When A Child Has Congenital Heart Disease | TODAY

Each year, 40,000 children are born with some form of congenital heart disease. In a world of tubes and oxygen, surgeries and beeping monitors, parents and medical teams battle to keep their tiny hearts beating against the odds – but it’s the children themselves who are the true heroes.

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When A Child Has Congenital Heart Disease | TODAY

[gkrt]

I'm here after watching Phil and Alex having their baby diagnosed with this, God is with us all, I LOVE YOU ALL MY BROTHERS AND SISTERS IN THIS WORLD <3

[_Bubblefly]

I cried watching this, i have a congenital heart disease i couldn't imagine how many gallons of tears shed and anxiety had my parents went through. I love you mommy and daddy. 💕

[seantetpon]

CHD Dad here. Our son is now 15 and we are Blessed by God to have him with us!

[LilMama]

I don’t know really anything about congenital heart disease.. but recently these amazing youtubers I watch (Phil & Alex) went for a screening & found out their baby girl will have congenital heart disease. I know there’s nothing I can say or do to fix this or make them feel all better but maybe I can educate myself & tell others what I’ve learnt so there’s a bigger awareness. I have to ask that whatever religion you believe in, please pray to your god about this family. They have a journey ahead of them and could use every single prayer.

[kathyabel]

I was born with a bi-cuspid aortic valve. At 59 years old I had successful repair surgery. I pray every day for heart patients and their families as well as the medical community. Thank you God for blessing me with more time on your beautiful earth.

[realtimeparenting]

As a heart mama to a 10 year old with Tetralogy, I can say this is spot on. Thank you, Today show for a very real, honest story. And to all the parents and the kids, my heart goes out to you too. This is indeed our story of strength and love.

[futuredeadcamper]

My son has went through two open heart surgeries, and numerous heart caths and I am so thankful he will be two years old next month. Nothing ever prepared me for what being a heart parent meant. About how it’s the scariest but most rewarding job in the world. This video touched my heart. And I thank the team who filmed it and put it out there for the world to see a brief few moment in the life of a heart parent.

[jazzyfreshdiane]

my daughter was born in 2018 with congenital heart disease she had heart surgery her second day of life she stayed in the hospital for almost 2 months and also had a feeding tube inserted she is now 1yr old and doing fine and eating everything by mouth it’s stressful even if she is okay and doing great i still have my worries thank god and her team of doctors and nurses who took care and helped my baby and may god bless those family’s who have gone through this or are barely going through this at the moment. i send you prayers hugs and nothing but love ❤️

[mariemottaz]

I am a parent of a CHD child. He will be celebrating his 29th Birthday next month!! This video is so spot on with what we all have endured. Our son has had 7 open heart surgeries and with each one we worry have we "used up" our blessings. But he has thrived into a beautiful man who will be getting married this year!

[amandatabbert]

Thank you Zach and Lexi for sharing your story...our story...with the world. It was our pleasure to have our son be part of this touching and brilliant video about CHD.

[hannahroberts]

I weep every time I watch this, my beautiful 5 month old daughter has had 2 open heart surgeries with more ahead, and this video touches on so many raw and real emotions. Thank you.

[BethFlower]

I was born with a severe CoA that required life saving surgery as an infant. I’m 28 and doing well.

[nesstrujillo]

CHD mama here, so grateful that y'all are helping spread awareness. 💓💓💓💓

[ashleyrussell]

Thank you so much for this video. I am a mother to a chd child and the ups and downs you face everyday is hard my chd child is 18 months old and doing really good she has her 4th surgery in the summer pray for my chd family. And to all Chd families you are all in my prayers. I am so blessed to be a mother to a beautiful chd warrior

[PinkHawk]

Thank you Today Show! I am a 27 year old with CHD. I have a CHD known as Tetralogy Of Fallot Absent Pulmonary Valve. I have had two open heart surgeries. Thanks to my congenital heart team at the Helen B. Taussig Congenital Heart Center at the Johns Hopkins Children's Center I am alive. I am 1 in 100! I am a CHD warrior! Thank you for bringing awareness to CHD. I have had a lot of issues over the last couple of years and I have now been on heart function medication for a little over 2 years. Since I have had my heart function medication my heart function has been better. I am so lucky to have a great team who has fought to keep me alive. I am grateful to be alive. CHD is a tough battle, but I keep fighting every day. Thank you so much for the awareness!

[bryanschwartz]

My daughter had heart surgery at 3 weeks old to repair multiple congenital defects. Thank you for posting things that let us not feel s alone.

[catieq]

I have CHD and have a pacemaker. I’ve had 14 surgeries total and defied the odds. I’m now 29 and am so grateful for my cardiac team♥️

[AideGDiaz]

Watching this right after getting the call with my babies surgery appointment. In 2 weeks. He's very strong

[Saleenknight]

My son is here at Motts right now! And he has Hypoplastic Right heart and after he was born some how some way his pulmonary valve started working when it was not before. The did a procedure on him a few days ago that is trying to grow the right side of his heart! All the parts of the heart are there and working! And the doctors can’t explain how this happened. Because during the pregnancy and the day he was born he had pulmonary atresia. And a few days later the valve had grew to full size and started working. He’s a medical miracle and has great recovered from his surgery! The plan is to grow the right ventricle And he could end up with a two ventricle heart, Atleast a 1.5 ventricle heart! This changes his whole life and he could have a normal heart after all!! Thank you Motts surgery and nursing team! And thank you for the thoughts and prayers! Miracles do happen, he is proof! We will be going home in a few short weeks!!🙏👼🏻❤️

[Luccierick]

Some of you parents and patients over here are so lucky, I am a mother and  have just lost my son few weeks ago to CHD, he was about 6 months. I am missing him so much...oh God I cry everyday ...