Salt in My Soul - Diane Shader Smith

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Diane Shader Smith is a writer, CF advocate, and mother of Mallory Smith, who died at age twenty-five from a superbug infection secondary to her cystic fibrosis. Diane compiled and edited Mallory's diary entries and published them as "Salt in My Soul: An Unfinished Life." Diane speaks passionately and perceptively about the hardships of living with chronic illness, the patient experience, organ transplant and phage therapy. This presentation was part of CFRI's Virtual 33rd National CF Education Conference on August 1, 2020.

CFRI's 33rd National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.
  1. Cystic Fibrosis Research Institute
  2. cf
  3. cystic fibrosis
  4. cfri
  5. cystic fibrosis research inc
  6. conference
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Комментарии
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You’re amazing, Malloy’s Mom. I wish everyone knew about her book and your earlier one. Thank you for all your work. I’m so sorry for your loss.

listening
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I found ans watched your daughter's documentary and it really made an impact on me. Mallory had a warriors heart and a graceful soul. Thank you for sharing Mallory's story, I am better person for it.

talasblueocean
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I can’t agree with you more about pet therapy! 🐶🦮🐕‍🦺

listening
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I wish we could have had Trikafta earlier.

listening
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We can’t get it at all here in Canada, how long have you had it in the US now?

gordo