What is encephalitis?

A short video about what encephalitis is and how those affected are supported by the Encephalitis Society.

[junchongko]

My wife died last November 28, our life as we know it was turned upside down she had lupus and viral encephalitis. Its hard cause my wife died in front of me. She died after 8days in the hospital. Please pray for those people who are going to this ordeal. Words could not describe how painful it is to lose someone. Now i have to raise my daughter age 7 alone.

[adantorres]

Wow In November 17 I’ll be 7 years I survived encephalitis I’m truely blessed 🙏🏽💪🏽

[louiegatchalian]

I thank GOD that i survived this deadly sickness in '98 when i was in LA, Calif.

In 1999 after studying, working, and living in the USA for 16yrs., i decided to go bck to my home land- Philippines.

Now, i'm 67yrs old and still taking anti seizure meds.

What i had gotten is medically termed as ' Viral Herpes Encephalitis' - infection or inflammation of the brain.
How i had gotten it is still unclear to me at present.

[nawalhammad]

My son caught encephilites in october 2017 he was almost 4 years old .he caught it from having H1N1A .he was in a coma 4 about a month on a breathing machine .he lost the ability to walk, talk, swallow and do anything on his own.after waking up from the coma thankfully he was able to breath alone and off the oxygen machine.he is now using a feeding tube g-tube ..is able to swollow abit .he is taking physio and occtupational therapy .he is recovering slowly thankfully

[devkamal]

I got encephalitis this year around June, given the impact covid as understandably had on the NHS and its services I am hugely thankful for the Encephalitis Society both for supporting me and helping me to educate others, thank you so much!!

[lotticonway]

I have had auto immune encephalitis since April. I’m still recovering now and hoping that it won’t leave any permanent damage. I still have memory problems but it’s so much better than it was in the beginning. I’m lucky to have lots of support and all this medical knowledge delivered to me for free!

[toyatoya]

I am a survivor too. I survived autoimmune encephalitis.

[yourguide]

I had encaphelitis as a 7 year old. (More and more sure as a result of a vaccination!!) Was in hospital for a week and recovered. But now...50 years later... life is becoming more and more a struggle. Dead tired! And so many more health issues! And needing to fight for recognazion by doctors etc. I had to give up my job! Sold my house! Having a relationship is an enormous struggle!
Wishing all you the very best! I was lucky to survive... as far as you can call it lucky...

[angelesmarcosdeleon]

Yo soy Superviviente de Encefalitis hace 3 años. Al estar en coma tengo una lesión cerebral que me afecta vista (fotofobia inmensa), oído y en un futuro la Memoria. Me mantengo positiva y con calidad de vida. Logre seguir conduciendo. Lo que intento no pensar esk soy Esp. de Alzheimer es mi pasión haberlo estudiado y el futuro puede depararme algo insidioso o no. Miro al frente y a vivir el día a día sin dejar de SONREIR como sea. =))

[ollybarker]

I had Encephalitis back in 2020 - age 21. I got taken by ambulance to the hospital and it wasn't long before I had a Tonic-clonic seizure. That stopped me driving for 1 year. Loosing my licence stopped me from going out of my small town to see friends. Where DVLA would not pick up the phone, It was 20 months later where I got my licence back. I've lost contact with most of my friends now which makes me want to keep going out to meet new people and explore more alone.

I had a job age 15 to look after disabled people 4 weeks of the year and by the time I had turned 20 I got myself a job Rolls Royce, Chichester on the rework section. It's now been over 2 years and I have not made it back to Rolls Royce. I'm not sure if I will manage to get the Knowledge back to return.

Last month I met up with a teacher from school who also had Encephalitis many years ago and talking about it made us feel so much more stable knowing that we're not the only ones. One day I would love to meet up with more people, who has also had Encephalitis, to have fun and have more events which we will never forget.

[kerrywallen]

I have had this auto immune encephalitis since January 2021. I’m still recovering now and working on my short term memory. It started out with some crazy headaches. Luckily I went to a hospital who had a doctor who knew about it so I could be diagnosed quickly and get treatment. I’m in Canada and I’m grateful for the help I received. #canada #kerrywallen

[fluffypeaches]

I was diagnosed when I was two years old and I’m still living with it every day!

[Christknight]

I had encephalitis as a kid.. it effects you the rest of your life. I have scaring on my brain and it developed into epilepsy

[tinaclarke]

I caught it in september last year and still going through it now it's a horrendous illness were people look ar you and think your normal
But on the inside your weighted down so heavy and can hardly walk plus your memory is shot 😮😢
It's a horrible crippling disease that can infect or inflame your brain 😢😢
And can take months to get better if your lucky ??
Which I am I'm still here
So I truely feel for anyone who gets this to stay strong and positive even though it's hard

[bleonhard]

Measles encephalitis almost killed me at age 6 going on 7. Paralysis and coma. When I awoke from the coma, I could talk but not walk. I taught myself how to walk again even though I was told I would not ever walk again. In those days, there was no vaccine and no rehab. 1958.

[mustafaaykol]

My 7-year-old daughter was diagnosed with ANTI-NMDA Receptor encephalitis 45 days ago. My daughter was treated with ivig and plasmapheresis. She was given 4 doses of rituxsimub, but she still hasn't recovered, why is she recovering so slowly.

[noelgarcia]

hello guys, my niece is survivor for viral encephalitis in 1year & 9months😭😭😭

[jamye]

in 6 th grade I had a very rare type of encephalitis I was in the hospital for 7 weeks not knowing if I was going to make it

[annemaadrieheus]

Ik kan geen Engels schrijven maar ik woon in Rotterdam Nederland ik ben 48 jaar maar, ik heb ook al van mijn 1 jaar encefalitis mijn linkerkant de fijne motoriek is weg en heb moeite met concentreren. Ik heb van mijn 1 jaar tot 18 jaar therapie gehad de meeste mensen om me heen van instantie 's denken gelijk dat je ook verstandelijk beperkt ben omdat je een hersenziekte heb gehad en houden je dom ik vind dat zo onterecht weten sommige mensen en instantie's wel wat de ziekte inhoud ook omdat het heel weinig er van horen. Je hoort wel veel over hersenontsteking maar hersenontsteking hoor je bijna nooit dat wou ik even kwijt groetjes Annemarie Heus uit Rotterdam Feyenoord Tuindorp Vreewijk Holland

[sarahp]

I had encephalitis at 14 an it is really hard an I had the bad bit of it an we didn't not even now about it before an I have bran damage that cantals my anger. It really not nice