Comprehensive Treatment for Lipedema: What You Can Do

What can you do to make life better for yourself with lipedema and lymphedema? There are proven methods and strategies as well as innovative interventions that integrate various complementary modalities. Join us to learn how to combine the conservative with the creative to enhance your own care.

[dorisdaisy]

Hello, I just turned 60 and I’ve been searching 45 years to know what I have. I just discovered this a few weeks ago, I didn’t cry but jumped for joy because I finally understand and still don’t understand what this is. I thought I was deformed, it cost my marriages, never going bathing, dressing out in bathrooms, shy, ashamed, etc…. I’m at 160 lbs but always had the toughest time loosing weight. My legs are so ugly, my butt is big and my skin looks like it’s hanging, full of hail damage, as I call it. Thank you for helping me feel like I’m not alone, there is hope for all of us who suffer with this condition. 🙏🏻💖

[kellyanng]

I've been a nurse and a professor for over 20 years and i just heard of this 2 weeks ago. This is me. I am the visual poster child for lipedema! I'm so grateful to be connected to this knowledge now.

[maddyo]

I remember when my mother unfortunately passed away, her body had gotten so thin from her disease, but her arms and thighs were still huge. When I first learned about lipedma, that was the first image that came to mind. The top of my arms and thighs NEVER thin out, and I'm so grateful for all the information starting to become available

[leedunstall]

Thank you for this! Very informative. It took 14 years for my diagnosis exactly! One day at a time I do all that I can to take care of myself. Lost the weight. Built my team. Loving myself and loving life. Thankyou for your contributions x

[stephaniecraig]

This was such a wonderful presentation. It’s so lonely going to a md and being told to just stop eating and lose weight!

[jeanmjones]

WOW!!! Very impressive information all in one place!!! This is exactly what I need right now! I recently went to a free vein check clinic and asked evaluator if I could possibly also have one of the fat disorders. She said she didn’t think so but the person who was going to fit me for my compression could evaluate me for it. I made the appointment and have went just one time and seeing her has completely opened doors to discovery of more health issues I’ve been having. She suspects I have lipedema but isn’t for sure as yet. She did one lymphatic massage on one leg and next appt will have full massage and then be wrapped. Going to go twice a week for starters. After I have worn compression awhile vein clinic is sending me for a leg ultrasound to check the veins. Massage therapist said I will know everything I need to know about my leg conditions after the ultrasound. I am eating up all the information I can find! I am happy and excited that someone is listening to me no trying to help me. I feel God is really blessing me through this. I have a torn minicus and damage to same leg knee cap so now what I am pondering is if while starting this massage/wrapping/compression if I could also go ahead and see my orthopedic concerning my extremely painful knee. I cannot kneel on it due to the pain and yard work season is upon us! One of my passions for exercise. My ortho dr more then likely is not knowledgeable on fat disorders and surgery. I would love to be a part of a face to face support group that involved someone knowledgeable on lipidema. I am 64 years old and my body changed began with fibrocystic breast disease in my early twenties. I used to have problems GAINING a weight as had a fast metabolism and was always extremely thin. What a change. Looking for family involvement and had an aunt who had fat issues plus in immense pain. Also my maternal grandmother who was also a diabetic. In her last days she suffered miserably with huge legs. The word needs to get around about such conditions so people can get help. In my late thirties I asked my PC why I had nodules under my arms. She did all kinds of labs finding nothing more then high cholesterol and dismissed it after that. I now have nodules in my legs that are very painful to the touch. Thank you ladies for all you have done and gone through in bringing this information forward and to the light. May the good Lord continue to bless you and strengthen you as you work to support and inform all of the Lippy Ladies!!! 🦋

[GabM]

To my body: “I want to be your friend!” I burst into tears when I heard it!!!
Thank you! 🥰

[Pamela-hrzi]

Thank you. I'm just learning what's wrong with my legs. I'm so embarrassed by them. I don't wear shorts and I live in Florida. I won't date. I've been single for a long time. I use to have nice legs and butt when I was younger but I do recall they were thicker than the rest of me. I've always had hormonal issues. My legs are heavy and thick and it's getting harder and harder to walk. I bought a mini trampoline to help me move since I haven't exercised in quite awhile since my knees and ankles go out on me. Hopefully the trampoline will help. I just put it up. If not, I'll be looking into liposuction. Hopefully my doctor will be on board. Good luck to all.

[AnchorMoments]

I just got diagnosed with lipedema. I am so glad to watch your video today! I recently got a Lifepro vibration plate on Amazon and am liking it. I am hoping at some point to get a Lympha Press, if needed for me. I also need to buy some compression leggings and arm sleeves. I have type 2 diabetes and am on Mounjaro and am starting to lose weight which is helping, too. Thanks so much ladies for this video! So helpful! I am stage 2 lipedema and do not want it to get worse. I love swimming and it is summer now. I know it makes my arms and legs feel better, too.

[agapelove]

I read the title and started screaming "Where?" I am in agony and believe all people deserve to feel beautiful and should be able to move freely. Pain free is how we ought to be!
Lipoedema is curable with fat removal. Why are American doctors not doing this? 😒
In high school I had a 24" waist and a 36" butt... Now I am significantly larger.. My thighs are huge and heavy, and so are my upper arms. I am in daily pain.
NO ONE SHOULD EVER GET TO STAGE 3 MUCH LESS STAGE 4! In China you pay your doctor when your well... not when you need an intervention.
Why are we not more aware of this disease? It was first mentioned in the 40's. Doctors should not be considered doctors if they ignore the Lymphatic system and know nothing about it... Sorry, just a bit bitter!

[minimin]

I'm sure my grandmother had this. She had not much help from doctors :(

[PaperMario]

I use a vibration platform for pain. 15 min per day.

[sharonbranch]

I am so incredibly Grateful for you ladies💖💖💖

[shoshanachavab]

Thank you so much for all of this. I have lymph swelling on both legs and now wear foot to knee Velcro bandages and am walking and have lost 13 K I now weigh 60k but still feel so heavy and so so so sore after walking. I am doing the breathing. Also my skin on my legs is like a snake and rough. If I exfoliate my legs bleed. If I brush my legs bleed. I have now found a nourishing crème and am using it twice a day and if I miss out one session the roughness comes back. I have had here TIA a with falls causing concussion. I have a monitor in my heart now to check on me. Oh well I try my best but just do not know where to find this type of help here in Israel. I do go to a therapist and she is great. I am now trying to get into a swimming program with a physiotherapist. I am trying to find out about those pumps and am looking for my lymph at age massage on my legs. I do do very light drainage with my hands twice a day. My legs don’t look anything these women you have shown TG but just don’t want to get worse. I also have fibromyalgia. Just lying here with my legs raised filled with hope to find all the help I need.

[AnchorMoments]

I am a new subscriber! Thanks again ladies!

[beabrown]

Thanks very much!!!!👏 helping me alot. THANKS Beatrice from Australia

[lorrainenicoletti]

PLEASE RECOMMEND DOCTORS WHO UNDERSTAND LIPEDEMA
i live in the New york city area.
I am desperate to connect with Doctors etc who can help me,
im 68 and this started growing in the Last year!
HELP ME HELP ME

[cindyparet]

I live in Utah and can’t find one doctor that knows about Lipedema.

[joankeckstein]

My doctor recommends going to lymphedema clinic. Unfortunately the Toledo area is short on certified therapists. There is a 2 to 3 month wait to see a therapist. In the meantime I am trying to find ways to help myself.

[leonienolan]

I think I have this I'm devastated 😢