My Coeliac Diagnosis || How To Coeliac

Thanks for watching!

[Ms.W]

There was a woman who won one of the first Survivor seasons and she said she didn’t realize she had celiacs and it’s literally the exact reason she won. She was living in the wilderness on whatever meat she could find and felt AMAZING because she wasn’t consuming gluten!

[teresamercurio]

I wasn't diagnosed with Celiac Disease until I was 59!!!! After a week being gluten-free I realized that I didn't have a stomachache after eating dinner!!! It was life changing. Eating out is always a trial for me. The cross contamination gets me and end running to the bathroom with explosive diarrhea. Praying I make it to the toilet on time. Oh, it's a wonderful life! 😀😀😀⌚

[jssvtz]

The best thing for me was the end of crippling pains in my intestines and not having to constantly run to the toilet

[mappizza]

Thank you for making and sharing this video. I was diagnosed in 2007 and started eating gluten-free. I remember cleaning out the gluten foods from my cupboards and pantry and giving all the food to my brother and his family. For me going gluten-free was so much easier than dealing with gastroparesis and slow intestines. I've kinda got the gastroparesis under control, the intestines are still a work in progress.

[malubueno]

Great story! I’ve also had the “all or nothing” bowel movements when I was a teenager and was diagnosed as IBS. Only in my 20s when I started waking up in the middle of the night with vomiting and diarrhea crisis *at the same time* and having to be taken straight to the hospital I realized something was not right but never related to gluten. Got diagnosed at 29 yo and I agree - regular bowel movements are the best :)

[clarecutler]

Loved this video! It's so nice hearing people with similar stories to mine. I was diagnosed in november of last year after I had just turned 19 and I honestly didn't start researching and watching videos like yours until a few months ago. It was (and still does) create so much anxiety around eating that I didn't really want to think about it too much but now after ten months I am seeing benefits and feeling slightly more content on my gf diet. The main symptom that I'm excited about is that I no longer struggle to maintain weight. I used to eat so so much to try to gain weight and it would work if I could eat a lot consistently for a few weeks but as soon as I ate a normal amount I would start losing weight again. I also found it very difficult to eat a lot because it would make me feel like gagging thinking about food. I'm so glad that I don't have to stress about getting enough food in anymore - I just have to worry about what food I'm eating!

[iaingirvan]

Love the video, I was diagnosed at 40. I experienced joint pain, pimples, irrational anger, brain fog, burning feet etc. Gluten challenge nearly broke me and there was no support after at all

[lauraleegut]

Good video. For me my spring allergies and eczema went away. This was the best part of going gluten free.

[iby]

My symptoms were really similar to yours! Also muscle and joint pain, brain fog and dry skin, starting aged ~10. In the end I got my diagnosis in 2019, being almost 21, when I went to the hospital feeling so incredibly sick I couldn‘t even stomach water. They did blood work and biopsy and then they basically told me that I‘m in a state called coeliac crisis, that my body was on the verge of starving and that I was the worst case of coeliac they had ever seen. Took me a year to fully recover

[paulm]

Thanks for this video and your happy demeanour. I’ve just been diagnosed at age 47. Completely shocked me and made me sad if I’m honest. My only symptom is tiredness but I always put that down to my job (shift work). Now navigating my way through eating gluten free and realising all the foods/drinks I can never have again. Hopefully will become the norm sooner rather than later. Cheers from UK.

[karligoldenbaum]

The best thing I experienced after going gluten free was that my teeth stopped hurting. My teeth would ache so bad not even during eating or drinking. It just felt like a headache in my mouth all the time. I came to find out later thats a fairly common symptom when you’re not getting enough nutrients (iron in particular) due to celiac.

Love your videos! Thank you for sharing your celiac story ❤️

[showmesarahmarie]

The best thing after diagnosis was the insane bloating going away and I was always in much pain my stomach hurt so bad, and that was now gone!
Worst: someone get me a gluten free croissant!!!! 🥐
I still get brain fog and joint pain and fatigue though. On top of coeliac I also have Rheumatoid Arthritis, Lupus, and Ehlers-Danlos Syndrome. My Coeliac diagnosis actually led to doctors finally searching figuring out my other conditions believe it or not!
So I’m thankful for my diagnosis and answers 🙏🏻

[leahwood]

The best thing I found was that I started to actually grow and gain weight! I was diagnosed when I was 7 and had very stunted growth because I was so malnourished it was crazy!! And agreed, regular poops are fantastic!!❤️✨

[paulrobson]

Thanks for sharing your experience and talking so openly about bowel movements! I’m not diagnosed coeliac but suspected I was for a long time but chose to ignore it. I’ve had all the same experiences as you and encouraged by my Mum (who is diagnosed coeliac) I switched to a GF diet last September. The change, albeit tough, has been incredible. As you say, hurrah for regular bowel movements! 😊😊😊

[Ms.W]

My youngest was in the NICU after she was born and from her VERY FIRST FEED she puked! She puked 30+ times a day for four years before a new GI dr did an endoscopy and saw ZERO villi and polyps around the entrance to small intestines. We did Gf immediately and life changed immediately!!! 8 years later and we have a nurse w her at school because she’s so sensitive she can’t even touch it! But her health changed drastically but she is incredibly short!

[agentacey]

The best thing I experienced is a tie between my joint pain and the brain fog going away. I was awfully sick before diagnosis, but GI issues were not my main complaint!

[jessduxfield]

Best thing after diagnosis was realising all my issues while pregnant (I lost half my body weight in 8 months and grew a baby) weren't in my head like gastro told me. It wasn't pregnancy related! Also joined lots of dots of lifetime issues like poops and skin issues.

[colleennejedly]

Thank you so much for sharing! Our stories are so similar! I was also diagnosed at 22 (March of 2019). I am surprised I made it all the way through my last semester of college I was having so much brain fog, fatigue, and all the other not so fun symptoms that come along with celiac disease! The only way I actually thought to get tested was by a 23andMe test that showed I had an increased risk for celiac, so I got my blood test and endoscopy! Sure enough I have celiac disease, I feel so much better now. I wish the US had stricter gluten testing procedures/labelling laws though because for the first year I didn’t realize Cheerios were not celiac safe here 😅 also prescription meds, so now I always ask the pharmacist. It is not an easy transition, but I also feel so much more myself after healing my gut. It does make travel tricky though!

[laurarevilla]

Thank you so much for this video! I understand so much what you mean. My whole teenage years were awful until I got diagnosed at 25, which of course was life changing! I also completely agree with the nutritional appointment! They should be scheduled sooner 🥲 It’s been three years for me, and I learn something new everyday hahahahahaha

[abir]

I got diagnosed properly around a year ago, I'm currently 18 so I would say I was diagoned earlier than other people in the comments. I started having problems with my stomach around year 11. I remember I was sitting in my French class and my stomach made the most loud and embarrassing noise, this had happened to before but that was the first time it was so loud. I was so embarrassed and that was when I thought of going to the doctor, they did a blood test and then called me in to say I may have celiac disease but they weren't sure so I needed an endoscopy. The endoscopy confirmed that I had celiac disease I and started my gluten free diet around February or March of 2020. I absolutely hated being gluten free, one of my favourite food is the fire noodles. I had a tradition of watching the whole stranger things series with ramen and fried chicken, and I was so upset when I realised I couldn't do that any more. But I have more or less come to terms with it but I still wish I could whatever I wanted, I was a major foodie before my diagnosis😁