CROHN'S DISEASE I MY STORY OF LIVING WITH INFLAMMATORY BOWEL DISEASE (IBD) I THE GRUMBLING GUT

MY CROHN'S DISEASE STORY
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Life with Crohn's disease can be tough and so many people have asked me what is it like living with Crohn's disease. Well allow me to share my Crohn's disease story with you so you can see what it is like living with an invisible disability. I first started my Crohn's disease blog as a form of Crohn's disease and ulcerative colitis awareness to help me overcome the stigma of embarrassment.
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Since then it has allowed me to show people what does Crohn's disease look like on someone and to try and explain what does Crohn's disease feel like.
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FIND ME HERE:

Disclaimer: Any information given here is intended for educational purposes only. It is not intended to replace the services of trained healthcare professionals or be a substitute for medical advice. Medical knowledge and practical elements are constantly changing and while the maximum effort has been made to provide reliable data and information, the author (or publisher) cannot assume responsibility for the validity of all materials or the consequences of their use. You are advised to seek medical advice from your healthcare professional for any concerns you may have regarding your health or that of another individual, in particular matters that may require immediate diagnosis and treatment. Information provided herein is referenced accordingly.

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#thegrumblinggut #inflammatoryboweldisease #ibd #crohnsdisease #ulcerativecolits #crohns #colitis #crohnscolitis

[TheGrumblingGut]

Thank you for watching! Do you have any questions? Let me know in the comments below and don't forget to subscribe to my channel, like, comment and share this video if you found it useful! You can find more IBD resources by using the links in the description box!

[mariekieniksman]

Invisible illnesses are the worst to have because you can’t prove to anyone (doctors included) of the symptoms you’re experiencing! We push through, we find ways of avoiding triggers, and ultimately we pretend we’re ‘just fine’.... Kudos to you for putting yourself & your story out there so others can feel less isolated & misunderstood/disbelieved!

[amgr]

You deserve a lot more views and subscribers.

[catherinivargas]

Thank you so much for sharing your story ive been sick for my stomach for the last 3 years always off and on. Telling me its “stress” and that I’m not eating the proper food but recently they just told me I might have Crohns but due to this virus situation right now I still haven’t been able to see my new GI specialists. I feel like being “sick from your stomach” everyone just says it’s “normal” but only people who are actually suffering from that pain can tell its different and very uncomfortable. I’m so glad I found your page on Instagram! Will for sure be looking at more of your videos

[jenauseth]

Thank you for sharing your story and all the info!! It helps knowing others out there are dealing with the same things...especially when I don't really know anyone in "real life" that understands.

[teresagould]

I love 💕 your videos honey. I’m 47 and been suffering for the last 7 years and I’m only just now getting the right tests and being treated seriously for Crohn’s disease. Even loosing 2 1/2 stone in 7 months has them stumped. But I’ll get there and starting the SCD diet tomorrow. Thank you for sharing your story and helping so many of us. Keep well honey. Xx

[WhispersRoCloset]

This happened to my 9 year old. She has has severe stomach pains for years and they told me it was lack of fiber so now we are finally seeing a specialist. Even when she goes to the restroom she struggles and is in so much pain. We go on Wednesday ❤️. Everything your saying in this video is my daughter. I will update you next week. Great video

[karenkimberley]

Thanks for sharing your story I was only diagnosed in May I took unwell last October lost so much weight and I couldn’t go to the toilet my GP got my colonoscopy very quickly my crohns is terminal ileum I have no blood loss just right sided pain just terrible nausea and terrible fatigue I was on budesonide didn’t work Azathioprine made me very ill so I don’t know my next medication am taking ensure not bad tasting but there is so much to take in and get your head around it’s such a complex illness I’d love to read what people eat in a day and how to get weight on when I was first diagnosed people said it could be worse 😟which I understand but the only way I can describe crohns is like having food poisoning everyday and the medication is so scary sorry for rambling I look forward to your next video

[paddas]

Major Respect. I can
totally relate to your story and in particular your comments from other’s about you not looking unwell 😱
Thanks for sharing and best regards 👍

[Evelleyes]

This is a great video. I'm glad you're doing these. When I get pain I get really food phobic as well. I have fast days when I'm at my worst to rest my bowel. I obviously keep my fluids up on them days. It's awful atm, I'm off all meds atm as I wait for surgery. Which is taking its toll. So hearing others stories really help settle me alot. Your page great and really helpful, thanks x

[malakaithedemigod]

I have crohns! Had it since 2015. Had a resection surgery because there were holes in my colon on the right side. So my surgeon had to remove that section and some small intestine. I could have died if I didn’t go to the hospital the same day I was picked up from school (high school 11th grade) nowadays I plateau on my weight at 120-125lbs, and deal with nausea on my bad days. I’m on disability but can live normally but the symptoms are inconsistent. Fatigue, dehydration and malnutrition are my red flags, but lately I’ve been managing. When I have a flare up, I feel drained and go to the bathroom a lot. This year has been really tame, which is great. I take humira every 14 days to cope, and promethazine for the nausea on certain days, anxiety doesn’t help at all, makes it worse. But I’m doing ok now, just maintaining. I’m 25yrs old. I was 17 when I was diagnosed.

[Stomanner]

Nicely narrated video and I can definitely relate to parts of your journey, similarly to my own.
I've also tried the list of medications, the liquid diet and reintroducing certain foods for reactions - this seems like the normal route for doctors to try, but unfortunately didn't work for me.
My answer to remission has been an ileostomy and I've not looked back to the bad times for almost a decade now.
Have great success with your channel and finding the answer to relief too.

[benkolczaski]

Nice video and thanks for sharing. I can highly relate to this video :)

[amgr]

You are extremely brave. May Allah bless you with complete health and happiness. Will you please share what were your symptoms like 6 to 12 months before you initially started feeling mild pain in your tummy. And how many times you were going to toilets in a day. Thanks for sharing this very personal video.

[DianaPalm]

Great video Grumbling Gut...this is a growing problem and is so restrictive for people. I wonder if it is as common in other countries as it is in the US.

[sarah.]

The heavy bleeding for me ended up the "norm" i ended up realising that this was ibd, so i wasnt shocked when i was diagnosed.

[staceycoary]

Hi there from a fellow Crohns sufferer and NHS AHP 👋🏽 thank you for the videos they are so informative. I can definitely relate to your story re: trying to get a diagnosis. If you don’t mind can I ask did you choose to stay on Aza and Pestana after your surgeries? and if so why did you not switch to something else? I’m asking as I was on that combo too. Due to start stelera next month. I’m 3 weeks post surgery. Thank you

[julianmoody]

Ain't GPS special yes thay told me it was in my head was most deff not in my gutt lol

[ehtisham]

Omg- please get rid of that horrible background music