My Remaining CIDP Symptoms After 4 Years

Skype name: battlingcidp (remember you have to message me on the No Egg Craig facebook page to set up a Skype session with me)
Music by Approaching Nirvana
Song: 305

[rplittle]

I think its great that you are close to a full recovery. Wishing you the very best.

[cindystrother]

I AM SO HAPPY FOR YOU CRAIG YOU ARE A FABULOUS PERSON THANK YOU SO MUCH FOR YOUR HELP HAVE A GREAT DAY

[Starphot]

Craig, I see that you're doing better. My CIDP was a 37 or more year onset before it was diagnosed. The intermittent nighttime pins and needles pain was attributed by doctors with my chronic athlete's foot infection. 4 1/2 years ago that went full time nuclear with the 24 hour severe pain that actually put me to sleep. It took 3 years of getting the various painkillers from gabapentin to lyrica to ease the pain. None worked. After 2 podiatrists and my second neurologist it was finally diagnosed and treated. I'm 1 year off of the IVIg infusions and there is still some pain and lack of motor on most of both feet. That was due to the effect of the long onset causing more permanent nerve damage plus my over 60 age. Despite the constant severe pain during this time, I was still active in the amateur astronomy community during this time. Check out my videos.

[brianmartin]

Hey pal. I'm almost 1year next month with GBS . The doctor told me it was the worst case he had seen in his thirty years of experience. It took me out in 3 days to where I could not hold a fork to eat . Next month will make a year for me. Doc told me I wouldn't be able to walk for at least 3or4 years. It's not a easy road . But Im already walking with out the aide of a walker or cane . I can go few minutes. It's how much the nerves heal . The only thing that really bothers me is how it mentally breaks you down . It's took apart of me away . I got therapist that come in and work with me . The pain with me was there with me from the beginning and has never stopped. I was like paralized couldn't move but felt everything. I'm be 49 years old this Nov. I galdly to share my story with ya.

[esm]

I remember the first day I met you on my first day at Aim High and you taught us foot drills. here I am 5 years later and a 2nd year college athlete and we're still doing foot drills! must be something to them then haha I feel like they make a difference

[OneKindWord]

Chronic inflammatory demyelinating polyneuropathy (CIDP), another blasted auto-immune disease. Treating it with nutrition is a great idea.

[luisfernando-mmjt]

very helpful videos best luck to you. keep up the good work

[vikkigillespie]

I have fybromyalgia I cant sleep on floor .I. Bump my self its excruciating. Bareley

[thedrama]

Thanks for your videos mate.. What about heaviness and coldness in the feet?Did you experienced them. How long it takes for those symptoms to go away?

[laughinghahaheehuhu]

Hii dear ...can we talk ..plz ...m suffering from the same

[sateeshburada]

Iam from India suffering with gbs since last year how much time will get to recovery light weak ness in my right leg i can't lay down on floor walking with the help of walker i feeling very sad please tell me your opinion about recovery number of days sad Tear's in my eye's.

[depaulguy]

Hey Craig: Haven't seen anymore CIDP vids. Jus wanted to ask how your walking is. I feel am better and on only 4mg of pred now but my walking seems still a little odd. I can def walk long but get so self conscious about my walking and at times people ask if something happened. How've you handled it have you experienced walking issues earlier in your disease. I am almost at year two since diagnosis.

[spirittwo]

Look into urine therapy it might heal you completely. There is a free PDF online the book by John W Armstrong. Got productions is a YT channel. Lot of information there about the science of it.

[lindeboonen]

How long did you had numbness and tingling (pins and needles)?
I'm now 6 months with CIDP and i get ired of
I wonder if it ever will go away :-(

[rishitjoshi]

Hey hi how long time you got recovery from it my has cidp last 6 months he is not get recovery from hand & legs numbness & tingling

[sharath]

will stem cell transplant makes a permanent cure for cidp in a short time ?

[TheSniperboy]

My mom has Guillain-Barre syndrome right now . Also I'm her physical therapist because she doesn't have very good insurance . So I'm trying to look at all your videos to see what I can do to help her . So far right now I'm just sitting her on side of the bed and I noticed her feet will turn purple a little bit . I don't know if you had that problem or it's just her blood going down to her legs

[samkitty]

How come none of these videos ever mention what the cure was.
Don't post this if your intention is to tease us and look for attention.