Rare Disease Day, 29 Feb 2012 - Official Video

February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. "Solidarity" is the theme of Rare Disease Day 2012. On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan "Rare but strong together".

Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand!

[Ihaveiih]

Shared on our website Twitter and Facebook pages. Please keep sharing this video!

[kaydeejay]

My son passed away from Niemann-pick type c nearly 4 months ago at the age of 7. I will continue to raise awareness for rare disease!

[TaraB]

I have a daughter with Congenital Insensitivity to Pain which means she cannot feel pain! It is extremely rare! We are going to celebrate Rare Disease Day!

[AsbestosMesoCenter]

Fantastic video! We've shared this on our social sites!

[megaflaminheart]

Anyone else feel as if these come in clusters. I am surviving more than one rare disease, and gave birth to a genuine miracle child. When times are tough, as they often are for us with me fighting with my health and her dad out of the picture. :(

[mrsmvennitti]

Thank you for this Video. I have Cryoglobulinemia Vasculitis with various other complications.
This is awesome! Please share this video.

[momoffuntimes]

I have 3 children with Angelman Syndrome which is rare, great video, I will share it too on FB.

[elizabethannsampson]

shared this on my fb page. hopefully more hits!

[SheWhoFeels]

This is so awesome! I definitely want to get involved! <3

[AnnemieHellings]

`k Heb deze video op mijn blog geplaatst en zal die zeker verspreiden !

[veciaugugustus]

Cystic fibrosis all my life. Stay strong, everyone. <3

[geraldgsw]

@jermainefr the prevalence of each disease is less than 1 in 2000. all the people suffering from all the rare diseases in the world add up to be hundreds of millions, not every disease afflicting hundreds of millions.

[treborskoorb]

Does this day only get recognized on Feb 29th? Because Leap Year only comes every 4 years. Just wondering.

[KateDanvers]

Wow, great video. Please, what is the song?

[tormabela]

@shattereddreams1993 song: Grégoire - Toi Plus Moi

[StefanoPasotti-Osteopata]

il nostro è solo un piccolissimo granello di finissima sabbia, ma ne siamo molto orgogliosi, dateci una mano a divulgarlo

[GunnWrights]

0:45 - What is his RARE disease? Rick Astley syndrome?

[jermainefr]

I just want to point out a problem with the math here. If you are 100 million people:
7 000 000 000
/ 100 000 000

70
Much more common than 1 in 2000. Just thought you might want to fix that number in your video.

[apetta]

@DaNyDaNy95 @jdanvers1988 Toi+ Moi - Gregoire

[StefanoPasotti-Osteopata]

laboratorio universitario per la ricerca dell' attività motoria nelle malattie rare LUSAMMR cercaci su Facebook