Whitney’s Rare Gene Mutation (1 of Only 100 Known Cases)

Whitney lives with a rare genetic disorder of which there are only 100 known cases in human history. She also loves her family and believes the most valuable thing in the world is friendship.

SBSK's Socials:

[knigge]

"Well, he's kind and lovin. Just like a strawberry!" Good lord, that was so incredibly sweet and pure <3

[jessefoulk]

She's my niece. She just got her diploma at the end of 2022 school year. So proud of her accomplishments.

[TheRight-handedStranger]

Chris taught me how to interact with people in general and not insist on the correct answer. When Chris doesn’t get the right answer he rolls with it and continue with their way of thinking although it wasn’t what he asked. Good for him it’s a great skill.

[SR-xokl]

"It all started when I was a baby, I drank milk, then I went to bed, then I woke up!" I absolutely loved Whitney's little story of her life. That was so precious. 🥰

[tatianagodoy]

I almost cried when she said her favorite part of the interview was Chris. He was genuinely happy too, you could see it in his face. She's so lovely and bubbly! Such a pure soul. I don't know why people would be rude to someone with a disability, they're usually the most lovable characters.

[CarpetStainRemover]

Ah chris you are truly … a blessing to this earth. Where some of us would maybe struggle to interact with people with different abilities, you show us the way. To treat them with kindness, a smile and a warmth that anyone would love to receive from another human.

I truly wish you nothing but joy in your life.

[greenneko]

I just wanted to highlight just how well her mom understands her diagnosis. She clearly worked hard to understand the genetics of it. And I was excited to hear there are efforts to fund more research for it!

[almetas_grandbaby]

Kudos to mom explaining her condition so well. The library analogy was perfect.

[caitlyn]

"He's kind and loving, just like a strawberry!" made me so happy :) thank you Chris and Whitney for making my day better

[clarissacuellar]

She has such a positive vibe. I would love to be friends with her!

[ryjelsum]

Misdiagnosis is a pretty common thing. I have (relatively mild) Ehlers-Danlos syndrome, and many people with the disorder are diagnosed with fibromyalgia or chronic fatigue disorder, or are only diagnosed with disorders that are secondary to the actual genetic disorder for a long time before actually being diagnosed. I'm glad we're more able to narrow things down to basically the finest possible point in recent years, it's quite helpful.

[ML-peed]

I love when she encouraged herself, "I did it! Woooohoooo! Great job Whitney!" She is so special and beautiful. And she has better manners than a lot of people I meet!

[toddolson]

The emotions on this man face tells of an extreme sympathy for his daughter. It is heart wrenching to see the hurt within him that he has for his daughter. To you sir as well as all parents with kids of special needs I believe that you will be comforted for the love you show your children, for there is nothing more powerful than genuine love for another.

[SnowyHilly]

I fell in love with those amazing copper curls, the positivity and smiles she bring to the world.
Keep shining⭐

[hannahrose]

What an absolute sweetie! I would love to hang out with her. She's Such a precious person🧡

Whitney: And my son
Her dad: You don't have a son honey
Whitney: how bout my brother
Her dad: You don't have one of those either
I love that part! What a joy to watch

[laurenajkirby]

Whitney's waves and gestures are awesome! I also like how Chris asked her whether he could ask her mom questions about her. These interviews are always so respectful.

[Kai-ebfv]

Whitney telling her “life story” literally made my day she is so awesome and funny—
Also “does your mom make you mad?” *whitney puts up her fists as if to fight* “yes” idk why that made me laugh lol she reminds me of my sister

[MsMadmax]

Some people would look at children like this and say, "Those poor parents! What a terrible burden to have a special needs child." People don't know, they have no idea what a blessing they are. You can be having the worst day but kids like Whitney are pure sunshine. If you're feeling blue, they know just what to say to put a smile on your face and make you grateful to God to have them in your life. She's a lovely, sweet little girl.

[Wolfstar]

her dad has a warm, kind, and gentle disposition, and her mother is very sweet and smart. she's in a great environment, and it's obvious from how happy and outgoing she is. whitney is so pretty and bubbly, no way will she not attract some great friends.

[lucyii]

Genuinely, I can’t think of a better way to give back then giving to this channel. It’s so important and brings light to so many people’s lives. Thank you SBSK WE LOVE