Living with Congenital Heart Disease

A snapshot of the lived experience of patients with congenital heart disease, with a particular focus on the journey of patients born with a single ventricle who have since had the Fontan procedure.

About these videos

The idea of heart failure in children is a difficult subject, but one that needs to be in the public consciousness. The purpose of these videos is to increase awareness of childhood heart disease and heart failure in children, shared through the eyes of the patient and their family members.

These personal stories highlight the lifelong impact these conditions have on patients and their families. It is our hope that these honest, engaging, relatable and hopeful videos will resonate with other patients and families going through their own journeys, whilst also stimulating discussion in the wider community.

Finally, the videos also touch on the hope offered by the research being performed at the Melbourne Children’s Campus, which has the potential to transform the lives of future children.