Photosensitive Epilepsy

In this video we'll discuss photosensitive epilepsy. The medical and research literature is extensive and confusing but that's interlinked to the complexity of visual processing. Some seizures will arise and spread directly out of the visual pathways but some may ride along those networks. We'll also talk about the concepts behind mitigation of risk for those affected. Above all, stay safe and see you in the next video. (I apologise for the audio clipping and overall poor sound quality - the joys of OBS)

[whereisthehall]

OUTSTANDING LECTURES.

I have been watching his lectures for several months and I appreciate his simplicity and succinctness of presentations. They are delightful to watch and learn. His lectures cover the most needed neurology and clinical neurophysiology topics, especially of day-to-day practice with command on neurology knowledge. I am very thankful to him for making these lectures available to YouTube viewers.

I truly recommend these lectures for medical students to clinical neurologists who are interested to learn or review the topics.

[frankiekoala]

This is the first of your videos I have seen.
I have only watched half of this video, and I have already learned more about my condition than I have learned from any doctor since my injury.
Thank you.

[Nemenemenes]

Hi, I didn't see a medical expert yet, but doing some research about what my issue could be.

My issue was first triggered at the age of 20, via being exposed to low FPS (Frames Per Second) in a computer game (on a CRT monitor) I played for long hours. After 3-4 hours playing session at midnight, I started to feel really bad and shortly after I entered into a triggered state with incredible headache and pain at the right back side of my head-upper neck. It was the first time I felt like I was literally dying and that feeling kept getting worse with irregular palpitations. The back right side of my head, behind the right ear, felt like it was tearing apart by a blunt knife. It was the worst night of my life.

I was then taken to ER, they gave me some serums, painkillers. I visited a range of doctors of different branches the following days including neurology but none said anything. At that time, I did not think the low FPS was the triggerer, all I thought was I got my fingers/arms and neck tired so much by playing computer games for long hours. That was my focus.

Next couple of weeks, I had great pain and many sleepless nights. My pain/issue never passed, but seemed to get better in time, though, sometimes getting close to the trigger point, causing really bad days/nights. Since then, I paid great attention to use computers with moderation to avoid having a similar attack/seizure. And I kept playing games with no major issues.

Then, 4 years ago, at the age of 35, I had the same attack/seizure due to playing the very same game with low FPS, at a time when I felt good, and had still no idea my first seizure was caused not due to overplaying but due to low FPS visuals. It was the second worst night of my life and the incredible pain continued for weeks causing sleepless nights. Saw more doctors, did tests, found nothing.

Then I realized that it was caused by looking at low FPS visuals in that game. Since the 2nd incident, I can no longer look at low FPS games/videos/TV (for games, above 60 FPS causes no issues and for films, above 30 FPS causes no issues), flickering lights, faulty fluorescent lights, fast flashing police/alarm lights, CRT TVs/monitors with low refresh rates, mobile phone recorded low quality-fast moving videos, fast moving images/GIFs, and also some non-artificial light related things, such as sunlight reflecting on waves, some birds flapping their wings too fast, blurry printed images or fabric textures. Some are mildly bad but some are so bad (I guess it has to do with their frequency) that if I look at them even just a second, they immediately make me extremely bad, causing incredible pain at the right back side of my head, and that pain lasts for days. I always have pain in that region to an extent but when I am exposed to the above mentioned things, it just amplifies and gives a feeling that I'm getting close to the trigger point. So, I try to do my best to avoid the triggerers as best as I can, but in this age where there are screens and lights everywhere, it really is difficult.

Since I found no answers in doctors, I kept researching and finally found about photosensitive epilepsy just yesterday. Don't know if my issue is that but I intend to hopefully find an expert in this field and get an examination very soon. Thank you very much for the informative video.

[elizabethslover]

One thing I’m still not understanding after your video and doing a lot of research is what these seizures look like to others witnessing it happening

[bernadettedoherty]

Simon I want to say thank you your video I was recently diagnosed where are you located I see my epilepsy doctor in July I have such a better understanding now any new videos on topic would be greatly appreciated 😊

[Capachinooooo]

What is the treatment for this type of seizures?Can you suggest anything?

[loggat]

The sound is kinda bad, but the video is worth it. Thanks for making this it helped me a lot.

[teamfirst]

Hello hope you are well. What type of tv I should purchase to avoid epilepsy in the brain? How many Hz should the tv have to avoid epilepsy? I am gaming on a ps5 and I feel electricity in my brain after playing and my eyes are more red even for short periods of gaming. Perhaps some glasses would help? Please advise me. Thank you.

[ldolan]

Your knowledge should be reaching more widely. Speak confidentiality! I wish I knew this sooner 😪

[محمدالمفضي-دج]

What is the different between photo-convulsive, photo-paroxysmal, photosensitive from EEG point of view ?

[khy]

Hello I know this video is a little dated for my response but if you see this what are your thoughts on the Zeiss lenses?