Sjogrens a Systemic Disease - signs and symptoms #sjogren #sjogrens #autoimmunedisease

Learn about Sjogren's Syndrome and why is a systemic disease?

[bunnyduncan]

Thank you for all of your informative videos regarding Sjogren’s. I’m struggling with the cumulative effects of this debilitating disease, as it continues to aggressively erode my teeth, kidneys, tear ducts, salivary glands, and most recently my skin. I also have lupus and rheumatoid arthritis, and I have found that the older I get, the worse my teeth and skin are. All but one of my bottom teeth have rotted and fallen out in pieces. In addition to everything else, I have Cyclical Vomiting Syndrome, and the constant vomiting of bile has destroyed not only my teeth, but my gums and tongue, as well. The most significant effect of these ‘dominos, ’ has been the extreme weight loss I have experienced over the last 16 months. I have lost 74 pounds, and now weigh between 92-98 pounds, depending on how many days I am able to keep my food down in any given week.

I am despondent over this, often feeling hopeless, because I am on Medi-Cal, and they will not cover the cost of replacing my teeth until I have lost all of my teeth on at least one row. Even though my mouth is a rotten cauldron of disease and decay, CLEARLY begetting other serious disease, until that one remaining tooth falls out, they will do nothing to help me. I am desperate, I am despondent, I am hopeless. I am ready to throw in the towel unless I get help, because I have no quality of life. I’m too ashamed of my rotten mouth and decayed teeth, that I avoid people whenever possible. Any help or advice would be much appreciated, because I can’t - nor do I want - to continue living like this. Please help if you can.

[byrontownsel]

Im in end stage non alcoholic liver failure because of Sjogren's. You just have to take everyday as a blessing. Thanks.

[lucyching]

I have always been sick for many years with lots of complaints but they were never the same complaints. I have mouth ulcers from time to time and then my worst nightmare came when I woke up one morning and saw that my tongue looks like it had been through a horrible drought. Then comes the dry eyes and hair loss. And quite recently I started developing back pain so severe that I couldn’t sit or sleep, even standing for more than 10 minutes was awful. I got diagnosed with bilateral sacroiilitis and from there I was referred to a rheumatologist. Currently they say I have UCTD but I might also have sjogren’s, btw we have a family history with lupus too. Your channel have given me more insight about auto immune disease and I feel safe watching your videos. I hope I get a proper diagnosis thìs time.

[caz]

It sure does effect a lot of things. I’ve been diagnosed for over 10 years now and each and every day is a new adventure/struggle 😮

[kaamilodhorre]

Thank you dr for your knowledge and sharing with us now I understand so much about this disease and effects I appreciate it😊.

[miriamjensen]

Thank you so much for all you share. It explains so much of what I experience. It’s getting worse and affecting my organs. Outwardly, it looks and feels like I have 3rd degree burns on my lips. I can’t find relief. Even lidocaine stings 😂. No toothpaste is mild, but some theramint brand products are great! Some of their mouth rinses, and the mints help.
I stay hydrated but recently had emergency surgery where 1/3 of my colon was so impacted with dried feces, it had to be removed. I was septic 6 days. I don’t make red and white blood cells, so fighting the infection was scary. The worst is I seem lazy, but the fatigue and pain takes over days at a time. It all worsened after I had COVID 19 8 delirious days January 2020. I just want to sleep a normal night and wake up rested and do things! Good things! I don’t talk about Sjogren’s with others, so many think I just lost my zest for life. Not so.

[Judith_daughteroftheKING]

🙌💯🔥😭🥰 Hallelujah Mighty God finally a Dr that understands it's all over, whenever. God bless you in Jesus name 🙏🏼💯🔥

[Needlesssay]

It makes one wonder if the body is trying to keep its self dry to prevent funguses or molds from growing in the body? Perhaps its a lack of minerals (good ones) that make water more wet and that helps with making cells more permeable to fluids /minerals/vitamins they need. If pathogens have worked their way in to cells could autoimmune disease just be the immune system just digging deep to get to where they are hiding in cells or being activated but not being able to see them because of lipid based biofilms the pathogens have created to hide themselves? .... I dont take drugs for symptom removal. I like to figure out the root cause.

[Thechatteringclasses-ojzy]

I think I may have had this for years. I’ve put it down to all sorts of other things. My drs wouldn’t understand if I said the name.

[ellek]

What is the first line treatment for sjorgrens? I have been managing with an autoimmune protocol diet for about 5 years, but feel like it's still progressing--even though my last ANA was negative. I have not had a negative ANA in 20 years.

[akhilaarun]

Amme mathave ente asugangal poornamayum matti tarane kaividale ammmeeee tott anugrahikane 🙏🏻🙏🏻🙏🏻 ente shareerathil auto immune inte yatoru asugangalum undayirikale 🙏🏻🙏🏻🙏🏻

[mycharmedunicorn]

Can you take iodine if you have Sjogrens disease?

[ritahall]

Every exocrine gland and some endocrine glands will be affected in my experience

[mir]

Never known those nose problems.
There are so many more symptoms...