Huntington’s Disease | Generations of Care and Search for a Cure

The Johns Hopkins Huntington’s Disease Center for Excellence is honored to have served multiple generation of families for the past forty years in HD history. Join neurologist Jee Bang, Clinical Director of Johns Hopkins Huntington Disease Center of Excellence, and tune in to the recorded Facebook live session to learn more about Huntington’s Disease and efforts underway for families affected by the disease now and in the future. #HuntingtonsDisease #JohnsHopkins

[Lucarinho]

I pray every day that our great scientist really find a way to delay the onset of HD or possibly even a cure. I'm 28 and at risk of inheriting the gene from my father. As of now I'm not going to to a predictive test.

[modikiaisikitaisi]

Two people in my family have it. One is in her last stage of life and one is just beginning. Painful for the whole family. Finding a cure will be the best thing to happen.

[robertmurphy]

Now that abortion is illegal in half the states, are IVF clinics in these states that help HD positive parents have HD-free children at risk of shut down?

[Sara-wbbs]

If HD is a clumpy mess of protein in the brain... would it be crazy to think that maybe there is an Enzyme that could cross the Blood-Brain barrier and dissolve the protein? Digestive enzymes do it in the stomach... why not an enzyme that could do the same thing in the brain? I checked this out and there is an enzyme that does cross the Blood-brain barrier. I could be wrong, but It may be as simple as that.

[sallykim]

my sister's dr. thinks that she has HD, and when I see her symptoms it does look like HD.
But if we have no family history of HD, Parkinds, Alzheimer's, or any similar disease in the family how rare it is that she is the patient 0.
No HD for both my parents, they are 75 years old now.
and both their parents had no HD and lived upto into their 80's except my mom's father who disappeared during the war; but him and my grandma had 4 kids, and they had 8 kids (my cousins) also they had many kids who has no HD or anything similar.
Also, my father's side, he has 5 other siblings no HD nor similar disease, they had many kids (my cousins) and they also had many kids. no HD or similar disease found yet.
my sister is 42 and I am 44 years old.
we are waiting to get blood tested for HD for my sister. but it is taking a long time. so I am really curious.
I know nothing is impossible, but how rare can this be?

[MoizKhan-upsx]

My grandfather died in Hd, ,grandfather's sisters died in Hd, , now my father Hd deases, and father sister Hd, Hd running in our all family. Plz we need help, , , moiz khan from Pakistan