Genetic test uncovers Florida girl's extremely rare disorder

Tessa Bruner is the only child in Florida suffering from CLN2, also known as Batten Disease. It's an extremely rare nervous system disorder.

Batten Disease can strip kids of their motor skills and cognitive processing. It's so rare there's only about 300 cases ever recorded in history.

The condition comes with a life expectancy of just eight to 10 years.

[janececelia]

Genetic testing should be offered to all and it should be free. I hope your sweet girl improves in health. Best wishes from afar.

[sandraa.lelacheur]

Bless her beautiful heart.
Praying for extremely good
care and proper treatment.
Sending love and prayers.
😇 🙏♥️🙏 😇
PS she’s a very beautiful child.

[debbiejudd]

My heart's broken for you. Doctors can work miracles these days. Praying for such a sweet little princess. God does listen. Love and hope from Canada.

[KayyDollsGalley]

4 years later & this my first time watching this & I pray she’s doing fine 🙏🏽 .

[franzjosephaque]

Rare disorders are not inherited from the parents.

[tasha]

Lord Jesus, please Bless her, and please heal her

[brandiblake]

Bless her, Lord. Praying for all! Thank God for the progression of modern medicine. Keep the faith! 🙏❤

[anaespinal]

Don't lose hope God hes always there Just have faith in God

[TyrekeCorrea]

That had more to do with putting the kid through a hard time than deriving truth out of it.

[snowy]

i think i can find a cure, if people gave me the chance to show that i can without getting me to do all the work just to find out I'm too late to save them