. Iatrogenic harm is probably responsible for many MUPS but this sort of harm is rarely recognised. As part of the online prescribed harm community I meet many people suffering from "MUS" which are in fact drug side effects or withdrawal symptoms. It would be far better to identify the cause of MUPS instead of spending money on therapies.

[recoveryandrenewal]

The most important question to ask patients who are suffering 'medically unexplained symptoms' - including all the various 'functional disorders', is about their medications history. We are seeing many many patients who are suffering terrible problems with nervous system chaos after taking common medicines 'as prescribed' - often initially taken for 'normal' symptoms of anxiety and depression - and sometimes over many years. Please see responses to several 2017 articles in BJGP and BMJ about 'Medically Unexplained Symptoms'. Such as:

[ninapapadopoulos]

Your comments certainly reflect the difficulty we all face in dealing with these debilitating long term conditions. CBT is not the only option for getting help and for some people it has worked effectively.  However we are all trying to find innovative new ways of approaching the pain and suffering experienced when these symptoms become overbearing and unmanageable. If you are interested please look at our website, www.mus.elft.uk  which includes information about other approaches to working with MUS.

[pollymoyer]

Couldn't watch the whole video because those words moving across the screen hiked MdDS symptoms for me.  Thanks - not.  Meanwhile would it be useful to demonstrate that you are up to speed with current thinking from GPs re 'MUS?  For example, please see the pinned tweet @DrEReinhold re her letter 'MUS to DEN' which was the Editor's choice in the BJoGP back in April.  The responses are interesting, as are her replies.