IS SURGERY A CURE FOR GUT MOTILITY DISORDERS? STOMAS AND GUT MOTILITY ISSUES

5 weeks post op and I feel like a new woman! But there is a BUT. I am not completely out of pain and discomfort. Despite my gut symptoms being DRAMATICALLY better I am still struggling with my stomach. It feels like phase one is complete (stoma surgery) and now I have to move onto phase two (improving my stomach- gastroparesis).

Unfortunately for many, surgery is not the last piece of the puzzle , it is just a significant part of it.

In this video I explain:

✅Why stoma surgery isn’t necessarily a cure for gut motility disorders
✅How to manage your surgery expectations
✅How to see surgery as a positive step in your journey rather than the end result

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Let's connect on IG:

[lisarado]

I no longer have peristasis in my colon. I need lots of laxatives so I can go. I feel sick most days. My dr said don’t rush surgery. Keep taking laxatives until they stop working. My GI said I could come out worse than when I went in. I don’t have a choice because without a colectomy or colostomy I will die. I will need some type of ostomy. I’m scared but that’s my life. This has ruined my life. I hope surgery can help somewhat.

[danhosmer]

Warning: Anyone without a gallbladder who gets an ileostomy may experience extreme dehydration and electrolyte imbalances which can be dangerous

[sharonakleinpoelhuis]

I just saw your video, right now I'm waiting for ny surgery. To get out my colon and get a leostomy or a Ileorectal anastomosis. I'm scared because I have to choose what's the best for me and I'm feeling so sick for the last 24 years... I don't know what I'm gonna choose but this video has giving me more hope for the future. Thank you for that!

[chfyndo]

Oh my goodness, I needed to hear this. I am considering having surgery for this long standing condition and am so scared I’m doing the right thing 🫤

[jeanmank]

No regrets! I put it off for 10 years and nearly died of an intestinal obstruction. He found 80% totally non-functional. I also have poor pelvic floor function. I had a total colectomy and a permanent ileostomy. It isn't perfect. There are many foods I can't est.

[sheldonlawrence]

its now May 2023....how about an update? you are terrific!

[bethharris]

I would love to talk with you. I am awaiting an ileostomy. I have slow transit constipation and delayed gastric emptying. I have been trying to find people with similar struggles to mine. I've been told exactly the same in terms of not knowing if it will help, but we are out of options. Thank you so much for sharing this!! X

[sjpugsie]

Well said, been going through this for 14 years. All the misdiagnoses are what really gets to me. Until I saw this, I couldn't imagine anyone knowing how I feel. Thanks 😀

[alysonp]

I'm so happy I have come across yr YouTube.
I have hEDS, gastroparesis, PoTS, esophageal dysmotility, bowel motility disorder same as you hun.
I have a NJ tube in at the moment Nd it's been in since July last year and been waiting 2 years for my ostomy.
I am on the list for a loop ileostomy and when I read a bit about it I freaked out and been looking for someone who has one and I can across your YouTube.
I will be catching up on all your videos.. the 1st one I seen was latest 2.

[sarinirangedera]

thankyou soo much ♡♡ this video was exactly what I needed.Thankyou for your honesty and compassion to help others.

[meaganlaplant]

Oh my gosh girl ! I needed your YouTube channel so badly! I have EDS Mitochondrial Disease MCAS GI DYSMOTILITY Gastreoparisis and chronic pseudo obstruction. Ive been considering a ileostomy my medical team has suggested it to me . I needed to hear this video though . Here recently I've been putting all my hope and thoughts into this ileostomy! I kept thinking this is the fix . But I've benge watched all your videos and am just realizing that thats not the case ! It may not be a 100% fix . It may be just another tool to help me better manage my bowels . So I am spending 3 to 5 hours in the bathroom trying to relieve myself with enemas and laxatives . It has taken over my life ! I have 2 children and I am missing life as im a prisoner in the bathroom. I know you've been struggling with blockages . Do you regret the surgery? Has it improved your quality of life? Im so scared but I'm also hungry for relief! Thank you for sharing your experiences as I truly needed to see them to help me as I walk this road. Much Love and Many Prayers to you 🙏 ❤

[imeldamartin]

My husband 64years old now, suffering feeling sick most of the time specially at night for 5years but getting worse lately even with some medication, feel better at daytime when working. He's been diagnosed with chronic lower esophageal dysmotility and probably somewhere else in the gut for about five years but just diagnosed last year. We're not confident having sugery which it seems the last choice if everythings not working.

[Michael-MYR]

I am lucky, that the removal of my colon does cure me, but will have the bag for life. I am okay with the trade...keep smiling

[ashtongoodlad]

This is me! I have colonic dysmortality, slow transit, outlet obstruction, obstructive defecation! I have been through irrigation, tablets physio and not helped so I was desperate for a colostomy and in the end my surgeon agreed that it’s the next thing too try

[skyerobinson]

Sounds like the stomach issues are what I'm going through how did you treat them? How are you now 2yrs later?