Living with Lupus: Managing Your Lupus with Confidence | Access Health

Lupus is an unpredictable and inconsistent autoimmune disease. It can be difficult to diagnose and challenging to treat.

For patients, reaching a diagnosis is often only half of the battle; it’s the day to day unknowns of living with this chronic illness that can leave many feeling powerless.

Manage your lupus with confidence with tips, tools, and advice from Dr. Betsy Bennett. Plus, stay tuned for one woman’s compelling story of adversity to empowerment.

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Access Health brings a panel of three renowned experts to tackle important health and wellness topics in the fields of Medical, Nutrition and Fitness all from the female perspective. You can have access to healthier living, so tune in to Access Health airing Wednesday at 7:30 am ET/PT on Lifetime.

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[shabbirhussain]

My wife also has lupus. I think there are many complications in this disease. It is very difficult to live with this kind of disease. May Allah protect everyone from those kind of disease.

[faithvarner]

I have tears in my eyes because having this chronic disease most don’t understand when you’re wiped out don’t have strength or need to nap. I am under a rheumatologist who keeps saying my headaches are not from the Lupus. I have taken my health into my own hands and will see a rheumatologist who specializes in Lupus in July.

I’m excited to start up with her soon. Thank you so much this is the best documentary EVER!!

[chris]

My wife has sle and there was a few times i thought she was going to die but my wife is a fighter and she changed her diet and learned how to manage her stress and shes been feeling way better at times she has some flares but then it goes away. I pray one day there can be a cure for lupus so all women and men can live a normal life.

[zenmeditationinternational]

My sister has been living with Lupus for the past 20 years. She is the most amazing person and extremely positive. It is a difficult disease to live with.

[aviancag]

When I told my mom about my diagnosis, she walked away from me and told I got to many health issues to be young. She still forgets and ignores the facts I have lupus. I feel so alone .

[Therealtarot]

So frustrating, it took 15 years of me going to my Primary Care physicians with the most obvious symptoms including the classic malaria rash with no help, only to be diagnosed correctly by my dermatologist on my very first visit . I went to see her because of excessive hair fall and horrible horrible skin rashes. Oddly enough I am happy to have been correctly diagnosed and now I can do my best to manage it.

[lindac]

This made me cry so bad knowing I’m not alone. I’m embarrassed to tell people, even friends that I have lupus. I’m 49 now, and I’ve lost 8 teeth. I’ve gotten to a point where the bad days I sometimes count the years left until my kids are 18 because I can’t take the day to day pain.

[bobthuggahify]

Thank you so much for this video, my mom was just diagnosed with lupus after so many years of not knowing what was truly wrong 💔 this video is giving me the tools to help her so thank you again and GOD Bless you 🙏🏽

[CG-fyzj]

This video was all qualitative. Talking about how to make others understand does not help the individual manage & reduce symptoms. I would have loved foods or activities to avoid, or things to actually do

[renet.]

My 18 year old daughter got diagnosed today I found this trying to do some research thank you for making this video I shared it with her very informative and positive 🥰 Thank you again 👏❤️

[quakerdude]

My wife is getting blood work for lupus tomorrow. Our fingers are crossed that after almost 6 years we hopefully get an answer

[bellonefabien]

I have a degree in health education and yet I was completely clueless with what was happening to me. The most difficult thing for is accepting the term disable. I have been struggling with SLE for over 10 years and being in my late 50's I no longer have the energy to perform most physical activities including my job. The ironic thing is that people say that I don't look sick

[martinszu]

My message to all brave lupus patients: do not ignore regular heart checks! My beloved wife died 2 weeks ago in 44 years of age. I am in despair I feel horrible. I miss her unbelievably. Do not ignore Blood clots and heart murmurs. Take care and fight!

[reginaspotsville]

I have lupus. You inspired me so much, when I thought it was the end. Thank you

[iamautumndaye]

Diagnosed in 2013 since then I have become vegan, being proactive with the disease is the best approach. CBD & THC is my go to for pain management. 💜💜💜💜 keep fighting 💜💜💜💜💜💪🏽💪🏽💪🏽💪🏽keep researching!🦋🦋🦋

[RakeshKumar-tdyt]

I have lupus but no body understand even my family doesn't, so it is very difficult to live with lupus.

[jlastre]

I was diagnosed with lupus this October 7th. I think I have been undiagnosed for years. I’m also a male and 58. So I fall far outside the typical lupus patient. It was both a relief and shock to finally have a diagnosis. I will say I wonder if so little would be known about lupus if it primarily effected white males.

[ceciliaebora]

I was also diagnose with lupus for more than a year now. The invisibility of the symptoms is really an issue and not easy to understand by people around

[goodintentions]

I've yet to find a video that mentions weird sensations, which were my first & most predominate symptoms along with the butterfly & now long lasting ball of my feet neuropathy. First symptoms @ 14. Not diagnosed until 50. Talk about frustrating...

[kimberly]

Thank you for sharing your experience. Im going to see a rheumatologist this week and I'm nervous. I was told, " ya, maybe long covid" although both can be true. I have a history of depression, so I'm concerned they'll look at me as not being 'valid' in my symptoms. Or, all in my head. I look back and see symptoms that I never put too much thought to.Now, I see a definite connection. Hope your well. Thanks again 😊