Vascular Ehlers Danlos: An Overview (Virtual Medical Symposium Series - 3/18/19)

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Sherene Shalhub, MD, MPH, University of Washington, and Shaine Morris, MD, MPH,Texas Children’s Hospital, provide an overview of vascular Ehlers Danlos syndrome. In this webinar, they discuss the genetic cause, the most common features, monitoring, and treatments.

  1. The Marfan Foundation
  2. veds
  3. vascular ehlers danlos
  4. genetic aortic conditions
  5. rare disease
  6. Texas Children's Hospital
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Комментарии
Автор

Thanks so very much for this upload. 42:41 just the comments on the tendency towards the thin side therefore not perhaps a candidate for weight loss surgery. ❤ Thankyou
My gastroenterologist unfortunately didn’t know this and said I could not have EDS because I had weight loss. Unfortunately he also didn’t think my caecum lying lower than the normal position was of importance, although it can be found in literature as a rare manifestation of EDS to have any abdominal organs lying lower than normal. I truly hope that more awareness is exponentially growing with every view of EDS content.
❤

melissafarrugia
Автор

The information from these symposiums is so greatly appreciated, thank you very much ❤

melissafarrugia
Автор

Is it normal for your vains to burn if you have vascular EDS?

nw