Metastatic Colon Cancer Hospice Care

Today we're talking about the Colon and what is expected in Hospice Care with Colon Cancer.

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[DK]

DON’T ignore symptoms!!! When I was 40, I was experiencing rectal bleeding. My gyno blew it off, saying it was probably a hemorrhoid, without even checking. I was back a couple months later for a different issue and mentioned I was still having rectal bleeding. He blanched, and walked me to the gastroenterologist’s office. I had a colonoscopy within a week and had numerous precancerous polyps removed. I’m finally to a point where I can go 5 years between procedures. I’m convinced had I not had bleeding, I would have developed colon cancer. Is the prep fun??? No, but it will save your life!!!

[darklotus]

I like the idea of a “what it’s like to die of” series. To help us prepare for ourselves & our loved ones. There technically is a list of the top 10 or so things Americans die of.

[Hollytm]

Thank you for this video. My dad just died of metastatic colon cancer right before Thanksgiving. We were told virtually nothing in the hospitals. We did not know what to expect or how long he had to live. They found it too late so he only lived around 4 months. It was so sad to see someone so vibrant and so full of life change so quickly. I wish we would have had someone like you along the way to help us understand what was happening. I miss him so much. He was ny best friend. ❤

[kimnoble]

My mom survived late stage 3 colon cancer. She had surgery in 2015, only did 5 out of 12 recommended chemo treatments before quitting because it was making her so sick. She is still without any signs of cancer in her body, and is now able to go approximately four years between colonoscopies. Interestingly enough, she knew even when she was diagnosed that this would not kill her. I wish I could say I was as optimistic as she was, but she just had this knowing. I’m glad I still have my mom today and I make sure I go at least every five years for a colonoscopy.

[FixinToScratch]

I just wanted to tell you thank you. I found your channel several months ago. My mom just passed away on Jan 1 from pancreatic cancer. It's been a long 22 months. Fortunately, we were able to bring her home last week on hospice. She was having some heart issues and I believe it superseded her cancer which had spread to her liver. She died peacefully without any agitation while I was holding her hand. Your videos helped us so much in preparing for her death and understanding hospice care.

[BobCovell]

Thanks Julie for your video insights.
One year ago, I was diagnosed with metastatic prostate cancer. It is now being well managed. My PCP insisted on a colonoscopy and it found colon cancer. I had laparoscopic surgery a month later and 20" of my colon was removed along with 23 lymph nodes. The doctor called a few days later to say there was no evidence of the cancer spreading and no follow up was required, other than another colonoscopy on my 1 year anniversary. I feel like I truly dodged a bullet!

I can't implore people enough to follow your advice and get checked out!

[erical]

Thank you for bringing attention to this awful disease. My Mom is currently in hospice with stage 4 colon cancer that has spread to the peritoneal cavity. She’s dealt with quite a bit of nausea and pain but we have it mostly under control. The worst part for her is that she can no longer eat, she’s on day 26 of no food. For anyone reading this, please get your colonoscopy when you’re due for it!

[hotsjc]

My husband died suddenly from a heart attack. 3 days later I had pains in my stomach. I thought it was an ulcer from stress of his death. The pain disappeared when I moved into my daughters place just to do some healing emotionally. The pain came back 7 months later. Went to the ER, found out I had terminal stage 4 colon cancer that has spread to my liver and rectum . I have decided to die with dignity. No treatments, comfort-care only on hospice. I am at peace and happy.
I have a long love relationship with Jesus and look forward to being home with Him. I am 64.

[tammiekinsey]

My sister's boyfriend of 15 years passed away at 7 this morning of colon cancer 😢it was so crazy though they said that he might make it to Christmas and he did thank goodness! But yesterday morning my sister heard him calling her name so she jumped up and he was in the kitchen eating a bowl of cereal that he made for his self he was feeling very good yesterday and then he was gone at 7 this morning 😢I watch one of your videos saying that sometimes that is normal that a person who is very close to dieing will get a burst of energy! So i knew that he was going to pass away during the night or sometime this morning!!! Thank you i have learned a lot from you ❤❤❤❤❤❤ RIP JIMMY WE LOVE YOU AND YOU WILL BE VERY MISSED 😢😢😢😢❤❤❤❤❤❤

[HaggisIsGross]

Thanks, Nurse Julie. My brother died of this at much too young an age, and I know more young people are being diagnosed lately. Colonoscopies aren’t super fun but the alternative is terrible.

[njmuir]

Thank you Julie for this video. I'm an ostomy nurse and SO MANY of my patients have colon cancer and it's usually been ignored and metastasized. Far too many people taken too young because they avoided testing or ignored symptoms.

[sarastaggs]

Thank you, my mom just died of this, diagnosed on Halloween and died 2 days after Christmas. She had no symptoms of the cancer. It was very difficult for my family and we are just glad she is no longer in pain and suffering. Many of your videos helped me throughout the process, so thank you ❤

[missmerrily]

i know a lot of people would/will be scared of hearing the detail, but I am delighted to have an expert tell me what I might expect if I find I have a deadly disease from which I'm not going to recover. As well as the symptoms we get to hear what happens that will help us, and if we can't avoid the inevitable outcome, it's good to know how we will be helped to feel more comfortable as we go through the process of dying. Julie you are doing an incredible job in making this a healthy discussion to have. Knowing the facts and that there is help can make the pain and fear recede. I'm open to hearing about the course of any of the diseases which you deal with every day in hospice care.

[VeaRobinson]

I had blood in stool in my late 30s, told my doctor, and she ordered a colonoscopy, and it turned out to be internal hemorrhoids. I implore anyone to please get checked out. It's better to be told it's not cancer than to guess.

[robynw]

Here in Australia, we have a government funded program called the National Bowel Cancer Screening Program that tests your stools. It is available for those between 50 and 74, and are done every 2 years. You collect a tiny sample at home (they send you the equipment and instructions needed), then you post if off, and within a few weeks you have the results, which are also sent to your nominated doctor. Great program. My Uncle died of bowel cancer, so it's a comfort to know that I can get tested easily and quickly at no cost to me.

[nohana]

my father in law is 92 years old, a bit more over a year ago he was diagnosed with colon cancer. He decides to have no treatment, so no surgery or chemo, he choose palliative care. And he's still around. Every two months he needs a blood transfusion and he's good to go. We never thought he would still be with us after a year.

[lauragadille]

My grandma passed from recital colon cancer in 2005. I miss her so much. RIP Nana

[margaretk]

Hi, Julie. Thank you so much for this topic. There is a very strong genetic maternal history of colon cancer occurring with the women on my mother's side of the family. My mother did pass away from metastatic colon cancer, which first progressed to her lungs and then liver. She lost her ability to speak, and I never understood why, and it wasn't explained to us. I guess we didn't think to ask the doctor. She didn't have trouble breathing, and I never saw her on oxygen. Do you know why loss of speech may occur? Just thought I would share some of what my mother taught me. I was told, "If you see any abnormal signs of bleeding, go to the doctor IMMEDIATELY." As a first degree relative (being her daughter), I had symptoms in my early 30's and immediately went to a gastroenterology and had my first colonscopy. I continue to have colonscopies when they schedule them. I'm a patient who usually has polyps, which they remove. My mother's knowledge and instructions have kept me healthy. Remember: always listen to your mother! Two last points that may help anyone doing prep before the procedure. Use one of those wide straws to help drink the prep. My friend told me that. It's easier with a large straw and just pretend like it's a slurpee. Bring gulp up throw the large straw like you are gulping up a slurpee, just do it and don't think about it. It goes faster and easier. Finally, I also learned that losing weight (if you need to) is good prevention against colon cancer. I hope I have been of help to anyone who may need this procedure. Good luck! You can get through it!

[cindyb]

My mother died of colon cancer in 2011. She was a stage 4 when they found it and managed to live 6 years with chemo. It’s a hard road to travel and sad to witness. Thank goodness for her good, caring doctors and staff. Also, Hospice was a Godsend. Get your

[robertasparacino]

My dad was diagnosed with colon cancer after being hospitalized for vomiting because he was diabetic. He had his first colonoscopy at 67 and they found a tumor. No metastases, so he had a part of his colon removed. 2 years later it showed up in his liver, but he was diligent with his PET scans, so it was found quickly and removed and he remained cancer free until he died 15 years later from sepsis (unrelated to the cancer). His brother had all of the symptoms of colon cancer, including anemia but refused a colonoscopy and died from it. I go every 5 years for a colonoscopy and pray every time that everything is clear.