Focus on adults with juvenile myositis, Dr. Anne Reed

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This is a session from The Myositis Association's 2019 Annual Patient Conference.

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💻 Originally aired 2019.
  1. The Myositis Association (TMA)
  2. Myositis
  3. Myositis Family
  4. Myositis Heroes
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I have JDM. Dx'd at 7 and now 46. My mother also has it and we're the first mother/daughter in medical book history!

daynamosby
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I am wondering, when you had symptoms as a kid, but no doctor ever diagnosed it, and you show up as an adult how will the doctors be able to find out if it is juvenile Dermatomyositis? In this special case, no antibodies are found, weakness and pain are most present, rashes are coming and going, calcium found in bones of fingers and toes, ck around 1000 to 500

NickUncommon