Teen Battling Sanfilippo Syndrome, aka ‘Childhood Alzheimer's’

Sixteen-year-old Logan Pacl from Washington is living with Sanfilippo syndrome. This rare neurodegenerative disorder, caused by a gene defect, affects the brain and spinal cord. Children lose skills, suffer seizures and movement disorders and experience pain, according to the Cure Sanfilippo Foundation. The disease, also referred to as “childhood Alzheimer’s” or “childhood dementia,” is terminal. Noelle Pacl, Logan’s mother, shared his story with Inside Edition Digital’s Andrea Swindall.

[Vinsternator]

The fact she goes as far as to acknowledge that her other kid's lives shouldn't revolve around their brothers' disability just goes to show how truly amazing and empathetic she is

[yas-per]

The fact his mother is not only empathetic towards her other kids’ needs, but also Logan’s right to privacy is amazing. We need more people like her.

[threeRedDots]

Logan's lucky to have such a great mother. You can tell she really cares about her son's wellbeing.
Their family is lucky to have him, too. He seems like a happy little guy.

[bodhi-swayze]

What a cruel disease, the fact that Logan has a twin must’ve made his condition so much more obvious to his poor family…😢❤

[carolgrainger]

My beautiful niece had this disease, we lost her 2 days before her 17th birthday, . That was 31 years ago & we still miss & love her we always will.

[JHarrisJessop]

Noelle turned a negative into a positive. She is now able to help tons of other families going through the same thing. She’s a blessing to those online and Logan

[alexpalette]

I am in awe of this mother, what a human being.

[georgeann]

Logan was given to the right parents. His mom is an angel. This really breaks my heart. He is just precious. Logan is very loved. That's definitely one thing he has by the millions.

[lissandrafreljord]

Bless this mother. She is full of love and strength.

[Lexielouwho]

Mad respect to this mama for recognizing filming her son in his most vulnerable moments and sharing them isn't right. Too many family youtubers disregard their childrens privacy. So 👏👏👏👏 to this mama. I pray your son has many years to come.

[MisterAviation]

One of my classmates and his brother had this. After graduating high school and learning the fact that Sanfilippo syndrome is terminal. I looked him up as I know that there is a website about him and his brother, and learned he had passed away. I was really sad learning about one of my classmates passing away. RIP Ryan Victor Kapes 2004-2021

[katieann]

Having a child with a disability teaches you enormous patience and strength. I would do no less if it were my son. Keep staying awesome mom!

[kdalessandro]

He has the best mother he could possibly have. I wish them all the very best.

[DeadSezSo]

I just can't imagine having a twin brother with this condition, growing older and maturing while your twin brother seemingly stays younger than you. I'm sure he loves his brother and tries to be the best big brother he can be to the brother that should be walking in lock step through life with him. This family is in my thoughts and I can only hope that they can enjoy whatever time they have left with him and that they can get through this as a family

[Mikeyfromtheblock]

this kid is lucky to have a good family. I've seen kids in other countries with disabilities just become marginalized by society.

[mellando]

Noelle is such an inspiration. She is so easy to listen to and so informative in the way she delivers information on this cruel disease. Logan is blessed with the most amazing family and I wish every one of them happiness. ❤

[christycipriano]

Look at those big, beautiful, blue eyes! This made me cry, seeing all these wonderful loving souls. What an amazing family💓

[poohbear]

She’s truly a blessing for that brave young man. What a heart touching story. ❤️

[danielfuchsmusic]

This video brought me to tears. It’s so beautiful to see a child who go’s through so much have parents and siblings who respect and love him!

[fodetoure]

Incredible love and care from these parents ❤️