Overview of Urticarial Vasculitis

0:00
9:10 The skin and vasculitis
13:52 Case 1
17:00 Case 2
22:21 How rare is UT?
27:42 Treatment
31:40 Hemorrhagic edema of infancy. Cockade purpura.
32:30 There are types of vasculitis that have UT-type legions, but not UT (EGPA)
33:58 With any Vasculitis that affects the skin, is it possible that a limited area will be affected? I have been told to return when I am covered with the issue, instead of several small spots.
36:09 Can you be in remission if you have no symptoms but have vasculitis in your system?
37:12 How does this work with Behcet's and Sjorgrens?
39:23 Can maternal exposure to Rubella cause any of this?
40:22 How rare is UT in black people?
41:39 Is there any evidence that COVID-19 has led to an increase in UT
42:44 Can you discuss the difference between urticaria and panniculitis
45:04 Is it possible that pressure from exercise could cause increased sensitivity with UT
46:10 When GI issues are involved with UT what are the symptoms?
48:08 Do you recommend any topicals or ointments to help maintain UT?
49:36 Is there a connection between UT and Lichen planus
52:58 Can chemo and radiation cause UT
54:16 Do the eruptions that occur with UT every crust or harden. If so could they be surgically removed?

Overview of Urticarial Vasculitis
February 2024

[Mootielove]

Thank you, great presentation however there was very little spoken about angioedema which is a presenting feature for most UV patients which can involve lips, face, eyes or joints. Personally I had cranial nerve palsy (Vernet's Syndrome) with UV but my complements were normal so my point is UV without complement involvement in some cases can bring about systemic problems. Currently in remission with the help of hydroxychloroquine but always looking over my shoulder.

[vedior]

Amazing doctor and so young !!! I started with thyroid enlargement, after 7 years developed urticarial vasculitis and after 2 years of this diagnosis I got sjogren =(

[alkabhattimurmu]

Urticarial Vascuilitis
Type - don’t know
On HCQS for over a year since diagnosed

[highlyamused]

I have been told I have a genetic mutation of the NLRP3 gene (after 16yrs of investigations and trying every medicine under the sun), however my symotoms don't fit neatly into a CAPs diagnosis. I have urticarial vasculitis and systemic inflamation but nothing ever shows in my bloods. I'm being trialed on Anakinra injections next week. I'm trying to stay hopeful but it's so draining 😭

[NatalieHC]

I got UV after the covid Vax. I'm now on Immunosuppressant medication and am now into my 2nd year of living with no immune system. I've been on many meds to control this so far.

[TheMhannan]

I have been diagnosed with urticarial vasculitis and then 2 years later cancer. I was told that radio therapy can cause UV. By my specialist treating me with radiotherapy.

[dannyeichelberger]

I was diagnosed with HUV years ago via biopsy and low complement levels and have struggled for years!! very little relief with DMARDS and Biologics, next step may be Rituximab. very difficult disease to treat, my flares seem to be more related to environmental factors than food.