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What is Childhood Dementia? Childhood Dementia explained.
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An introduction to childhood dementia. This information video explains the causes, symptoms, impacts, and prevalence of childhood dementia. Childhood Dementia Initiative developed this resource with funding from the Australian Government.
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‘Childhood’ and ‘dementia’ Two words that shouldn’t go together. But sadly, they do.
Sadder still is that on average, childhood dementia takes a life every 11 minutes. It also takes away the future.
So, what is childhood dementia?
Childhood dementia results from progressive brain damage caused by over 70 genetic conditions.
Just like adults with dementia, children with dementia experience memory loss and confusion.
They have difficulty concentrating, understanding, learning and communicating,
and they can experience severely disturbed sleep and personality changes too.
They can also have behavioural and emotional issues like hyperactivity, anxiety and fear.
Each child’s experience with dementia is unique. For some, symptoms can appear when they are babies and progress quickly. While for others, they may not appear until they are teenagers.
Across all childhood dementia, however, there is one common feature: childhood dementia is progressive.
This means that over months, years or decades, children progressively lose skills they may have already developed like the ability to write, read, talk, walk and play. Over time, their brains also lose the ability to keep the body functioning properly and, eventually, to keep the body alive.
There has been so little investment and, therefore, limited research into treating childhood dementia. that most children die before turning 18.
Families impacted by childhood dementia experience many losses. Most significantly, the child loses their future. They lose the opportunity to become an adult and to live their life
So, how common is childhood dementia?
One in 2,800 babies are born with a condition that causes childhood dementia.
It’s estimated that 700,000 children and young people globally are living with childhood dementia today.
What can be done? Well, the first step is happening right now. By making people aware of childhood dementia, we can improve diagnosis, care, research and quality of life for children and young people with dementia around the world.
Together we can make change.
Follow us at:
‘Childhood’ and ‘dementia’ Two words that shouldn’t go together. But sadly, they do.
Sadder still is that on average, childhood dementia takes a life every 11 minutes. It also takes away the future.
So, what is childhood dementia?
Childhood dementia results from progressive brain damage caused by over 70 genetic conditions.
Just like adults with dementia, children with dementia experience memory loss and confusion.
They have difficulty concentrating, understanding, learning and communicating,
and they can experience severely disturbed sleep and personality changes too.
They can also have behavioural and emotional issues like hyperactivity, anxiety and fear.
Each child’s experience with dementia is unique. For some, symptoms can appear when they are babies and progress quickly. While for others, they may not appear until they are teenagers.
Across all childhood dementia, however, there is one common feature: childhood dementia is progressive.
This means that over months, years or decades, children progressively lose skills they may have already developed like the ability to write, read, talk, walk and play. Over time, their brains also lose the ability to keep the body functioning properly and, eventually, to keep the body alive.
There has been so little investment and, therefore, limited research into treating childhood dementia. that most children die before turning 18.
Families impacted by childhood dementia experience many losses. Most significantly, the child loses their future. They lose the opportunity to become an adult and to live their life
So, how common is childhood dementia?
One in 2,800 babies are born with a condition that causes childhood dementia.
It’s estimated that 700,000 children and young people globally are living with childhood dementia today.
What can be done? Well, the first step is happening right now. By making people aware of childhood dementia, we can improve diagnosis, care, research and quality of life for children and young people with dementia around the world.
Together we can make change.
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