Living with an Unknown Genetic Syndrome (The Only Discovered Case)

Evely lives with an unknown genetic condition. At four years old she is unable to walk or talk. The future is uncertain, but Evely’s big sister promises to protect her no matter what happens.

Evely's diagnoses include Bilateral anophthalia, congenital heart disease, microcephaly, hypotonia, abnormal brain waves, obstructive sleep apnea, Gastroesophageal reflux disease

SBSK Socials:

[kaseybrown]

The mom is such a beautiful woman not just her physical appearance but her heart shines through..such a true Gem of a human

[SrirachaVT]

I think Evely would really enjoy musical therapy. The way she gets so excited with even the slightest sound of something musical is so wholesome ^^

[Erica.]

The older sister understands so much.. you can tell the amount of sympathy she has towards what her sister goes through in her condition. They all 3 are angels on earth ❤️

[nstheonly]

That big sister is literally one in a species for pure goodness. It takes a *very* special mommy to nurture such a beautiful soul. No wonder Evely is so happy.

[thatbmorechickfoodiecookin]

When the older sister says, " I like her like this" I believe she means, " I just love her as she is for who she is."❤️

[mya]

2:52 I love how her older sister immediately knew what was wrong🥺

[blaseblasebih]

"They can play with her....gently" It's the fact that this little girl can set BOUNDARIES without hesitation and I'm 30 years old & just NOW getting comfortable with saying the word "No" and meaning it...for me. Their mom's doing an excellent job! ❤

[BasicBerry_]

It's sweet how the interviewer knew exactly what to do and followed what Evely wanted. It's heartwarming at how kind humanity can be <3

[DarkLight]

Her kids are so intelligent, articulate, and empathetic. I’m really impressed by the older sister. Your typical siblings aren’t so sweet (anecdotal) and that kid is going places!!!

[predestinedvisionsproducti]

The big sister is such a beautiful little soul! She’s so respectful, loving, caring, and gentle with her sister! She values who her sister is and seems to be protective! Mom you are amazing! God bless this beautiful family

[rilianelucifen]

That mom really knows how to dress her kids, they're absolutely adorable!

[Xyzeezeezee]

The way she touched the guitar and was waving like Chris’s hand movements was kind of epic to be honest. It’s like she feels vibrations and frequencies more then us. And that’s a super power ❤

[YistheRumGon]

I get frightened hearing her mother hasn’t slept. This baby needs her momma around as long as possible. She deserves rest ♥️

[sierrathesongbird]

This is for her momma:
You are doing amazing, you are raising those girls beautifully, and you are such an inspiration. You are enough, strong enough, and a wonderful wonderful mother.

[undynetheundying]

The mother smiles a lot, and she's so beautiful. Such positivity. She looks so young. I wish all three of them the best

[hypochondriacs]

The older sister is one very smart kid. I feel like she'll be a doctor or someone helping others someday.

[Bravohalo]

Her sister is like she was sent on purpose. The musical connection is fascinating.

[brody]

“Is there anything special about your sister?”
“Yes”
“What is it?”
“She hugs me a lot when she gets excited”

My heart

[Magnetar_Haunt]

I like how the "special" or "different" characteristics her sister points out are all harmless, arbitrary things she just seems to love or notice about her, not things others perceive as "wrong". The mother is raising very intelligent empathetic children, and seemingly by example. <3

[rocksoft]

Intelligent child! I love how she connects with guitar by touching it. She recognize there is a source and connects with it.