Relationships and CFS | CHRONIC FATIGUE SYNDROME

CFS can be a really big hurdle for relationships.

I've been in your position. I know what it's like when everyday you feel like you have to explain yourself over and over again, to friends or family or spouses, to the point where they're looking at you like you're crazy. And sometimes you even think yourself that you're going crazy because when they look at you, you look physically perfectly fine.

If there's one thing to understand about relationships and CFS it's this - most of the stress with the relationships come when our expectations are for people to understand what we're going through.

The reality is no one will understand what you're going through, unless they've been in the same position you're in, unless they've had CFS as bad as you have it right now.
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue

DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.

[cfsrecovery]

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[Backwardstie]

currently dating someone with ME/CFS and i love and support them so much. One time while at school, (6th form) They crashed and were sat in the corner with headphones on. I say with them, told them how much i loved them, held their hand and cuddled with them. They managed to push through the day and crashed again at home, but, when i was cuddling with them and was Non- verbal. They leaned towards me and whimpered “Thank you” and when i got home, i burst into tears. Thank you for this ❤❤❤

[suzannax]

I used to feel like I had to explain myself to everyone because I'm in a care environment and felt that they needed to understand in order to not push me way beyond my energy limits, to the point of crashing.

But in time I got fed up with the looks of disbelief and them doing whatever they liked and denying the consequences of their actions on my health. So, I don't talk about it anymore, which is actually a relief. Because it's incredibly boring having the same conversation and disappointment every few weeks when there's new carers.

[samanthahammond]

Watching this absolutely heartbroken. My boyfriend of 7 years has just broken up with me as he has given up hope of me getting better and said that i drain the fun out of everything he does because im stuck in bed with me/cfs for the last 19 months. I have just started making real progress with recovery and can now stand up for a few seconds twice a day. I dont know how to grieve this without making myself worse... He was the best boyfriend I've had in 49 years, I thought we'd be together forever...

[julielee]

I've had Cfs/Fibromyalgia for nearly 12 years now and thankfully l have substantially recovered albeit not completely.Unfortunately my husband was not a great support when l was in the initial stages of my illness and very unwell.We lived in a rural area at the time and the isolation, loneliness and anxiety was brutal to say the least.Even though l still feel sad on occasion when l think of that time l have stopped expecting him to understand CFS and I've found support from some wonderful friends who have stayed the course with me all the way.This situation has also taught me l can rely on myself in a more independent way and to foster an attitude of self compassion rather than rely on people who just don't get it for support.Best wishes to all who are working on their own recovery.

[nitab]

Good video. Take away from this:
Lower your expectations from people.
Put yourself first and prioritise your needs of rest, etc.

[EveryoneIsEqual]

Long covid twice. 2nd time spouse got burb out. I feel so bad.

[omaralexis]

Can you make a video, about autoinmmune conditions like lupus, RA . THANK you

[dorishangel]

My partner broke up with me a few weeks ago after 5 years because of CFS. Eventhough I was more or less functioning - cleaning, shopping, cooking, going for a walk or bike ride, going on holidays, being there for him when he was down. But in his eyes I'm not really sick and it's my 'fault' or weakness, that I feel like I do and experience these symptoms

[JuliaTaylorSoprano]

Just got a CFS diagnosis in my Long COVID journey… he left me. I’m so heartbroken. 💔

[rookie]

My gf currently has cfs and got it 1 year ago and as a partner its really tough tbh

[lilailoilo]

How did you overcome this disease? My husband suffers from this