Research Roundtable on Epilepsy Diagnosis

Getting the right diagnosis can be challenging and may take months, or even years. In this webinar experts and people with lived experience discuss why it’s so important that everyone gets the right diagnosis as quickly as possible, and how our research is helping to make that happen.

[sheilajaeger]

Took at least 6 years for my son’s diagnosis at age 32. He was admitted to A&E more than 10 times and weekly in 2019-2020 before a wonderful A&E Doctor asked me if I’d considered epilepsy. He had been diagnosed with alcohol problems and it was almost a foregone conclusion that he began to drink because he felt so bad. But even dry, he still experienced them until he eventually got his dx in 2020 after much persistence from me his mum and the intervention of one single fantastic doctor we chanced to meet. Not totally under control now, but certainly no where near as severe (previously broken limbs and pneumonia having fallen and inhaled his stomach contents).