Answering Your Crohn's Disease & Ulcerative Colitis Diet and Disease Questions | GI Society

This webinar from May 19, 2022, World IBD Day, features Dr. James Gray, a gastroenterologist, and Beth Nanson, a registered dietitian, answering frequently asked questions about IBD (Crohn's disease and ulcerative colitis). Gail Attara, President and CEO of the GI Society, moderates.
_______________________________
0:00 Intro
0:35 What is inflammatory bowel disease (IBD)?
4:05 What is the course of IBD?
5:08 How do you determine whether mucosal healing has occurred?
6:20 Can I stop my medication now that I am feeling well?
7:45 How does IBD affect bone health?
11:06 What are some of the signs that IBD is not well-controlled, and what do I do about it?
13:59 What should I eat if I have IBD?
23:18 What types of medications are used for IBD?
25:42 Can I manage IBD without medication?
27:00 Can I take a biologic medication indefinitely?
28:26 Do JAK inhibitors help treat IBD?
29:38 How can I reduce bloating?
32:15 Where can I get help with dietary management of IBD?
33:58 What are some resources for IBD and diet?
34:37 Can IBD affect fertility?
37:30 How does sleep affect IBD?
39:01 How do I maintain a healthy microbiome?
43:22 Can any supplements help IBD?
47:49 What is the role of surgery in treating IBD?
50:26 How does surgery affect diet for IBD?
52:18 Is IBD confined just to the bowel?
54:14 What does the future hold for IBD?
55:28 Final thoughts
_______________________________
FIND US AT

STAY IN TOUCH

FOLLOW US ON SOCIAL

TRACK YOUR DIGESTIVE HEALTH

The Gastrointestinal Society, a registered Canadian charity, provides trusted, evidence-based information on all areas of the gastrointestinal tract, and is committed to improving the lives of people with GI and liver conditions, supporting research, advocating for appropriate patient access to healthcare, and promoting gastrointestinal and liver health. The information contained in this video is in no way intended to replace the knowledge or diagnosis of your healthcare provider. We advise seeking a physician or other medical professional whenever a health problem arises requiring an expert’s care.

© 2022 Gastrointestinal Society.

[kathleenkayk]

This is from my experience and research of published articles. If this helps anyone suffering with uc, I celebrate you. I believe uc is a symptom and the underlying cause is multi-dimensional. Almost 60 yesrs ago, the primary cause for me was my inability to deal with rejection and cruel gaslighting. The assault on self image as a teen in process of finding who she is changed behaviors. Self care, heallthy eating, mindset all deteriorated to neglect and self hatred. It is a fact that deficiencies of B1, B12, Folic acid, Iron, Mg, Zinc, Vitamin C, Vitamin A & D, omega-3s result in mucosal ulcers in corresponding degrees. Bacteria invade these breaks in the intestinal mucosa and stimulate a somewhat violent immune response. Yes some food sensitivities can set up the GI tract for problems. For me it is nightshades, dry beans including soy products, commercial baked goods, refined sugars, convenience foods loaded with preservatives. For 20 years I had zero symptoms after recovering from a long hospitalization for sepsis and toxic megacolon. I did this with a diet primarily of chicken, beef fish, a variety of vegetables and fruits, lots of greens. Almost no bread, rare treats, limited dairy. I did this on my own and kept my body very fit. I rebewed my Spiritual connection with God and set boundaries for relationships. I enjoyed creative outlets like singing and art. About 20 years later, When I could not leave a hostile and stressful, job environment my healthy diet reverted to convenience foods or not eating at all. My gut blew up after antibiotic treatment for bronchitis. It spiraled out of control rapidly and I had life-saving surgery that impacted my nutrition permanently. So I now replace a lot of the vitamins and minerals daily because my transit time is less than 2 hours. Dehydration is a daily battle and I have 2° stage 3-4 kidney issuesbecause of it.
My point is this. If you are troubled with IBD or uc, self assess your diet, your lifestyle, how you deal with negative emotions. We sensitive types tend to internalize emotional pain, and that results in stored trauma. Resolves nothing. In my case, uc was my body's response to self neglect and internalizing emotional stress and negativity, and not loving me enough to take care of myself spiritually, physically, or emotionally. It really is all about balance.
My heartfelt desire is that if you benefit from my experience, you find the best ways to eliminate GI issues permanently.
I have a MS in Microbiology and Preventive Medicine, I am 75, and I expect to live well to 100 and beyond. Best wishes for your good health, may God bless you with love.

[markmcla]

We are servants to our guts. This was a very informative discussion. I'm really glad that Remicade is considered safe for long term use. I just started infusions of Remicade/Inflectra at the end of March 2023, and this medicine has worked amazingly well for me. It's like a dark cloud has left me, and I have hope for the future! As for probiotics, I recommend homemade kefir. I make my kefir with raw unpasteurized whole milk that I buy at Sprouts Market. I look forward to my kefir smoothies every day. -I wish other ulcerative colitis patients the best of luck!

[ruthpatton]

Low carb doesn't have to be very restricted. Doesn't have to be high in fat either. Low carb and fasting put my UC Into remission for the last 5 years and I'm still in remission.

[floridaannmartin]

Thank you for sharing this information. So much misinformation out there. These two professionals seem to be very well rounded with accurate information on IBD. This is the first dietician
that seems to actually understand IBD and the patients experience with the disease and how hard food is to figure out. I'm so happy she talked about soluble fibers.

[alexxiabell]

I'm 50 and diagnosed at 18. This disease is different for everyone. What works for one person, might not work for everyone. Understand your own disease, foods that trigger, stress and other variables. Keep a journal of your journey through this disease. Don't take bad advice from "experts" on youtube who aren't doctors and GI experts. If you're looking for a You can stop. One person's journey, or long term remission does not constitute a "cure". Your disease is yours, and will be very different from everyone else's. Be realistic about your healing, journey through this.
Get a good GI team and listen to them. This webinar was excellent, professionals and doctors who are experts.
Keep up your spirits and get supportive people in your life.

[hildekaldbast]

Perfect questions and very informative answers. Thank you. I am in a UC flare right now and learned a lot. 🙏🏼

[andyfromdenver]

This was a great discussion. Dr. Gray and Ms. Nanson provided helpful diet info and examples. Thank you. -Andrew (GI/HEP NP). Sadly, hard to get a good dietitian locally.

[bootsiemcgee]

So glad I took the time to listen to this. I've developed a lot of problems over the last couple of years. I'm talking arthritic like joint pain and swelling, rashes, blisters, new forms of eczema, I was recently diagnosed with hidradenitis suppurativa which is an auto inflammatory condition itself, and now I'm having IBD like symptoms.

Every doctor I see keeps brushing it all off, they keep saying it's all unrelated and a coincidence that things flare up at the same time. No one would test me for anything and they just give me topical treatments for my skin or extended antibiotic therapies. Now I know exactly what to ask about when I book an appointment.

[asyard]

There is no doubt that irritable bowel disease (IBD) is horrible and life challenging even sometimes extremely life changing diseases to me. Now it's hard for me to maintain my financial, physical and also my family life with this challenge. You can't be active mentally and physically always by having such diseases. Every time you need to concentrate to be with your health betterment. Without that concentration you must be collapsed by extreme pain and others related to ibd. So as a patient should try to be better to get the challenge first by giving your health time and better treatment with good food. Then you will be active to concentrate on your good life. Good wishes for all the ideal patients..❤️✌️

[marysiadzierzek]

Thank you both very much for the fantastic information. Im a new sufferer & this information is so informative.

[joelbetancourt]

So cool watching the MD give that much attention and genuine interest to the Dietitian 😁

[abiyotasfaw]

Thanks for useful conversations you have made with the professionals on IBD, and keep up with the good work

[aquied]

Clearly related with what we eat, despite not being proved yet. If it is a bowel dis ease, probably what we eat and drink have a big impact on it

[laurenbarber]

This was the most helpful video ever!!!! Thank you!!!

[mickl]

IBD is rising because of all the PROCESSED foods and needless chemicals in food.

[grandpatsworld]

Thank you, I learned a lot and have a better understanding of what to look for in my future. Appreciate all.

[Claudiaschloeter]

Thank you so much for such great and very educational video. As my 14 yr old son just got diagnosed with Ulcertive Colitis. I’m trying to educate myself on this disease. Once again thanks so much. Great questions and they did a great job explaining and answering every question.

[Surendramanna]

Thanks to all of you for sharing so much of information, living with UC or Chron's is difficult, and it's important to understand that it is a condition that will last for life long so, accept it and take action as necessary, and get it in control and be happy, hope someday our pharma industry would look for medication that will cure than just controlling

[rodneysteen]

I'm only a carpenter \mechanic not a doctor but I sure have herd from alot of doctors and they think differently about this problem. My diet has been way more effective than any medication IV been on. Carnivore diet with supplements has really helped me alot . the advice this lady is giving would put me back in the hospital.

[bronwenbaker]

THANK YOU! I've just been through the diagnostic process and confirmed long standing Crohns and Ankylosing Spondylitis now at 55yo after almost 20 years of my Drs telling me my blood tests for RA/Lupus, etc are negative so I don't have a "physical" condition, my joint pain, crippling fatigue, peripheral neurothapy, "brain fog/confusion, cheonic (as in years!) watery diarrhoea 12 - 15 times daily (I cant even remeber whatvit feels like to have a "formed stool"!), and depression due to being "dysfunctional" is "menal-health related" (translation: all in your mind...) YES, I DO have mental health problems that are very severely exacerbated by the ongoing physical disability that I somehow caused by my dysfunctional thinking...) but if I'd have seen this video 20 years ago maybe I would have felt confident enough to seek another opinion and push for proper investigations and my life could have been very different... ANYWAY... onward and upward... I'm on the right path now and THANK YOU to all for putting this out there 🙏