Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders

[BasedWifeLife]

Thank you so much for helping me understand what is happening in my own body. Most Doctors have not even heard about it and it can be incredibly frustrating. This helps a lot.

[shereetedrow]

This is the most thorough lecture on Mastocytosis and MCAS that I I have come across. Thank you so much

[mcmarshall]

This presentation was very informative and kudos to the Doctor for presenting this very complex material in an easy to understand way.

[Samanthael]

I wish this video was 6 hours longer than it is. I’m taking this to my doctor

[napakamu]

Thank you very much for this video.
Ps you're doing an amazing job investigating and treating mast cell disorders. Kudos for that!

[thorkushari]

An update in links between coronavirus spike proteins, MCAS and the long covid pandemic is needed.

[annfairfax]

Your presentation was fabulous! I’ve been diagnosed with EDS, MCAS, low immunoglobulins and am so sick all the time (8 out of 10 months ). Saddest part my “MCAS doc is supposedly an expert” 😢
I need a knowledgeable doc in the USA who takes insurance, not a functional provider, too expensive. Any suggestions are appreciated.

[aaronfaster]

Good to see the NASL sound guy is still getting work.

[DrLisaDeG]

Really succinct video on a very complex topic. Great job!

[ancaa.]

Very, very good presentation! Very informative and helpful. Thank you. 👍🏼

[lilacscentedfushias]

Maybe it’s because I spent so much time in schools teaching, but when he said “hands up if you can’t hear” my arm went up 😂 I didn’t think to just turn the volume up. Since it was down because of the piercing noise.
My arm wanted to go up quickly, but those of us with EDS know by bedtime our bodies have done for the day, including arms!

[Ana.Forlin]

Thank you for this indepth explanation of MCAS.

Do you any doctors knowledgeable in EDS in Atlantic Canada (better if New Brunswick)?

I finally got my EDS diagnosis. I seem to have a lot of weird allergies that I'm thinking might actually be MCAS, not allergies. Not sure. Need a doctor who knows enough about it to be able to tell for certain.

I have been absolutely miserable for so many years, because of everything going on with my body and being gaslit at hospitals for years being told that it's all in my head. Now that I have a diagnosis, it's such a relief, because at least my pain can finally be validated.

Now, I would REALLY like to have treatment options that could help me regain some quality of life, but my doctor knows no EDS specialists who might be able to help.

[Yui-zbfm]

I have allergic asthma and allergic rhinitis when you have this you suffer

[sherrieash]

I was diagnosed after a bone marrow biopsy a few years ago. I have been on Rydapt therapy for nearly 2 years now.

[noBodyuNope]

Thank you the comprehensive presentation

[randirssaak]

Thank you so much for this talk and information!

[RarewareLover]

For chronic autoimmune urticaria that is refractory to omalizumab, we do trial immunomodulators with varying benefit.

[staceya.]

20:00

My immunologist ruled it out because my trypase levels are normal but i’m in an MCAS group and EVERYONE thinks I have it. All this time the only thing that’s given me any kind of relief is Benadryl and DAO enzymes. Most importantly I basically can’t eat anything and I even have to be careful for environmental triggers

[starlitetaylor]

This is incredible! great presentation! Is there some way to print this powerpoint without having to screenshot these frames?

[MBrusaZappellini]

I’m very close to getting a solid diagnosis after 20+ years of intense searching.... 18:11 my legs look like that (but much worse). I have been searching for a solid diagnosis for 20+ years and have encountered terrible uneducated Drs and Allergists along the way.
My symptoms were mild (hives. Itching digestive ) until my appendix ruptured in 1998 and I developed peritonitis, which nearly killed me. Since then it’s been a laundry list of odd symptoms, which I’m now understanding are part of this complex disease...

2020, I am on a protocol that is definitely helping but I’m still struggling...and I’m reaching out with my story to anyone who will listen/read it in the hopes that I can learn any ways that I might improve my situation. Is there a type of Dr I should seek out for more complete care? Is there a hospital /clinic that I should look into?
Like many with complex health issues I have been on a long tough journey but I still have hope- Thanks in advance for any constructive suggestions- MBZ