EURORDIS

0:02:01

EURORDIS Awards

0:02:39

EURORDIS Black Pearl Gala Dinner

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Assessing the Implementation of Patient Partnership in the European Reference Networks

0:04:45

EURORDIS Company Award for Patient Engagement 2021 - Takeda

0:02:46

Terkel Anderson - Danish Haemophilia Society & EURORDIS

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EURORDIS Black Pearl Leadership Award - Dr. Anne-Sophie Lapointe

0:05:48

EURORDIS Volunteer Award 2021 - Ingunn Westerheim and Rebecca Tvedt Skarbeg

2:16:41

EURORDIS Black Pearl Awards 2021

0:03:14

EURORDIS Black Pearl Award 2021 - Dominique Sturz talking about Rare Disease Week 2021

0:05:33

EURORDIS Company Award for Innovation 2021 - Orchard Therapeutics

0:08:16

Rare Disease Day 2013 Message from the European Rare Disease Organisation (EURORDIS)

0:05:06

Rare Disease Day: Dani's story

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EURORDIS Member Award 2021- AKU Society

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EURORDIS Black Pearl Members Award - Childhood Cancer International Europe (CCI-E)

0:02:41

EURORDIS Black Pearl Awards: Nominate a Rare Disease Star

0:05:51

EURORDIS Young Patient Advocate Award 2021 - Rachele Somaschini

0:08:08

Terkel Andersen, President EURORDIS at European Conference on Rare Disease 2012

1:22:29

EURORDIS webinar on the Rare2030 survey findings

0:02:11

EURORDIS Black Pearl Awards: Nominate a Rare Disease Star

0:02:04

Eurordis on Mental Health

0:09:42

EURORDIS Policy Event 2014 (1/8) - Welcome and Introduction

0:54:52

EURORDIS Webinar: #30millionreasons campaign update

1:25:51

2016 EURORDIS Awards ceremony

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Fabrizia Bignami (EURORDIS), speaks about 10 years of Orphan Drug regulation in Europe.