Inclusion Body Myositis, Dr Conrad Weihl 2016 Annual Patient Conference

The Myositis Association presents this session from the 2016 Annual Patient Conference in New Orleans. Dr. Conrad "Chris" Weihl responds to participants' questions about Inclusion Body Myositis.

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💻 Originally aired 2016

[IrnMadn]

Hi Dr. Conrad. I have this. I got it at 36. I'm 39 now

[riksteele]

My treatment was the standard high doses of Prednisone to start and Methotrexate for a very short time. Prednisone dose was tapered off some, but I stopped taking it on my own. Side effects from both drugs were making me ill. During that time fairly agressive physical therapy with therapist stretching my legs and arms was done. Before all of this I stopped taking Lipitor. I had a little improvement from the treatment. I have went from not able to walk or get out of a chair or touch the top of my head to walking slowly with a cane. Most of my improvement came after I stopped taking the Prednisone and went to eating more things that helped produce nitric oxide in my body.

[kyleighevans]

All my auto immune issues started after a severe case of the flu back in 2006.

[Govstuff]

Sad that this is all we know about IBM. It's 2023.

[elaineslavens]

I was diagnosed with polymyositis over 20 years ago and it's gotten progressively worse in the past I'd say year-and-a-half I'm in pain and my legs are weak and I have to use a walker and a rollator now could I possibly have IBM

[davemessenger]

What is the ratio or number of cases of ibm to Vietnam veterans? 1079 just after end of Vietnam incursion.

[wilmafoster]

What is the likelihood that receiving Pfizer BiValent vaccine and Flu vaccine at the same time can bring on an autoimmune disease? My husband had a gradual onset after we both got our vaccines. We have not had a definitive diagnosis yet, we are still working on testing. My son took care of a patient in the ER that developed myositis after Covid illness.

[DONALD]

When he said 45 years old that is a guideline. So your 43 ?. Too many irrelevant remarks and questions. I want to hear this expert doctor talk.

[garymcdonnell]

I have lost at least 10% of my strenth in less than a year

[tenselectricalremedy]

Wow, I had posted a comment here and it got removed, I felt so bad, basically that means they care less about people. The comment was not offensive at all. I was just saying I invented something with TENs to help myself which I tremendously believe will help everybody :(.

[tenselectricalremedy]

Even better further updates, I was able to create mixes of Brain waves and are equilibrating my energies like magic, so my electrical invention is not needed. The quality of life is not at its best like with my invention would do me manually, but since nobody cares for humanity's best state of being (yeah because my invention will help humanity, not only me, it has just not been experienced by anybody so no one (only me) has good feedback on this unbeliavable discovery.