CCSVI and MS - National MS Society

MS Learn Online is the National MS Society's online educational webcast series. This video, recorded in early June, 2010, features Kate Milliken (a woman living with MS) and Jerry Wolinsky, MD. Dr. Wolinsky describes the hypothesis of chronic cerebrospinal venous insufficiency (CCSVI) put forth by Dr. Paolo Zamboni from the University of Ferrara in Italy and what we need to know to better understand it.

Studies being funded by the National MS Society and the MS Society of Canada are underway to carry out significant steps needed to confirm the phenomenon originally described by Dr. Zamboni and resolve the questions raised by him and others as to whether CCSVI is a cause of MS or related to MS in some other manner. Dr. Wolinsky and a team representing researchers from diverse specialties at the University of Texas Health Science Center at Houston are among those grantees These studies will also resolve conflicting data from previous research, such as how frequently CCSVI occurs in MS, and how often it occurs in people who do not have MS. If blockages are found, the findings will speed the way to determining whether therapeutic trials to correct them will be helpful in improving or altering MS disease process.

Adding clarity to the relationship between CCSVI and MS is essential in assisting people with MS secure any treatment they may consider. Medical institutions and health care providers require research data confirming the validity, necessity and safety of any procedure they provide, and in their view that data is not yet available as it relates to the relationship between CCSVI and MS.

[wrangler]

@AlexLopatenco Arteries can resist external pressure by regulation of the heart. Veins aren't guided by pressures of the heart, they are based within balance of anatomical function and structure. Restrictions of fascia or laxity of joints, spinal deformity and slightly prolapsed organs by injury or disease process, tends to push on veins and could lead to drainage issues. This isn't solely a vein issue, it relates to entire anatomy.

[wrangler]

A study showed MS patients are 10 to 11 times likely to have a connective tissue disease called Ehlers Danlos Syndrome. Dr.Diana Driscoll has EDS and started getting MS. She had one brain lesion and tested positive for CCSVI. She is doing test on EDS and MS patients, some have both diagnosis. Many people with EDS go on to develop MS later in life.

[wrangler]

@AlexLopatenco I believe the reason some people may have no Malformation of the veins in the azygos vein or the internal jugular veins and still have been diagnosed with MS, is because the problems in the veins may be in tsomewhere else in the body. Perhaps placing the body into a certain shape helps start the stenosis by tissue restriction and laxity.

[Lynneheal]

there are more of us with MS worldwide who know whats realy been going on and will NO longer particiapte with this society no more because you have been so NEGITIVE

[wrangler]

@AlexLopatenco A certified Neuro Chiropractor whom also studied anthropology named Dr.Flanagan a.k.a the Upright Doctor Proposed MS had a higher propensity in people with whiplash injuries and misalignments of the spine causing vascular issues. But he also proposed that MS occurs higher in people with Ehlers Danlos Syndrome. Dr.Flanagan also proposed MS, Alzeimers, and Parkinsons were vascular issues.

[wrangler]

Kate Miliken would do well to get tested for Ehlers Danlos Syndrome as many tend to have a very similar look. Kate Milliken would do well to read on fascia and what causes venous stasis when the trouble dosen't involved a scared vein or damaged valves.

[lifetheuniverse]

So it's been a decade... Does anyone have new studies?

[AlexLopatenco]

/watch?v=Jikh7O8nr_E
This is what everyone of us should listen to!

I have MS and I surely have CCSVI. These two are just talking with no reason... I'm sure, most of us are more competent in MS then these two are...

[wrangler]

@AlexLopatenco Dr.Diana feels those MS patients that may be affected by classic type EDS shouldn't have a lumbar puncture due to poor healing of the dura. They are known to have CSF leaks years later even after a successful blood patch.

[cmozena]

This is a classic response from the MS Society. CCSVI is not a phenomenon. It's a real medical condition of our vascular system. How the heck the NMSS can continue to try to downplay this is sickening.

[CheerleaderMS]

Disclosures of financial relationships: Dr. Wolinsky has received honoraria as a consultant or advisory board member from Antisense Therapeutics, BC Decker, Bayer, EME Serono, Genentech, Sanofi Aventis, Teva Neuroscience, and USB Corporation; royalty payments from Chemicon International; and research support from the Clayton Foundation for Research, the National Institutes of Health, and Sanofi Aventis.
Dr. Wolinsky makes money off of MS.

[bmunkres]

it's funny - I was thinking he was describing what we had done with MS since Charcot described it in 1868, a string of hypothesis, this is what we have been operating on for years in MS. This is not a point in CCSVI - it is the only thing currently bringing any kind of results for MS sufferers, I hate fear mongers.

[James_David]

Examining ccsvi is a threat to the the pharma companies’ drug-only treatment of ms, which can earn them around 30k a year per ms patient.

[SHIRLEYRENSHAW]

Just incase you want to read for yourself here it is. I cannot put web address here. Google this and enjoy!
MedscapeCME Managing Progressive Multiple Sclerosis: Addressing Challenges in Diagnosis and Treatment.

[caper]

these neuros are full of themselves or something else

[JayneThomas]

Just what pharm drug were you on whenn making this completely biased video...your research? was based on what? Pharm pay outs?

[wrangler]

@SHIRLEYRENSHAW Don't mean to exaggerate but seeing people in my life to be effected by undiagnosed EDS, and studying the traits of EDS features, and with the agreement of my doctors, it should come as no surprise I would examine traits. He has the inward eyelid fold that slightly deviates down from the center of the eye leaning out at the ends in relation to a oblong face. Wide eyed inebriated look and a deviated septum common among many EDSers. So this guy may have something nasty coming.

[mamadawnna]

bashes CCSVI then pushes the drugs, typical NMSS/MSS behavior.