FASD: Living with a brain and body disability.

Drinking alcohol during pregnancy can harm an unborn baby.
This can result in a disability called Fetal Alcohol Spectrum Disorder (FASD).

[tammarishka]

Thank you. You just validated me. I'm not a bad or stupid person. I wasn't the horrible kid my parents told me I was. Now at 59 I know why I'm in so much pain, my memory is not good, emotional issues, behavioural issues and social behavioural issues an learning...I hated it because of everything involved including my great lack learning.. It could very well not be fibromyalgia. With everything else, you just connected the dots.

[hellknightmordred]

I am living with FASD as well. Thank you for the words. I am doing better then i was last year. Starting a band and joining another. Also i have found a job.

[tiffanyhuck]

❤ ty. This is exactly how it's been growing up. So many including my mom got easily frustrated with the ability to do things one day and not the next. School was always a struggle.

[ReinMan]

Myles! Love you, dude! You speak truth and you do it from such a good heart!
The part that really touches me with this vid is the PHYSICAL aspect of FASD. That's something that I find is more 'amplified' as I get older. And don't get me wrong, I DO feel blessed that I'm getting the chance TO GET OLDER. Not all us folks on the FASD spectrum get that chance. <3 BUT... the physical effects on my body and nervous system have been very hard to deal with. I know they won't go away, so all i can do is work on handling what comes my way with some amount of Grace and Dignity.

Thanks again for getting the Word out there, Myles! 🙏🏼

[alinareybey]

When people use the “you’re lazy, you’re not trying hard” it’s get me so damn frustrated 😭😂

[kukuinutzz]

Thanks for continuing to educate and advocate for those affected by FASD, Myles! You continue to inspire all of us.

[HebrewPrincess]

My beautiful Aunt just passed away she lived with FASD although she died from Covid, my Aunt had the same symptoms but far worse such as Bipolar, Paranoia Schizophrenia, along with disassociate Identity Disorder. She could not even take her own medication to maintain her blood pressure. She is not only the only sibling 5 other ones have it as well. When I look at them I get upset at my grandmother for drinking during her pregnancy

[rebeccatillou]

You are such an inspiration Miles. Thank you for being you.

[ellessedi]

I knew nothing about FASD and this is the first video I watched because I wanted to know from someone with AFSD what it was ACTUALLY like.
Thank you for sharing your experience and educating people on this disability! It was really enlightening, especially as a person with an "invisible" disability myself (let's just say that people don't really pay that much attention..). Thank you! <3

[shbs-ecij]

thank you for this!!!! its actually pretty amazing how successful people with FASD, surely it may be a challenge but even with people with depression or bipolar have uphills. keep up the great work, life is never easy and hard work always pays off.

[leighannlewis]

Miles please keep doing videos. Especially talking to the kids themselves.

[NickArcade]

Dude, you are awesome. Keep doing what you're doing.

[pipeorganfan]

WOW! Let Me Tell You It Is SO GREAT TO Literatly See Your Own Reflection Of Your Exact Same Life Thru Another Person. Bravo!

[kathyroux]

I was diagnosed with autism and ADHD in my 50s. Up until then, I thought I just was failing out of life. In my way, I understand what it’s like to have a disability that is not consistent. Thank you for telling your story and speaking your truth.

[SomewhereNice]

35 yrs old multiple mental hospital visits being in and out of the juvenile system. I could never figure out why I did things that made no sense after the fact. It feels good to finally find the answer to everything. I feel free for the first time.

[katherinelaw]

Why do we have sore bones with FASD. I thought it was because I have lots of broken bones from accidents and abuse but maybe it's to do with my FASD. I know how you feel. I was told that too. I was told I the same things from teachers. People would ring my parents and say I am being naughty and my parents had to explain that I can't help it, that I have FASD. It's hard because an art teacher can teach me amazing art and my paintings would sell but a week later I would forget what I learnt and have to be shown again same with my stitching classes. I did amazing beautiful stitching but only once a week. So by the next week I would forget the different stitches that I did. The teacher would get frustrated with me and say yes you can do it look at the lovely work you did and not help me. Then I wouldn't get anything done and I would get in trouble. So I quit stitching because it's pointless if I don't have someone showing me daily how do stitch. I do really well clocking and unlocking things on the XBOX consoles.

[emmanuelschmulewitz]

This is a very insightful video. Have you got a strategy to respond to sentences like: "You are so intelligent and reflected, you can't have FASD. You speak so fluently - and I understand you. I have issues too. Everyone has." Still struggle with this, because medical health professionals are still looking for the most likely explanations for everything...

[Loved]

I love this video! So insightful. Thank you.

[juliodyarzagaray]

If I had this, I would live in pure rage.

[MSNdlock]

I don’t know anyone that has it or atleast not knowing of it. But wow that’s rough. I’m pretty knowledgeable on most disability-disorders as I have worked with a bunch of people who have them. Just wow I didn’t realize it affected people like that. Much respect for the people dealing and managing with FAS. I can’t imagine how frustrating as you explained people just aren’t aware. You’re not dumb you obviously can do task and handle life just some days are a big challenge. I get that’s extremely frustrating! So like how does this work I’m sure some cases are worse than others but is it in a sense the brain just “short circuits - malfunctions” I’m curious on why it’s easier some days and opposite the other. I’m not challenging that’s it’s tough I’m just not knowledgeable on FAS. This is my first time really learning about it. That’s sad and very tough thing but my utmost respect to you and the ones still pushing through it!