Self-Advocacy and Improving Your Parkinson's Care

This Live Well Today webinar features a panel discussion of how to improve the quality of care you receive while living with Parkinson’s. Topics discussed include self-advocacy, palliative care, how to ensure your care team communicates well with one another, the role nurses can play in helping you live well, and more!

[Michael-hexn]

Outstanding episode guys and gals! Towards the end it was mentioned about getting to the point of acceptance of the diagnosis and then learning to live your best life. Something I need to work on. Denial, wishing it away and withdrawal isn’t very helpful.

[splashesin]

Excellent! Lot of things in this to remember and take some notes on. Glad it is recorded, and here to come back to. I am in a place where there's a bit of a drought on Parkinson's Neurologists. We have other neurologists focusing in different areas and surgical situations just not a person really on Parkinson's though I remember Lorraine I think mentioned they were trying to get with other's of us to find a way, to get a specialist.

[belindawallace]

I’m so glad I found this channel. I live in the UK and while my GP suspects I have Parkinson’s, I don’t have a diagnosis yet, I have an appointment with a neurologist next week. I stayed away from information for most of the time I’ve been waiting for the appointment as I didn’t want to get too stressed during the six month wait but I feel that now is the time to find out more so I go into the appointment a little more prepared.

Also wishing Larry a very happy birthday!