My Lymphoma Story: Undergoing Chemo & CAR T-Cell Therapy

Daniella shares her journey battling stage 2 primary mediastinal B-cell lymphoma, a rare non-Hodgkin's lymphoma. Her first symptoms were a cough that turned to bronchitis and night sweats. She was misdiagnosed with doctors saying it was pneumonia or possibly tuberculosis. She later got her cancer diagnosis after a CT scan revealed a large mass in her chest.

She underwent six rounds of R-EPOCH chemotherapy, followed by CAR-T cell therapy and radiation, experiencing side effects like hair loss, fatigue, and nausea. Despite challenges and setbacks, she eventually achieved remission.

#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #nonhodgkinslymphoma #lymphoma #lysm #primarymediastinalbcelllymphoma #chemotherapy #hairloss #treatmentoptions #cartcelltherapy

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[Video Chapters]
00:00 Introduction
00:30 My first symptoms
02:38 They found a large mass in the center of my chest
05:20 Living minute by minute
06:38 Deciding on my treatment plan
08:35 Being diagnosed with Primary Mediastinal B-Cell Lymphoma
09:20 My chemotherapy treatment plan
10:22 Losing my hair
11:46 Other side effects from chemotherapy
13:21 They found two more spots after chemotherapy
15:51 Getting Car-T Cell Therapy
17:10 The process of Car-T Cell Therapy
22:40 The survivorship is very difficult
24:10 The fertility preservation process
25:15 My biggest advice

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The interview has only been edited for clarity. The interview has only been edited for clarity.

[Sasbie]

She hadn't even had a chest x-ray when she was diagnosed with bronchitis and then pneumonia, so what were they basing these diagnoses on?! I can't stand the way doctors don't take the time to actually figure out what's wrong with people!

[lindag]

God Bless you. Thank God for your cousin the radiologist, being astute and recommending the cat scan. Being a planner to living in the moment changes ones whole life. Prayers for you.

[faithf]

You will be a great advocate for others! You speak clear & compassionate principles of your cancer journey. God sent you to the right health care providers & each day you will grow stronger. Psalm 41:3 ❤

[anitajohnson]

I ❤❤❤your strength! I am cancer free12 years and there are days I still feel fatigued 14:01

[Oversowhat]

I know it's not about this, but I don't think I've ever seen a more adorable human!

[LB-myej]

I’ve been where you are. Saw my doctor as I had a swollen lymph node, was referred to the hospital who saw me within a week. Had a biopsy and scan plus bone marrow biopsy and was told it was stage 3 non Hodgkin Lymphoma in the abdomen. This all happened within 11 days. Went through chemotherapy for 8 months then preventative therapy for 2 years to prevent the tumours growing again. I’ve been in remission for 16 years now so it all worked out. By the way living in the UK all my treatment was free even my parking costs to visit the hospital was free. The best of luck to you.

[joysgirlrachellejohnston]

Thank you so much for sharing. I am so happy for you being in remission!

[TungB]

Bless your cousin for helping you solve your condition. You clearly show how its ALL YOU when you know your health needs help. Good job being fierce! I can tell you're still scared, which is good. You WILL have to stay diligent. While you may always be genetically susceptible, I still think its ultimately caused by an environmental trigger, perhaps one to avoid in the future? I lost two friends to this exact disease (the young cancer killer), one quite young, the other made it into her early 40's before it came back and finally got her. She said crows followed her for some time after she was initially cured. I still miss both of them so much, they we're so alive and full of life. They were both Italian/S. European. One of them couldn't smell. The other loved salt, he would just eat it plain. I always wondered if any of those things were correlated.

[JackJack_frenchieboi]

My mom and sister had Lymphoma. My mom had Hodgkin’s and my sister was later diagnosed with the exact same Lymphoma as you. She thought she had pneumonia and asked to get a chest X-ray … she was a an Interventional Radiology Nurse. She looked at the film herself and knew she had Lymphoma. She’d seen many X-rays in her career. It’s been 15 years and she is still cancer free. She had RCHOP chemo and radiation to her chest. Best of luck to you, we wish you good health always.

[miked]

I’m praying for you, but you look great and are going to be fine!❤

[ralphdering]

What a beautiful story very uplifting. Thank you for sharing your journey.
You help me and many other people to see hope.. Stay strong.
and reach for the stars, young lady.. God bless you. ❤

[ryans]

It’s just hair at the end of the day it’s better to be clean and healthy than worry about loosing your hair. Thanks for your story I’ve had a few family members go through cancer sadly none of them are alive.

[debbriggs]

Am sure you have grown into a better person than the one you feel you lost track of. You are adorable. Thank you for this information. Many more blessings.

[drummersagainstitk]

Our prayers and support to you. God Bless you.

[dontfollowthecrowd]

you are so beautiful and clever. I wish you all the best and hope you have a long and happy life.

[Joanne-cd]

You will have a long healthy life. Your prayers will be answered and I will pray for you.

[annmarierevet]

Bless you for sharing your journey. You are a WINNER, STRONG ! and so is your mom. ❤❤

[anamaria-zoym]

You are so strong.I don't know if i take it like you...God's blessings to you and my prayers 🙏 ❤

[SculptExpress-gvjp]

Oh sweetie, I am so sorry for such trouble in life, but let’s hope for your full full recovery. They have new drugs every day that can get you out of this. All the very best❤️

[amytucker]

The LORD created all the things we need to have good health. I had squamous cell carcinoma staged at 4b not given much hope so went organic no sugar and keep carbs in the teens per day. Now 4 years out doing great, no cancer so please look at this life style