Lupus & You: Mental Health & Wellness

In this virtual event recording of our educational series Lupus & You, we focus on mental health and wellness, and feature tips on coping with the difficulties of a lupus diagnosis, navigating life with lupus, and managing emotions while living with lupus.

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[garypasseno]

I love listening to this lady with Lupus. We learn from everyone. I'm very impressed with your foundation. I've been trying to be able to start a Fibromyalgia Support Group.And Lupus when I am more educated. Both together someday to start. I'm in a rural area. The hospital said I could hold it there. Whenever I mention Fibromyalgia and Lupus somebody knows a family member or friend that has either one. Really appreciate all of you and your work.

[garypasseno]

I missed one eye appointment last year and a new Rheumatologist at U of Michigan I have never seen stopped my Plaquenal. I'm 75 and was bedridden alone last year. I was unaware I missed it. I have the worse case of Fibromyalgia in the world. My "mild" Lupus has gotten worse. Everything I know about Lupus was learned from the Lupus Foundation 🙏. You help us in ways the medical community doesn't. Thank you very much. I have been without Plaquenal a month now and things aren't good. I was surprised it affected my sleep even though I take Trazadone and Melatonin. I wake up early. Pharmacist and Opthalmologist thought it terrible he did this to me. Lupus and Fibromyalgia are the "Double Whammy" and doctors and nurses chringe. My past Rheumatologists at U of Michigan were wonderful. I especially liked the two woman Rheumatologists. It's a very good Hospital 🙏

[andysharp]

Thanks for sharing your story I'm sure that it's hard to talk about i was diagnosed over 5 years ago at the age of 37. I have good doctors its just like they treat me like im dying so i havent seen them in like 6 months I will go back soon. The thing is i get the lesions on my gums and in my nasal cavity which makes it really hard to breathe it sucks but its life i guess I have seen a nose doctor and i guess they are chisel out my nasal passages so i can breathe lol. It is very unpredictable with the times that i dont want to even go outside i only leave at night now cause the sun. Poof im a vampire

[mahmudarahman-rgeq]

লুপাসের জন্য চিকিৎসা বিজ্ঞানীরা কিছুই করতে পারলো না খুব দুঃখ জনক প্রকাশ করছি।