Polymyositis: Understanding the Rare Autoimmune Disease

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Chapters

0:00 Introduction
0:32 What are the causes of Polymyositis
1:23 What are the signs and symptoms of Polymyositis
2:36 What are the treatment for Polymyositis

Living with a rare autoimmune disease like polymyositis can be an incredibly challenging experience. This chronic illness causes muscle weakness and fatigue, making even the simplest tasks difficult to accomplish. But for those who are diagnosed with polymyositis, there is hope. With the right treatment plan and a positive mindset, it is possible to conquer this disease and live a fulfilling life.

My own journey with polymyositis began several years ago when I started to notice that my muscles were weaker than usual. At first, I brushed it off as just a sign of aging. But as the weakness continued to worsen, I knew something was wrong. After multiple doctor's appointments and tests, I was finally diagnosed with polymyositis.

At first, I was scared and overwhelmed. I had never heard of this disease before, and I had no idea what to expect. But as I began to learn more about polymyositis, I realized that I wasn't alone. There were others who had been through the same experience, and many of them had found ways to manage their symptoms and live a full life.

The key to conquering polymyositis, I soon learned, was to be proactive about my treatment. This meant working closely with my doctors to find the right combination of medications, physical therapy, and lifestyle changes that would help manage my symptoms. It also meant staying positive and hopeful, even on the tough days when it felt like my body was fighting against me.

Over time, I began to see improvements in my muscle strength and overall health. I was able to do more of the things I loved, like hiking and spending time with friends and family. I also started to share my story with others who were struggling with polymyositis, offering support and encouragement whenever I could.

Today, I am proud to say that I have conquered polymyositis. While I still have occasional flare-ups, I am in remission and living a full life. If you or someone you know is living with polymyositis, know that there is hope. With the right treatment plan, a positive mindset, and the support of others, it is possible to overcome this rare autoimmune disease and live a fulfilling life.

[christopherfothergil]

I had this illness here in the UK and my wife was warned i may not survive the disease. It was a Greek doctor in my hospital who found out the cause which was a allergic reaction to Citalopram anti depressive drug. I went from hill walking and driving to only being able to crawl on all fours and finally in a wheelchair almost death within two weeks. My wife was told to prepare for the worst. I was treated by high doses of prednisone steroid drugs and the change of anti depressant drugs. I was told 60% of my muscle mass was destroyed. yes as soon as i changed the Citalopram and placed on steroids with three days I left the hospital very weak but feeling a lot better.

[neetashukla]

Muje darmeto mayosytis h upay bataye please

[ApostolosKatsioulas]

I must be infected with polymyositis, both my legs ache badly; it's hard to walk, it's hard to perform lunges, it's hard to lay down. It's been at least one month that this has been happening. I am scared to death and I have no idea how long the treatment is going to last.

[TheMerdy]

My mother has polymyositis for about year and a half. Shes 59, it all started almost 2 years after she lost her brother, could it be the starter? she also started smoking from that time...
She had prednisone prescribed, and after a year she finally feels better. Is it possible to get rid of Polymyositis? To be fully cured?