Top 10 Reasons Friends and Family Don't Understand Your MS

In this video, I share the top 10 Reasons Friends and Family Don't Understand Your MS.

The Boster Center for Multiple Sclerosis accepts new consultations and is actively enrolling several MS clinical trials! www.BosterMS.com or call 614-304-3444 to schedule!

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COMMENT with your thoughts and questions below! I look forward to reading and responding!

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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!

[FosteringW_love]

One day I’m able to clean the kitchen, although it took me the strength of an army that no one can see and the next day I’m asking for someone to get my ice water because I have no strength. Outwardly I look the same on both days. 😒

[ToLoveIsToLive]

I think another reason many don’t know anyone else with MS is because so many don’t talk about it, I have been shocked by how many people don’t even tell family and friends they have it! I try to educate people as much as possible, including strangers when they question why I’m using a handicap spot or motorized shopping cart. The more those of us use our voices to share about MS the better!😊💗

[Gryphon]

Anyone else out there whose's tired of hearing upon meeting someone "you don't look so bad to me ?"😢

[justanotherrando]

The fluctuations are probably the hardest concept to grasp. One minute I look "normal" and the next I am in a bed unable to open my eyes. It's like my body just said "done". These fluctuations make some people look at us skeptically. Is she faking the disease? Such a drama queen. 🙄

Its difficult to plan anything with people. I can feel great and ready to be socially involved. Then the day comes and I can barely sit up, let alone be present and pleasant to be around. I feel myself retreating away from those things more and more, but I also get invited less and less. I wish I could make everyone understand. 😢

[javafiendx]

There are a lot of doctors that don’t believe that MS causes pain. It makes it very hard for the patients to get good answers from their own doctors. It’s very frustrating.

[christinaleidy]

I hate the fluctuations. It switches so quickly some days

[smmcb]

I’ve been asked “why do you use a walking stick sometimes and not others?” It makes me feel defensive, like I’m pretending to have a problem. People simply don’t understand. Best not to be offended and just explain “I have good days and bad days”.

[tanyabarboza]

My brother who has MS sent this to our family group chat. Im glad he did this was informative and gave me clearer understanding. Thank you Doctor.

[candyduncan]

Even after 10 years with this MS still trying to explain or re-explain my issues.

[loripeterson]

My son had MS and my mom had heart disease. Both are so invisible, not like a broken arm in a cast, that people don't realize or recognize how fragile these people can be. Their needs are real and fluctuating and their friends and family tend to overlook that part, expecting much more from them than they can give because they "look well."

[marymclaughlin]

Healthcare providers are also confused and can ignore symptoms.

[cloressagoldson]

I always hear “but you look really good” and “you’ll be fine, you’re a strong person “ . Folks mean we’ll, but…

This video should be liked and shared with friends and family over the globe. ❤🙏🏽 Thank you doc!

[cinemaparadiso]

Dr. Boster is a treasure. He really cares about MS being understood by patients and others alike. I, too, have learned more from his videos than my doctors. Please keep up these videos. Blessings to you and your baby dog.❤🎉

[Jefff]

I know that before my unfortunate journey down this path, I was just as ignorant. I tell my wife that she doesn't know how I feel and I hope she never does.

[jennifer]

When I went in for my second infusion I got questions about why I needed medicine again. I don't think many people realize just how long "lifelong" really is! But I also had never even heard of MS prior to being diagnosed myself so I can't be upset if people don't get it.

[EvenSoItIsWell]

Good morning Dr. Boster! Thanks so much for another great video. All 10 points are spot on. I appreciate you helping us and our village members.

[ZeroMaximus]

I just wish my wife understood fatigue days. 😩 She's pretty much has said stuff to the point of "You're just being lazy, " or "playing the victim, " or "quit blaming your ms."

[sourenamehr]

Just diagnosed three months ago and I am 41yo, currently on Kesimpta and my neurologist is very happy with how the this medicine work.. but I am do depressed. I am very depressed... I am not the person that I was a year ago.. today I had to leave my job early as all of sudden my bladder started getting spasm and painful.. the real wealth of our lives is the health without even knowing it

[lawnmowerman]

Thanks for all you do for those of us living or dealing with this disease personally as well as all of our families and friends

[daisynimbus]

I find that humor is the best way to deal with others. Mostly I keep that humor inside just for me, outwardly I just look at them and drool a little. 🤤