Fibromyalgia & Temperature Sensitivity // Why We Can't Regulate Our Body Temperature

Thank you for helping me raise awareness for Fibromyalgia:

Today's video is here in time for the change in seasons - I am discussing the symptom of Temperature Sensitivity and why it affects us with Fibromyalgia so much, and consequently why we can't really regulate our body temperature, like healthy people can.

Hi! I'm Olga, I'm 25 and I have Fibromyalgia - I had to give up my dream of becoming a professional dancer, I had to give up driving, working, a lot of us have to go through this. I started making videos to help me cope with the condition, and now they have turned into educational videos about the illness, as well as some entertaining ones, cause I am a multi-layered person like everyone else, and I like more than one thing! This channel is also a statement - we are people still, in spite of our condition, we are complex and passionate and interesting. I hope by sharing my journey I will inspire others to keep going, that I will help others understand their bodies better, and that I will help you all feel less alone!

[Luv]

I go back and forth daily with having the chills and being too warm. Feel like I go back and forth with a change of clothes each day. Makes me think I’ve got a bug coming on or some kind of infection. Otherwise I’ve made great progress compared to six months ago when I had a severe flare up. Each day is so different! Thanks for sharing!

[Dianna-Hopkins]

I am trying to connect the dots with fibromyalgia and yesterday I was hot at work and cheeks were bright red....now today I had a flare up and been in bed all day. I do hate the heat and I do not do well at all. My body adjusts better with cold temps. So, when everyone around me is freezing, I am loving it.

[paulasmith]

I see this was 4 years ago. I have several autoimmune issues, so of course, have fibromyalgia. I was looking up Temp sensitivity and this popped up. It was very informative. I also have thyroid issues. Who knows which is giving me this particular issue. At least I know I'm not the only one. Thank you.

[forgiveness]

Thank you for this video. Ive noticed that my body regulates my temperature better during winter. I hate summer it affects me bad.

[jilligain]

I bought a separate ac window unit for my bedroom & also a chilipad for my bed & that helped a lot. As I just can’t handle the heat anymore at all

[SatumainenOlento]

Good information and suggestions in this video! Thank you so much! 💗💗💗

[hrusewif]

I always have far more issues with the cold (Winter is absolute hell for me, living in a US state with cold and occasional Ice but little actual snow). Then we found out I have Hypothyroidism which- surprise- on top of other things, increases joint pain and cold-specific temperature sensitivity! No wonder my joints always hurt and the cold is worse on me! Ha. No wonder I've always been a "Summer Baby" who likes the heat and humidity.

[AnonthonyMous]

When it’s hot and humid I very easily feel like I’m having heat exhaustion within a matter of minutes. It’s hard having a partner who wants to do all these things and he can’t understand why I can’t do these things anymore.

[theresetubemission]

Air conditioner at work caused huge amounts of pain. They kept it at 72°f /22°C in the office, and it hurt to breath because it felt so cold. Now we are wearing masks the air is warmed up before it hit my lungs. This helps it not hurt to breath.
Has anyone else experience this at this temperature?

[UFOReseacher]

Hello I suffer from fibromyalgia since the age of nine I’m nearly 60 so I’ve had it all my life it’s inherited condition which my mother had it and my daughter has it as well. There is a medical term that I’m looking for related to pain when it’s cloudy weather I’m looking for that so I can put it with my medical history notes would you have a clue what it’s called.

[pursedelighted]

I don't do well in the winter months I have fibromyalgia and arthritis.

[melt]

Olga please link the studies you refer to..I need to show my dr. Thank you 🙏🌝🌷

[bethdavidson]

I’m going threw tnis now as well as having some nausea along with the pain of fibromyalgia

[finerwithage]

I’ve had hypothyroidism for approximately 26 years - my thyroid markers TSH and T4 are both high which contradict each other with the T4 saying I’m hyper. Now I am presenting with Dysautonomia symptoms and get rushes of a hot flash through my body and head. My temperature can drop as low as 92.9 (one time that I documented) but usually 94/95 range and I hop in bed on a heating pad until it climbs back up to my usual 97.7. I’ve told doctors and the emergency department where I have presented with bizarre symptoms and they look at me like I’m either lying or nuts and tell me that my two working thermometers are broken. Does anyone here have Orthostatic Hypotension (low blood pressure upon standing)?

[Giant-Figure]

When it's cold I get too cold. I'm sensitive to light. I get panic attacks every now and then

[Tattytreasure]

Funny you ask 😂 I've been looking at all stuff round fight and flight with our condition apparently you can reset this or something but my head wants to explode. So if one day you look into this please explain in simple terms. Thanks Olga loved this video

[Oyuki-Mayonesa]

Oh shoot. I came where for answers about body temp... but Then realized I literally fit alll of the symptoms you just described:O PS: I love ur soothing voice. Please do a video where you read a book so I can finally fall asleep :(

[cozycomfychronicallycute]

Love this! I wonder how cryotherapy would be specifically because of these symptoms! I have fibromyalgia and am sooo sensitive to the cold. I can't seem to stay warm let alone get warm. Which also Makes me not want to ice my joints even though the icing totally helps with the joint information and even some of muscular pain so I'm wondering how cryotherapy would be. Or even doing the whole ice bath. For now I just do the 30 seconds to cold in the shower hydrotherapy

[womaninamerica]

Can you post the studies, you mentioned. I have extreme heat intolerances. I can barely function in the heat

Thank you

[jainendramishra]

I have some dangerous side effects like breathless in my body overheated in heat or hot weather and shivering in normal water bath or when i wet in rain i shivering excessively what kind of problem i have